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The doctor appointment
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<blockquote data-quote="susiestar" data-source="post: 335867" data-attributes="member: 1233"><p>I forgot to mention one thing. The neuro wants her to see a specific therapist to treat this. Neuro sends all his migraine patients to this man.</p><p></p><p>He is a neuropsychologist!! Does more patient care/therapy than testing and has an excellent record. It is rare that patients post things on the one doctor site that asks for patient reviews of the docs. It comes up in google searches on doctors. This dr has several parents who rated him with the best score they can give! You have to have done something fairly dramatic to get patients to think about rating them online.</p><p></p><p>We are hoping maybe he can help see something.</p><p></p><p>Thanks for the idea of a newer doctor being more likely to look into things. The 2nd neuro is quite new. Less than 3 years in practice (a baby in the words of one other doctor who liked him but said he may be too new to know what he is doing with this.)</p><p></p><p>We will look for docs who are fairly new because I also have had the experience that new docs are more aware of the latest research and are more likely to do research on problems. It is how I figured out some of my own health issues. So thanks for the advice, it is a good idea.</p><p></p><p>I have not given up. Won't ever give up. Will keep working on this for as long as I live or until we get it figured out.</p><p></p><p></p><p>Oh, the doctor is NOT going to be happy. I do NOT give permission for any doctor to get notes from treating therapists. Some things need to be private and therapy for emotional things is one, even if they relate to or include anxiety. </p><p></p><p>It is one reason I was so shocked when the neuro said he had an evaluation by a psychologist. This Dr. G was not qualified, in my opinion, to write up anything on Jessica. Not when she spent so little time with her and it was in a room with 4 other docs or learning to be docs plus myself and a nurse. It just was not possible for her to do an evaluation.</p><p></p><p>The anxiety diagnosis is esp frustrating when the therapist we see says that the only anxiety contributing is her anxiety over this long lasting illness. </p><p></p><p>But, if the doctor is willing to work with us we will stick with him. So far he is the only doctor willing to look at the ENTIRE medication list and change it to something reasonable. I have been very worried about the effect of having the sheer number of medications on her liver and kidneys, plus the potential destruction of the lining of her esophagus/stomach/etc....</p><p></p><p>The neuro did say that regardless of what caused the problem it will not go away immediately, that it will take several months. That seemed like a wise view, esp if it means he will keep working with us until it is better or he cannot think of anything that will help that we have not tried. A big part of our frustration was having docs just say "not interested".</p><p></p><p>Again, we really appreciate all the love and support you send. We could not get through this without it. Thanks.</p><p>We are supposed to get a call on Monday or Tuesday with the appointment for the neuropsychologist and the follow up with the neuro.</p></blockquote><p></p>
[QUOTE="susiestar, post: 335867, member: 1233"] I forgot to mention one thing. The neuro wants her to see a specific therapist to treat this. Neuro sends all his migraine patients to this man. He is a neuropsychologist!! Does more patient care/therapy than testing and has an excellent record. It is rare that patients post things on the one doctor site that asks for patient reviews of the docs. It comes up in google searches on doctors. This dr has several parents who rated him with the best score they can give! You have to have done something fairly dramatic to get patients to think about rating them online. We are hoping maybe he can help see something. Thanks for the idea of a newer doctor being more likely to look into things. The 2nd neuro is quite new. Less than 3 years in practice (a baby in the words of one other doctor who liked him but said he may be too new to know what he is doing with this.) We will look for docs who are fairly new because I also have had the experience that new docs are more aware of the latest research and are more likely to do research on problems. It is how I figured out some of my own health issues. So thanks for the advice, it is a good idea. I have not given up. Won't ever give up. Will keep working on this for as long as I live or until we get it figured out. Oh, the doctor is NOT going to be happy. I do NOT give permission for any doctor to get notes from treating therapists. Some things need to be private and therapy for emotional things is one, even if they relate to or include anxiety. It is one reason I was so shocked when the neuro said he had an evaluation by a psychologist. This Dr. G was not qualified, in my opinion, to write up anything on Jessica. Not when she spent so little time with her and it was in a room with 4 other docs or learning to be docs plus myself and a nurse. It just was not possible for her to do an evaluation. The anxiety diagnosis is esp frustrating when the therapist we see says that the only anxiety contributing is her anxiety over this long lasting illness. But, if the doctor is willing to work with us we will stick with him. So far he is the only doctor willing to look at the ENTIRE medication list and change it to something reasonable. I have been very worried about the effect of having the sheer number of medications on her liver and kidneys, plus the potential destruction of the lining of her esophagus/stomach/etc.... The neuro did say that regardless of what caused the problem it will not go away immediately, that it will take several months. That seemed like a wise view, esp if it means he will keep working with us until it is better or he cannot think of anything that will help that we have not tried. A big part of our frustration was having docs just say "not interested". Again, we really appreciate all the love and support you send. We could not get through this without it. Thanks. We are supposed to get a call on Monday or Tuesday with the appointment for the neuropsychologist and the follow up with the neuro. [/QUOTE]
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