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<blockquote data-quote="witzend" data-source="post: 147933" data-attributes="member: 99"><p>I can totally relate to the trying to explain illness to people. Mine makes me look about 15 years younger than I am, so I can't be sick, right? Not only that I'm "really lucky" and it "should make me happy". Actually, I look young because I can't smile so there's no wrinkles. Imagine going through life without smiling. And I'm thin because I don't dare gain weight or I wouldn't be able to walk at all if I were even a few pounds overweight. No fatty food for me. And since I'm thin, I must be fit, right? There's other stuff I could make an example of, but I won't.</p><p></p><p>The gripe I have is the people who say "Oh, you're not actually <em>that</em> bad off" when I say I can't handle stairs or walk far. What kind of a person would limp slowly through a parking lot in a rain and windstorm if they didn't have to? Do they think I do it just to make a spectacle of myself? Do they think <em>I'm</em> that kind of a person? Because if they do after I have explained it over and over they're not worth knowing. </p><p></p><p>My parents are like yours in that. In spite of sending them patient brochures on my disease from the MDA (with my own picture on the cover!) and articles, the most I could ever get out of them was "well, we know that you have that disease, but it's really not as bad as you make it out to be. You just use it as an excuse to be lazy." Like I'm supposed to pretend that someone who feels that way about me loves me? They're toxic and I don't care how it is that I happen to know them they aren't worth knowing.</p><p></p><p>We shouldn't have to justify our illnesses. I know that it just is what it is. Why is it so hard for everyone else to accept that?</p></blockquote><p></p>
[QUOTE="witzend, post: 147933, member: 99"] I can totally relate to the trying to explain illness to people. Mine makes me look about 15 years younger than I am, so I can't be sick, right? Not only that I'm "really lucky" and it "should make me happy". Actually, I look young because I can't smile so there's no wrinkles. Imagine going through life without smiling. And I'm thin because I don't dare gain weight or I wouldn't be able to walk at all if I were even a few pounds overweight. No fatty food for me. And since I'm thin, I must be fit, right? There's other stuff I could make an example of, but I won't. The gripe I have is the people who say "Oh, you're not actually [I]that[/I] bad off" when I say I can't handle stairs or walk far. What kind of a person would limp slowly through a parking lot in a rain and windstorm if they didn't have to? Do they think I do it just to make a spectacle of myself? Do they think [I]I'm[/I] that kind of a person? Because if they do after I have explained it over and over they're not worth knowing. My parents are like yours in that. In spite of sending them patient brochures on my disease from the MDA (with my own picture on the cover!) and articles, the most I could ever get out of them was "well, we know that you have that disease, but it's really not as bad as you make it out to be. You just use it as an excuse to be lazy." Like I'm supposed to pretend that someone who feels that way about me loves me? They're toxic and I don't care how it is that I happen to know them they aren't worth knowing. We shouldn't have to justify our illnesses. I know that it just is what it is. Why is it so hard for everyone else to accept that? [/QUOTE]
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