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Update on Jessie
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<blockquote data-quote="susiestar" data-source="post: 376052" data-attributes="member: 1233"><p>Marg, it would be nice to say that to him. With most docs I wouldn't hesitate. I have seen enough of this doctor to know that he will get ALL caught up in the idea that I am challenging him and he will proceed to do NOTHING for Jess. I have seen enough signs that he would just refuse to treat her if I asked questions he didn't like. Until we see a doctor who can either treat her or refer us to a different pediatrician neuro I have to be VERY VERY careful. I would not permit any other doctor to get away with this, but my back is already against the wall and Jessie is the one who will pay if keep pushing. </p><p> </p><p>Mamaof5, I will look into those. Thanks!</p><p> </p><p>JJJ - flexeril is about as effective as an M&M. We have tried quite a few others. Soma was the most helpful, but it stopped after a couple of months. Baclofen is not quite as good as soma was, but it hasn't stopped working yet. We haven't yet tried zanaflex, and other than phenobarbital or benzos (which no one will rx to her at this point), we have tried most of the available muscle relaxers. At their best they help with the pain, but they don't slow or stop the spasms.</p></blockquote><p></p>
[QUOTE="susiestar, post: 376052, member: 1233"] Marg, it would be nice to say that to him. With most docs I wouldn't hesitate. I have seen enough of this doctor to know that he will get ALL caught up in the idea that I am challenging him and he will proceed to do NOTHING for Jess. I have seen enough signs that he would just refuse to treat her if I asked questions he didn't like. Until we see a doctor who can either treat her or refer us to a different pediatrician neuro I have to be VERY VERY careful. I would not permit any other doctor to get away with this, but my back is already against the wall and Jessie is the one who will pay if keep pushing. Mamaof5, I will look into those. Thanks! JJJ - flexeril is about as effective as an M&M. We have tried quite a few others. Soma was the most helpful, but it stopped after a couple of months. Baclofen is not quite as good as soma was, but it hasn't stopped working yet. We haven't yet tried zanaflex, and other than phenobarbital or benzos (which no one will rx to her at this point), we have tried most of the available muscle relaxers. At their best they help with the pain, but they don't slow or stop the spasms. [/QUOTE]
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