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Tell me. What am I supposed to do???
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<blockquote data-quote="flutterbee" data-source="post: 230057"><p>My doctor won't give me anymore pain medications. Granted, I really haven't needed them since the toradol, but the flare is starting up and is starting to pick up momentum. </p><p></p><p>She said that I was taking them every day and that was too much. Tell me, then. What the hell was I supposed to do??? I was in agony. I was offered nothing else that worked until *I* asked for the toradol (strong NSAID) and you can only take toradol for 5 days because of risk of GI bleeds. I was not offered lidocaine patches. I was not offered PT. I asked about a chiro and she didn't seem to like them and didn't give me a referral.</p><p></p><p>So, when I'm lying in bed at night and can't sleep because I have pain radiating down both arms and both legs and up my neck, what am I supposed to do? When I can't walk across the room because of the pain? When just being is agony?</p><p></p><p>The rx reads 1-2 every 4-6 hours. I took one or two pills a day; on my worst days I took 3. On the days I didn't need them, I didn't take them. I was not abusing them.</p><p></p><p>The prescription strength typical NSAID's don't work. I suppose if I doubled them up it might help, but then I risk damaging my kidney's. Hell, that's what a friend of mine does and she has lupus. She's already at risk of kidney damage. But, we're given no alternative.</p><p></p><p>She referred me to a pain mgmt doctor months ago. They are just starting to accept patients TODAY. They have to fax my info to them, wait for them to look over it and then they'll call me. Wonder when that will be.</p><p></p><p>Living in that kind of pain is just existing. I'm not talking aches and pains. I'm talking excrutiating pain. You have no idea how many times I've laid in bed thinking about all the medications I have and how I could easily off myself. I don't want to die. I just don't want to live like this anymore. This isn't living.</p><p></p><p>And for her to say that I was taking them too much...makes me feel like she thinks I'm abusing them. And that hurts. A lot. I'm just trying to bring the pain down to a level that I can somewhat function. I wasn't getting high and I wasn't jonesing for them when I didn't take them. </p><p></p><p>Ok. Now I'm crying. Doesn't quality of life count for something? I'm so tired of the people who are supposed to not understanding.</p></blockquote><p></p>
[QUOTE="flutterbee, post: 230057"] My doctor won't give me anymore pain medications. Granted, I really haven't needed them since the toradol, but the flare is starting up and is starting to pick up momentum. She said that I was taking them every day and that was too much. Tell me, then. What the hell was I supposed to do??? I was in agony. I was offered nothing else that worked until *I* asked for the toradol (strong NSAID) and you can only take toradol for 5 days because of risk of GI bleeds. I was not offered lidocaine patches. I was not offered PT. I asked about a chiro and she didn't seem to like them and didn't give me a referral. So, when I'm lying in bed at night and can't sleep because I have pain radiating down both arms and both legs and up my neck, what am I supposed to do? When I can't walk across the room because of the pain? When just being is agony? The rx reads 1-2 every 4-6 hours. I took one or two pills a day; on my worst days I took 3. On the days I didn't need them, I didn't take them. I was not abusing them. The prescription strength typical NSAID's don't work. I suppose if I doubled them up it might help, but then I risk damaging my kidney's. Hell, that's what a friend of mine does and she has lupus. She's already at risk of kidney damage. But, we're given no alternative. She referred me to a pain mgmt doctor months ago. They are just starting to accept patients TODAY. They have to fax my info to them, wait for them to look over it and then they'll call me. Wonder when that will be. Living in that kind of pain is just existing. I'm not talking aches and pains. I'm talking excrutiating pain. You have no idea how many times I've laid in bed thinking about all the medications I have and how I could easily off myself. I don't want to die. I just don't want to live like this anymore. This isn't living. And for her to say that I was taking them too much...makes me feel like she thinks I'm abusing them. And that hurts. A lot. I'm just trying to bring the pain down to a level that I can somewhat function. I wasn't getting high and I wasn't jonesing for them when I didn't take them. Ok. Now I'm crying. Doesn't quality of life count for something? I'm so tired of the people who are supposed to not understanding. [/QUOTE]
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