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Well, it was short lived
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<blockquote data-quote="flutterbee" data-source="post: 142640"><p>We did talk about other things, but with my memory issues most of it was already fuzzy by the time I left the office. I think he was saying this is something I'm certain you do have - whether it's in addition to something else or not - and something we can start treating.</p><p></p><p>The HLA-B27 marker for Ankylosing Spondylitis would be good information to have, but it's not definitive. Nearly 90% of people with AS have that marker, but not all do. And 8% of the population have that marker, but only 1% of the population have AS. However, the hallmark of AS is pain in the lower back and sacroiliac joints which I've had since childhood. During most of my adult life it was not incapacitating, although it was always there to some degree. I just worked around it. So, I've done my research and have found studies that suggest there are other ways of trying to identify AS in those that don't have the marker and don't have any joint damage yet. He did say if that test comes back positive he's going to fight hard to get the spine MRI that the insurance company nixed. And if the test comes back negative, I'm going to ask to have these other tests run.</p><p></p><p>On the other hand, I'm not comfortable with him dismissing the positive ANA test (which indicates autoimmune) as nothing. Some people do have a positive ANA and don't have an autoimmune illness, but they typically don't have any of the symptoms either. He was talking today about the HLA-B27 marker and what it would mean if it were present and said, 'If I were a betting man....' and I meant to bring up the ANA at that point and got sidetracked and forgot. So, that will be my question at the next appointment.</p><p></p><p>I don't feel like he's dismissing me. I think he's a good doctor. And I think I'm hard to diagnosis. Plus, I just have a lot of questions. I've done my homework and probably have more test specific questions than he's used to having. But he does answer them and doesn't get annoyed at the questions like I've had some doctors do. I feel comfortable working with him - even if he gets it wrong at first. LOL Because he'll listen to me. And while trust is very hard for me, I'm going to have to trust him. I think that's the hardest part for me in this part of the process. I've so often just been dismissed. But, I really don't feel like he's doing that.</p><p></p><p>And I've already taken my lunesta and am starting to ramble. So, I'll stop now. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite1" alt=":)" title="Smile :)" loading="lazy" data-shortname=":)" /></p></blockquote><p></p>
[QUOTE="flutterbee, post: 142640"] We did talk about other things, but with my memory issues most of it was already fuzzy by the time I left the office. I think he was saying this is something I'm certain you do have - whether it's in addition to something else or not - and something we can start treating. The HLA-B27 marker for Ankylosing Spondylitis would be good information to have, but it's not definitive. Nearly 90% of people with AS have that marker, but not all do. And 8% of the population have that marker, but only 1% of the population have AS. However, the hallmark of AS is pain in the lower back and sacroiliac joints which I've had since childhood. During most of my adult life it was not incapacitating, although it was always there to some degree. I just worked around it. So, I've done my research and have found studies that suggest there are other ways of trying to identify AS in those that don't have the marker and don't have any joint damage yet. He did say if that test comes back positive he's going to fight hard to get the spine MRI that the insurance company nixed. And if the test comes back negative, I'm going to ask to have these other tests run. On the other hand, I'm not comfortable with him dismissing the positive ANA test (which indicates autoimmune) as nothing. Some people do have a positive ANA and don't have an autoimmune illness, but they typically don't have any of the symptoms either. He was talking today about the HLA-B27 marker and what it would mean if it were present and said, 'If I were a betting man....' and I meant to bring up the ANA at that point and got sidetracked and forgot. So, that will be my question at the next appointment. I don't feel like he's dismissing me. I think he's a good doctor. And I think I'm hard to diagnosis. Plus, I just have a lot of questions. I've done my homework and probably have more test specific questions than he's used to having. But he does answer them and doesn't get annoyed at the questions like I've had some doctors do. I feel comfortable working with him - even if he gets it wrong at first. LOL Because he'll listen to me. And while trust is very hard for me, I'm going to have to trust him. I think that's the hardest part for me in this part of the process. I've so often just been dismissed. But, I really don't feel like he's doing that. And I've already taken my lunesta and am starting to ramble. So, I'll stop now. :) [/QUOTE]
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