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Those of you with long-term/chronic illness
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<blockquote data-quote="flutterbee" data-source="post: 130901"><p>I'm hypoglycemic, too, and I try to keep on top of that. Some days are better than others. We are still in the process of nailing down a diagnosis. The only thing we know for sure is coronary artery disease, but since I've had angioplasty those symptoms (other than angina) have dissipated. Before the angioplasty, I was barely functional. A walk around the block would have me gasping for air and unable to move - literally - for hours. All of my current symptoms (that I had before the heart attack, too...the pain, fatigue, etc) went away for 3 months after the angioplasty so I initially attributed them all to the heart disease, but they came back - except for the gasping for air thing. I can definitely tell now what was related to the heart disease and what is something else. It is nice to get on the treadmill and be able to breathe. Yeah, it hurts to walk, but at least I can breathe. <img src="/community/styles/default/xenforo/smilies/tongue.png" class="smilie" loading="lazy" alt=":tongue:" title="tongue :tongue:" data-shortname=":tongue:" /></p><p></p><p>I do notice more energy, but it's only when I'm doing what I'm doing. And to be honest I'm not sure if it's actually more physical energy or if it's just the momentum to keep going, Know what I mean?? As soon as I stop, the fatigue is back. I am very easily fatigued, too. A trip to the grocery store will have me physically and mentally fatigued for the rest of the day. </p><p></p><p>I have been checked for a lot of vitamin deficiencies...folic acid at least several times over the last year. They have found a very severe vitamin D deficiency which is linked to muscolskeletal (can't spell that word) pain, but I haven't seen any reference to fatigue. Something to ask my doctor about. The traditional things they check for when looking for causes of fatigue such as folic acid and the B's have all checked out ok. I do take a multi vitamin as well.</p><p></p><p>I think the fatigue is the hardest part. I can always take something for the pain and while it's limiting I can work around it. But, the fatigue is constant. Some days are worse than others, but it's always there. </p><p></p><p>Then, too, I'm tired of living and breathing this. I'm ready to get on with my life and either have to find a way to lessen the fatigue or s-uck it up and deal with it. At this point I think chances are really good that it's just going to be a part of my life and I can either let it keep me down or I can fight it. The thing that concerns me is that some days it's so debilitating I don't know if I could hold a full time job. Or, rather, keep it. </p><p></p><p>To that end, my daughter attends an online public school and her teacher is wanting to create a position for a Data Analyst and also a Parent Advisory Board and wants me to head it up. I could work from home and at my own pace. Sounds perfect, so keep your fingers crossed for me. If it happens, they want me to take the ball and roll with it, so I might be hitting you guys up for ideas on the Parent Advisory Board aspect.</p><p></p><p>It's a process. I've been working through the emotions that come with being ill and have (finally) gotten to the point where I'm not going to let it win. Period.</p></blockquote><p></p>
[QUOTE="flutterbee, post: 130901"] I'm hypoglycemic, too, and I try to keep on top of that. Some days are better than others. We are still in the process of nailing down a diagnosis. The only thing we know for sure is coronary artery disease, but since I've had angioplasty those symptoms (other than angina) have dissipated. Before the angioplasty, I was barely functional. A walk around the block would have me gasping for air and unable to move - literally - for hours. All of my current symptoms (that I had before the heart attack, too...the pain, fatigue, etc) went away for 3 months after the angioplasty so I initially attributed them all to the heart disease, but they came back - except for the gasping for air thing. I can definitely tell now what was related to the heart disease and what is something else. It is nice to get on the treadmill and be able to breathe. Yeah, it hurts to walk, but at least I can breathe. :raspberry-tounge: I do notice more energy, but it's only when I'm doing what I'm doing. And to be honest I'm not sure if it's actually more physical energy or if it's just the momentum to keep going, Know what I mean?? As soon as I stop, the fatigue is back. I am very easily fatigued, too. A trip to the grocery store will have me physically and mentally fatigued for the rest of the day. I have been checked for a lot of vitamin deficiencies...folic acid at least several times over the last year. They have found a very severe vitamin D deficiency which is linked to muscolskeletal (can't spell that word) pain, but I haven't seen any reference to fatigue. Something to ask my doctor about. The traditional things they check for when looking for causes of fatigue such as folic acid and the B's have all checked out ok. I do take a multi vitamin as well. I think the fatigue is the hardest part. I can always take something for the pain and while it's limiting I can work around it. But, the fatigue is constant. Some days are worse than others, but it's always there. Then, too, I'm tired of living and breathing this. I'm ready to get on with my life and either have to find a way to lessen the fatigue or s-uck it up and deal with it. At this point I think chances are really good that it's just going to be a part of my life and I can either let it keep me down or I can fight it. The thing that concerns me is that some days it's so debilitating I don't know if I could hold a full time job. Or, rather, keep it. To that end, my daughter attends an online public school and her teacher is wanting to create a position for a Data Analyst and also a Parent Advisory Board and wants me to head it up. I could work from home and at my own pace. Sounds perfect, so keep your fingers crossed for me. If it happens, they want me to take the ball and roll with it, so I might be hitting you guys up for ideas on the Parent Advisory Board aspect. It's a process. I've been working through the emotions that come with being ill and have (finally) gotten to the point where I'm not going to let it win. Period. [/QUOTE]
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