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Tell me this isn't depression... with a little hypomania thrown in for good measure.
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<blockquote data-quote="buddy" data-source="post: 493659" data-attributes="member: 12886"><p>That is what Q had. There is a good website. Did you know they now have identified several genetic forms of this and it can be inherited? If you have any information to share ever, please do... I would love that. At first they thought the genetic markers were only in the Hispanic population but now there are more kinds. the surgery report said Q's was the size of a beefsteak tomato. It leaked before they found it (strokes) and then was removed. Most of Q's seizures are temporal lobe and simple too. His start on the right and go to the left. I think if an adult can describe it like that, how frustrating must it be for Q who too has learned just to push thru them so often and most people wouldn't know (they were documented to be happening many many times all day and all night).</p><p></p><p>I find myself having to remind people all of the time that this injury causes in Q (among other things that are known from a rt. temporal lobe injury): persistent talking, inability to recognize facial expressions, short term memory issues and since there are limbic system structures there (and he has hippocampal damage in the rt. temporal lobe) it affects his emotional control...up and down....Temporal lobe injury can cause childish behavior and emotional disregulation. I am so glad to be at the therapy center that works with brain injury now so they can help me explain this better to school and even psychiatrists. I can imagine that like for Q who we think has Autism Spectrum Disorders (ASD) independent of this, that it could only have added to and made much more complicated your husband's mental health issues. Though, I suppose he may have had that CA for a LOOONGGG time..and could have been the reason for those problems all along. ???? No way to know when it started to grow unless he ever had an MRI that didn't show one before it developed. Many people never have surgery as they probably told you. many have to live with them especially if they are in a really hard place to get out. They often wait until life threatening symptoms show up. </p><p></p><p>do you belong to the anioma alliance? they are doing so much research. When Q was diagnosed there was almost NO information on this. Things have changed so much right? I have never actually "met" anyone who has experienced this... thanks so much for sharing!</p><p></p><p><a href="http://www.angiomaalliance.org/" target="_blank">Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support</a></p><p></p><p></p><p>edit: Just read stars thing and it reminded me of something I haven't had to fully face yet, hope we dont.... the altered sexual stuff...</p></blockquote><p></p>
[QUOTE="buddy, post: 493659, member: 12886"] That is what Q had. There is a good website. Did you know they now have identified several genetic forms of this and it can be inherited? If you have any information to share ever, please do... I would love that. At first they thought the genetic markers were only in the Hispanic population but now there are more kinds. the surgery report said Q's was the size of a beefsteak tomato. It leaked before they found it (strokes) and then was removed. Most of Q's seizures are temporal lobe and simple too. His start on the right and go to the left. I think if an adult can describe it like that, how frustrating must it be for Q who too has learned just to push thru them so often and most people wouldn't know (they were documented to be happening many many times all day and all night). I find myself having to remind people all of the time that this injury causes in Q (among other things that are known from a rt. temporal lobe injury): persistent talking, inability to recognize facial expressions, short term memory issues and since there are limbic system structures there (and he has hippocampal damage in the rt. temporal lobe) it affects his emotional control...up and down....Temporal lobe injury can cause childish behavior and emotional disregulation. I am so glad to be at the therapy center that works with brain injury now so they can help me explain this better to school and even psychiatrists. I can imagine that like for Q who we think has Autism Spectrum Disorders (ASD) independent of this, that it could only have added to and made much more complicated your husband's mental health issues. Though, I suppose he may have had that CA for a LOOONGGG time..and could have been the reason for those problems all along. ???? No way to know when it started to grow unless he ever had an MRI that didn't show one before it developed. Many people never have surgery as they probably told you. many have to live with them especially if they are in a really hard place to get out. They often wait until life threatening symptoms show up. do you belong to the anioma alliance? they are doing so much research. When Q was diagnosed there was almost NO information on this. Things have changed so much right? I have never actually "met" anyone who has experienced this... thanks so much for sharing! [URL="http://www.angiomaalliance.org/"]Angioma Alliance Cavernous Angioma Cavernous Malformation Cavernoma vascular hemangioma health organization cavernous angioma malformations venous brainstem cerebral support[/URL] edit: Just read stars thing and it reminded me of something I haven't had to fully face yet, hope we dont.... the altered sexual stuff... [/QUOTE]
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Tell me this isn't depression... with a little hypomania thrown in for good measure.
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