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Trying to figure out what is going on with me
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<blockquote data-quote="Josie" data-source="post: 137405" data-attributes="member: 1792"><p>The Lyme test that most Lyme patients believe is accurate is IGeneX. My daughter had a negative regular Lyme test and a positive IGeneX test. I called them and ordered the test kit and took it to the doctor to ask him to order it. I had to pay $190 out of pocket and submit it to insurance myself.</p><p></p><p>I have read that LLMD's will look for another diagnosis if there isn't a positive Lyme test. They are willing to diagnose Lyme clinically without a positive test because there isn't a good test yet. The IGeneX test only detects 80&#37; of it, I think. </p><p></p><p>Even if you don't have Lyme, an LLMD might be able to help you figure out what is going on. Even with her postive test, my daughter's LLMD ordered an MRI to see if there was something besides Lyme causing her headaches. Her neurologist didn't order one. He relied on the one that was 3 years old.</p></blockquote><p></p>
[QUOTE="Josie, post: 137405, member: 1792"] The Lyme test that most Lyme patients believe is accurate is IGeneX. My daughter had a negative regular Lyme test and a positive IGeneX test. I called them and ordered the test kit and took it to the doctor to ask him to order it. I had to pay $190 out of pocket and submit it to insurance myself. I have read that LLMD's will look for another diagnosis if there isn't a positive Lyme test. They are willing to diagnose Lyme clinically without a positive test because there isn't a good test yet. The IGeneX test only detects 80% of it, I think. Even if you don't have Lyme, an LLMD might be able to help you figure out what is going on. Even with her postive test, my daughter's LLMD ordered an MRI to see if there was something besides Lyme causing her headaches. Her neurologist didn't order one. He relied on the one that was 3 years old. [/QUOTE]
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