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went to neurologist...... got my diagnosis
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<blockquote data-quote="Mattsmom277" data-source="post: 425963" data-attributes="member: 4264"><p>Funny thing with lesions. Some people with MS have tons of lesions with next to no symptoms or even no symptoms at all. Others can have very few lesions and have very advanced more debilitating symptoms. So lesions can help plot plans of actions but in and of themselves aren't a great method to dictate in and of themselves what damage may or may not be going on. Also to blurry the picture further, in earlier years with MS, many patients actually have lesions heal and sometimes therefore are never seen by the time one gets a MRI. It's a tool in a neuro's arsenal, but the best indicator of disease progression is always physical demonstrations of symptoms. There are several injectable medications on the market which it is likely your doctor will discuss with you to find one that would benefit you best. They will help you learn how to do the injections yourself. There is a slew of other medications that can help with various symptoms, some more effective than others, and like we have learned with our difficult child's over the years, what works for one won't for another and vice versa. These are reasons I feel happy to hear you have a neuro you are comfortable with, he will be your best source of guidance for what is right for you. </p><p></p><p>Personally I did a no no a couple of years back and just threw the towel in (temporarily) with doctors. Nearest neuro is near to 2 hours away, I don't drive, no family doctor local to me to oversee new medications and possible side effects. Not to mention it is a pain to get coverage here in Canada for the injectable medications costs. I do have some trusted go to medications I can get at the walk in for some symptoms. I don't recommend at ALL doing what I did. I just had gone through all kinds of docs to try to get answers, for years. Been through cervical cancer treatment. Was up to it with Matt and other family things. I couldn't cope at the time with the whole doctor thing. As things in my life get calmer, I know I have to just get to it and get back in to the neuro and stick to a regiment. It really is important.</p><p></p><p>I will say that 3 years ago? I spent more time in the ER than out of it. Had so many things going on that at one point I was on over 14 pills a day for one symptom or another. Spent most days in bed, had to have S/O help me with movement etc for a period of time. Oddly enough, although I have symptoms that remain with me pretty constantly now and I have adjusted activities, have to pace myself etc, I haven't had a period like that horrible time, since. So that is good news! Even when I was at my lowest, I held out it wouldn't stay like that. And it didn't. I bounced back and I am far from a picture of health but I feel so good in some senses compared to what I imagined when I first was diagnosis. </p><p></p><p>easy child's best friends mother also is my age and has MS. She is thriving. She works ironically as a nurse at our local hospital along with my second cousin who is also my age and also has MS. Both ladies are doing great, are active, have learned to manage their forms of symptoms and truly are doing fantastic.</p><p></p><p>Having this diagnosis'ed now for you and having a good doctor on board will mean all the difference to keeping you in good health. If you ever have questions or need a ear, feel free to PM. Meanwhile, I again must say I'm loving your attitude about it all. Try to remember though to not beat yourself up about it if emotions do kick in. You are right, this isn't cancer etc. It is however something that will be with you from here on out and is a unknown factor going forward, so it is only natural you will have moments of time where it isn't a brave face you are showing. It is okay when that happens.</p></blockquote><p></p>
[QUOTE="Mattsmom277, post: 425963, member: 4264"] Funny thing with lesions. Some people with MS have tons of lesions with next to no symptoms or even no symptoms at all. Others can have very few lesions and have very advanced more debilitating symptoms. So lesions can help plot plans of actions but in and of themselves aren't a great method to dictate in and of themselves what damage may or may not be going on. Also to blurry the picture further, in earlier years with MS, many patients actually have lesions heal and sometimes therefore are never seen by the time one gets a MRI. It's a tool in a neuro's arsenal, but the best indicator of disease progression is always physical demonstrations of symptoms. There are several injectable medications on the market which it is likely your doctor will discuss with you to find one that would benefit you best. They will help you learn how to do the injections yourself. There is a slew of other medications that can help with various symptoms, some more effective than others, and like we have learned with our difficult child's over the years, what works for one won't for another and vice versa. These are reasons I feel happy to hear you have a neuro you are comfortable with, he will be your best source of guidance for what is right for you. Personally I did a no no a couple of years back and just threw the towel in (temporarily) with doctors. Nearest neuro is near to 2 hours away, I don't drive, no family doctor local to me to oversee new medications and possible side effects. Not to mention it is a pain to get coverage here in Canada for the injectable medications costs. I do have some trusted go to medications I can get at the walk in for some symptoms. I don't recommend at ALL doing what I did. I just had gone through all kinds of docs to try to get answers, for years. Been through cervical cancer treatment. Was up to it with Matt and other family things. I couldn't cope at the time with the whole doctor thing. As things in my life get calmer, I know I have to just get to it and get back in to the neuro and stick to a regiment. It really is important. I will say that 3 years ago? I spent more time in the ER than out of it. Had so many things going on that at one point I was on over 14 pills a day for one symptom or another. Spent most days in bed, had to have S/O help me with movement etc for a period of time. Oddly enough, although I have symptoms that remain with me pretty constantly now and I have adjusted activities, have to pace myself etc, I haven't had a period like that horrible time, since. So that is good news! Even when I was at my lowest, I held out it wouldn't stay like that. And it didn't. I bounced back and I am far from a picture of health but I feel so good in some senses compared to what I imagined when I first was diagnosis. easy child's best friends mother also is my age and has MS. She is thriving. She works ironically as a nurse at our local hospital along with my second cousin who is also my age and also has MS. Both ladies are doing great, are active, have learned to manage their forms of symptoms and truly are doing fantastic. Having this diagnosis'ed now for you and having a good doctor on board will mean all the difference to keeping you in good health. If you ever have questions or need a ear, feel free to PM. Meanwhile, I again must say I'm loving your attitude about it all. Try to remember though to not beat yourself up about it if emotions do kick in. You are right, this isn't cancer etc. It is however something that will be with you from here on out and is a unknown factor going forward, so it is only natural you will have moments of time where it isn't a brave face you are showing. It is okay when that happens. [/QUOTE]
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went to neurologist...... got my diagnosis
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