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Those of you with long-term/chronic illness
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<blockquote data-quote="timer lady" data-source="post: 131324" data-attributes="member: 393"><p><strong>Heather,</strong></p><p><strong></strong></p><p><strong>I'm slowly learning to pace myself; to manage the pain & most of all to "forgive" myself my limitations. While my standards worked for me a couple of years ago - those same standards no longer do.</strong></p><p><strong></strong></p><p><strong>Am I frustrated - darned right I am. However, I cannot change what is - I have to change my attitude & reaction to it. Many days I have a difficult time of it. My learning pace on this situation is a slow one.</strong></p><p><strong></strong></p><p><strong>I try to remember that I'm no different than the tweedles in many ways. I have a challenge to overcome. Or rather learn new coping skills to function.</strong></p><p><strong></strong></p><p><strong>I know the exhaustion - know it well. Marg has shared many of her "tricks of the trade" with me earlier. I'm now using my walker 100&#37; all of the time to maintain my strength - to build on that strength. </strong></p><p><strong></strong></p><p><strong>Let yourself nap if you body is telling you to do so. Don't overdo the naps. It becomes addictive (at least for me, it does). </strong></p><p><strong></strong></p><p><strong>When in the kitchen I do as Marg does - keep my hands busy. The PTs ordered & I should be receiving a rolling stool for use in the kitchen tomorrow. I'm so excited as I haven't had the energy to bake a batch of cookies in a while. This stool can be adjusted for my height & I can roll it with my feet. It almost looks like a bike with a bike type seat. I'll be able to move comfortably from my island to my stove & back with-o the drain on my body.</strong></p><p><strong></strong></p><p><strong>The PTs are also going to begin installing various safety bars in my bedroom & in the bathroom (more permanent ones) to help with my strength. While the bars are there I can work on my PT exercises.</strong></p><p><strong></strong></p><p><strong>Most of all, I'm asking for & demanding help. It's amazing how spoiled our families become; how much we truly believe we are the only ones who can bake that cake or clean the bathroom sink to a state of shininess. Now I just want the germs wiped out each day. </strong></p><p><strong></strong></p><p><strong>I hope you find answers soon - I hope you can rebuild your strength.</strong></p><p><strong></strong></p></blockquote><p></p>
[QUOTE="timer lady, post: 131324, member: 393"] [B]Heather, I'm slowly learning to pace myself; to manage the pain & most of all to "forgive" myself my limitations. While my standards worked for me a couple of years ago - those same standards no longer do. Am I frustrated - darned right I am. However, I cannot change what is - I have to change my attitude & reaction to it. Many days I have a difficult time of it. My learning pace on this situation is a slow one. I try to remember that I'm no different than the tweedles in many ways. I have a challenge to overcome. Or rather learn new coping skills to function. I know the exhaustion - know it well. Marg has shared many of her "tricks of the trade" with me earlier. I'm now using my walker 100% all of the time to maintain my strength - to build on that strength. Let yourself nap if you body is telling you to do so. Don't overdo the naps. It becomes addictive (at least for me, it does). When in the kitchen I do as Marg does - keep my hands busy. The PTs ordered & I should be receiving a rolling stool for use in the kitchen tomorrow. I'm so excited as I haven't had the energy to bake a batch of cookies in a while. This stool can be adjusted for my height & I can roll it with my feet. It almost looks like a bike with a bike type seat. I'll be able to move comfortably from my island to my stove & back with-o the drain on my body. The PTs are also going to begin installing various safety bars in my bedroom & in the bathroom (more permanent ones) to help with my strength. While the bars are there I can work on my PT exercises. Most of all, I'm asking for & demanding help. It's amazing how spoiled our families become; how much we truly believe we are the only ones who can bake that cake or clean the bathroom sink to a state of shininess. Now I just want the germs wiped out each day. I hope you find answers soon - I hope you can rebuild your strength. [/B] [/QUOTE]
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