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Those of you with long-term/chronic illness
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<blockquote data-quote="Pam R" data-source="post: 130732" data-attributes="member: 108"><p>husband and I have chronic illness. He was diagnosis'd in 98, I was in 2000. He's is disabled, so we live on his single disability income. </p><p></p><p>We more or less play tag team. I had to stop driving in 01 due to cognitive problems and exhaustion, which made them worse. So he's the chauffeur, though there's days I'm not sure I'd be better off being the one driving....</p><p></p><p>Being chronically ill (husband was given 1 yr to live in 98) changes your perspective and priorities. Mostly we work together to try to get what needs done, done. For DS, to keep the house running, to maintain the farm, etc.</p><p></p><p>Most days, it's all we can do to just get through the day: food, dishes, DS where he needs to go.</p><p></p><p>So lots doesn't get done. On good days, we do what we can, but we never catch up.</p><p></p><p>Cleaning up our food has made a huge difference. But the exhaustion still hits, the pain is still there for husband, but I live in hope that some day my body will heal enough from good care, that these things won't be so limiting.</p><p></p><p>Mostly, I work real hard at stress reduction, as much exercise as I can do, eating as well as I can, strict sleep hygiene, and taking time to care for myself, doing something for me.</p><p></p><p>That's how I keep on. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p><p></p><p>Pam R.</p></blockquote><p></p>
[QUOTE="Pam R, post: 130732, member: 108"] husband and I have chronic illness. He was diagnosis'd in 98, I was in 2000. He's is disabled, so we live on his single disability income. We more or less play tag team. I had to stop driving in 01 due to cognitive problems and exhaustion, which made them worse. So he's the chauffeur, though there's days I'm not sure I'd be better off being the one driving.... Being chronically ill (husband was given 1 yr to live in 98) changes your perspective and priorities. Mostly we work together to try to get what needs done, done. For DS, to keep the house running, to maintain the farm, etc. Most days, it's all we can do to just get through the day: food, dishes, DS where he needs to go. So lots doesn't get done. On good days, we do what we can, but we never catch up. Cleaning up our food has made a huge difference. But the exhaustion still hits, the pain is still there for husband, but I live in hope that some day my body will heal enough from good care, that these things won't be so limiting. Mostly, I work real hard at stress reduction, as much exercise as I can do, eating as well as I can, strict sleep hygiene, and taking time to care for myself, doing something for me. That's how I keep on. :) Pam R. [/QUOTE]
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