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Two Steps Forward, One Step Back?
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<blockquote data-quote="HMBgal" data-source="post: 488127" data-attributes="member: 13260"><p>Big days for the grand-difficult child. He had a great weekend and got to go on a boat ride. Back story: in July, we went hiking. The deal is you hike to the end of the lake, then a boat takes you back. Sounds fun, right? difficult child obsessed and was so upset that we got halfway there and had to turn around; there was no way he was going to get on that boat, so we had to hike back. </p><p></p><p>We didn't make a big deal about it because we didn't want him to feel bad. Fast forward 5 months. We live near the coast and live across the Coast Highway from a small, working harbor. A boat was recently restored, a beautiful wood boat from the the 30s that holds about 18 people, and they give harbor tours (and go out into the open ocean) on weekends when the weather is nice. The harbor merchants were hosting a small ice rink (not really ice, but rather white slippery plastic stuff that looks like ice) for just this past Saturday. My daughter and the kids and my husband decided to meet up at the "rink" and have a fun outing. Well, we got there first and the "rink" was small, crowded, and I wasn't sure the kids would dig it too much. Since it was such a beautiful day, my husband and I went over to the pier to see if the Irene was giving tours, and they were. I called my daughter to see if she wanted to do the boat tour with the kids, and she jumped at the opportunity.</p><p></p><p>When difficult child came walking down the pier, he looked pensive, drawn in, a little upset, and I thought "Uh oh. We not only suddenly changed plans on him, but we are asking him to do something he's really afraid of." Well, he met with Captain Pat and his wife, looked the little boat over and climbed aboard. He looked awfully worried when they started the motor, but in a quiet little voice, he said "I think I like this." Captain Pat and wife were so very kind. It was just our family on board, so both kids (difficult child's sister is 3) got to ring the boat's bell, and difficult child even got to steer the boat! And when we got out into open water, there was a pretty big swell and water splashed in. I thought he would be afraid, but not at all. We saw an otter, seals, pelicans, and this little boy had a remarkable day that wouldn't have been possible even a few weeks ago. Pure magic is what it was.</p><p></p><p>He also stayed in school all day today for the first day with only one incident (he kicked the school bully at recess...I guess I should be upset, but I'm not really), the school hired a wonderful aide--a newly minted multi-subject elementary teacher that will stay his aide for this year, then will be hired as a teacher next year. He will now being going from 90 minutes a day at school to the full schedule. We are concerned that 8:30 to 2:40 two days a week are awfully long days, and the other days are until 1:10. It will the first time in the whole school year that he will be attending the entire time. Fingers firmly crossed.</p><p></p><p>We went to the child psychiatrist today for his "medication check up." We discussed stuff for about an hour and the doctor says he seemed better, and he was a charmer today, and while it seems to be 2 steps forward and 1 back, it is progress, I guess. We are concerned that he's lost 3 lbs. in 3 weeks, and his blood pressure and resting heart rate are kind of high (BiPolar (BP) 133/83, and heart rate 96). Hmmmm. The doctor wasn't concerned enough to take him off Concerta, but we have to go back in two weeks to recheck because there is a level of concern there. </p><p></p><p>That's all the news that's fit to print from around here. Hope you all are holding your own. This is always a hard time of year for our family. It's when I really miss my son, who died in a car accident at 17 years of age in 1991, and we lost a grandson, born with Down Syndrome in December of 2008, and his heart malformation was so severe that he only lived a week. Sigh. Lots to be thankful for, though, but my heart just kind of hurts in the quiet moments.</p></blockquote><p></p>
[QUOTE="HMBgal, post: 488127, member: 13260"] Big days for the grand-difficult child. He had a great weekend and got to go on a boat ride. Back story: in July, we went hiking. The deal is you hike to the end of the lake, then a boat takes you back. Sounds fun, right? difficult child obsessed and was so upset that we got halfway there and had to turn around; there was no way he was going to get on that boat, so we had to hike back. We didn't make a big deal about it because we didn't want him to feel bad. Fast forward 5 months. We live near the coast and live across the Coast Highway from a small, working harbor. A boat was recently restored, a beautiful wood boat from the the 30s that holds about 18 people, and they give harbor tours (and go out into the open ocean) on weekends when the weather is nice. The harbor merchants were hosting a small ice rink (not really ice, but rather white slippery plastic stuff that looks like ice) for just this past Saturday. My daughter and the kids and my husband decided to meet up at the "rink" and have a fun outing. Well, we got there first and the "rink" was small, crowded, and I wasn't sure the kids would dig it too much. Since it was such a beautiful day, my husband and I went over to the pier to see if the Irene was giving tours, and they were. I called my daughter to see if she wanted to do the boat tour with the kids, and she jumped at the opportunity. When difficult child came walking down the pier, he looked pensive, drawn in, a little upset, and I thought "Uh oh. We not only suddenly changed plans on him, but we are asking him to do something he's really afraid of." Well, he met with Captain Pat and his wife, looked the little boat over and climbed aboard. He looked awfully worried when they started the motor, but in a quiet little voice, he said "I think I like this." Captain Pat and wife were so very kind. It was just our family on board, so both kids (difficult child's sister is 3) got to ring the boat's bell, and difficult child even got to steer the boat! And when we got out into open water, there was a pretty big swell and water splashed in. I thought he would be afraid, but not at all. We saw an otter, seals, pelicans, and this little boy had a remarkable day that wouldn't have been possible even a few weeks ago. Pure magic is what it was. He also stayed in school all day today for the first day with only one incident (he kicked the school bully at recess...I guess I should be upset, but I'm not really), the school hired a wonderful aide--a newly minted multi-subject elementary teacher that will stay his aide for this year, then will be hired as a teacher next year. He will now being going from 90 minutes a day at school to the full schedule. We are concerned that 8:30 to 2:40 two days a week are awfully long days, and the other days are until 1:10. It will the first time in the whole school year that he will be attending the entire time. Fingers firmly crossed. We went to the child psychiatrist today for his "medication check up." We discussed stuff for about an hour and the doctor says he seemed better, and he was a charmer today, and while it seems to be 2 steps forward and 1 back, it is progress, I guess. We are concerned that he's lost 3 lbs. in 3 weeks, and his blood pressure and resting heart rate are kind of high (BiPolar (BP) 133/83, and heart rate 96). Hmmmm. The doctor wasn't concerned enough to take him off Concerta, but we have to go back in two weeks to recheck because there is a level of concern there. That's all the news that's fit to print from around here. Hope you all are holding your own. This is always a hard time of year for our family. It's when I really miss my son, who died in a car accident at 17 years of age in 1991, and we lost a grandson, born with Down Syndrome in December of 2008, and his heart malformation was so severe that he only lived a week. Sigh. Lots to be thankful for, though, but my heart just kind of hurts in the quiet moments. [/QUOTE]
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