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<blockquote data-quote="hearts and roses" data-source="post: 163541" data-attributes="member: 2211"><p><span style="font-size: 12px"><span style="color: darkred">My difficult child has tourettes and I'm just going to throw out some things. Shoulder shrugging was one of her tics. It came and went, as did most of her tics, all except the eye blinking, which was constant. She also had a stomach rolling type of tic that wasn't obvious to us, but when she told us about it, then I was able to notice it. Our DR then told us that while verbal tics were less likely in tourette patients, especially girls, when they are present, they are usually a repetitive grunt or squeal. My difficult child had echolalia - she would hear a phrase or tune and it would be stuck in her head for days, sometimes weeks and she would repeat it over and over again. I wanted to stab myself in the ears some days...but you learn to tune it out. </span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">Her manifestations of Obsessive Compulsive Disorder (OCD) involved counting. She counted everything. She would run the micro and do jumping jacks and count them. If the micro beeped and she ended her jumping jacks on an odd number, she'd start over and adjust the speed of her jumping jacks so she ended on a positive number! She would count the stripes on her teachers shirt - to the point that we had to ask him to stop wearing striped shirts (and he complied!) and steps to and from the bus. Everything. Telephone posts, traffic lites, types of specific cars we passed, etc.</span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">When she was sick with a cold or infection, her tics and Obsessive Compulsive Disorder (OCD) behaviors were always exacerbated or sometimes a new one would appear. Also, her tics and corresponding behaviors tend to wax and wane, which gives them a cyclic feel. </span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">She's always had a difficult time switching from one task, such as jugsaw puzzles, to another, such as "okay, we're leaving now"...we learned early on that it was best to use a timer when we knew we would be leaving and giving her ample notice that a change was coming up. Spontaneous was just not something that went easy with her - still doesn't. So, we'd set the time about 10 minutes before we had to leave. It would go off after 5 minutes and she knew that then she had another 5 minutes and then we were changing tasks, etc. It helped - wasn't perfect but it helped.</span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">When she was younger, routine and schedule really helped her to know and understand a certain order to her life. If it was a weekend and our time became to relaxed and free for all, difficult child would tend to get wired and by dinner time on a sunday, she'd be a mess. So, even on weekends, we had to have some type of order. *I'm thinking as I write this, it was a good thing for all of us - it made us spend a lot of quality family time together that we otherwise may not have had!</span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">With the emergence of these new symptoms in your difficult child, it's definitely worth having your girl re-evaluated by a pediatrician neuro psychiatric. And maybe get a counselor to help you with creating and following certain routines that will work for your whole family and learning how to make transitions easier for her (and you!).</span></span></p><p> </p><p><span style="font-size: 12px"><span style="color: darkred">Best of luck~Sorry if I went on too long!</span></span></p></blockquote><p></p>
[QUOTE="hearts and roses, post: 163541, member: 2211"] [SIZE=3][COLOR=darkred]My difficult child has tourettes and I'm just going to throw out some things. Shoulder shrugging was one of her tics. It came and went, as did most of her tics, all except the eye blinking, which was constant. She also had a stomach rolling type of tic that wasn't obvious to us, but when she told us about it, then I was able to notice it. Our DR then told us that while verbal tics were less likely in tourette patients, especially girls, when they are present, they are usually a repetitive grunt or squeal. My difficult child had echolalia - she would hear a phrase or tune and it would be stuck in her head for days, sometimes weeks and she would repeat it over and over again. I wanted to stab myself in the ears some days...but you learn to tune it out. [/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]Her manifestations of Obsessive Compulsive Disorder (OCD) involved counting. She counted everything. She would run the micro and do jumping jacks and count them. If the micro beeped and she ended her jumping jacks on an odd number, she'd start over and adjust the speed of her jumping jacks so she ended on a positive number! She would count the stripes on her teachers shirt - to the point that we had to ask him to stop wearing striped shirts (and he complied!) and steps to and from the bus. Everything. Telephone posts, traffic lites, types of specific cars we passed, etc.[/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]When she was sick with a cold or infection, her tics and Obsessive Compulsive Disorder (OCD) behaviors were always exacerbated or sometimes a new one would appear. Also, her tics and corresponding behaviors tend to wax and wane, which gives them a cyclic feel. [/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]She's always had a difficult time switching from one task, such as jugsaw puzzles, to another, such as "okay, we're leaving now"...we learned early on that it was best to use a timer when we knew we would be leaving and giving her ample notice that a change was coming up. Spontaneous was just not something that went easy with her - still doesn't. So, we'd set the time about 10 minutes before we had to leave. It would go off after 5 minutes and she knew that then she had another 5 minutes and then we were changing tasks, etc. It helped - wasn't perfect but it helped.[/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]When she was younger, routine and schedule really helped her to know and understand a certain order to her life. If it was a weekend and our time became to relaxed and free for all, difficult child would tend to get wired and by dinner time on a sunday, she'd be a mess. So, even on weekends, we had to have some type of order. *I'm thinking as I write this, it was a good thing for all of us - it made us spend a lot of quality family time together that we otherwise may not have had![/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]With the emergence of these new symptoms in your difficult child, it's definitely worth having your girl re-evaluated by a pediatrician neuro psychiatric. And maybe get a counselor to help you with creating and following certain routines that will work for your whole family and learning how to make transitions easier for her (and you!).[/COLOR][/SIZE] [SIZE=3][/SIZE] [SIZE=3][COLOR=darkred]Best of luck~Sorry if I went on too long![/COLOR][/SIZE] [/QUOTE]
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