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When doctors don't listen to patients (inspired by MM's thread)
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<blockquote data-quote="susiestar" data-source="post: 550156" data-attributes="member: 1233"><p>MWM, I have a LOT of stories about docs/tdocs/psychiatrists who simply refuse to listen or admit that what they have done is the cause of the problem. </p><p></p><p>When I was in my teens I began to have a lot of muscle and joint pain and muscle spasms so bad I couldn't move. It was clear that something was really wrong. My mom developed heatlh issues at the same time. We found a specialist who treated us both and for a while we really trusted him. After a bunch of tests this dr told us that I had ankylosing spondylitis and he proved this by showing test results that said I had the gene linked to that disease and xrays showing that I had square vertebrae - not the normal shape. MY name was on those xrays.</p><p></p><p>This doctor had me on medications that we later learned would have been serious over-prescribing for a 350 lb male and I was an 80 lb female during puberty. Mom was told to take aspirin until her ears rang - his exact words!!! When I went to college the health ctr doctor was HORRIFIED by the medications I was on and the levels of them (super high levels of steroids, NSAIDS, and a lot of other things). I was sent to a pediatrician endocrinologist because I was so small and no matter what could not gain weight. </p><p>when the docs at college tried to get the xrays and lab tests from the doctor back home they couldn't get them. Lots of reasons were given, many in person to my mother (still his patient), but those xrays were NEVER sent to my new docs. Xrays taken again showed normal vertebrae, NOT squared ones. I know, for a complete certainty, that MY name was on those xrays but they could NOT have been mine.</p><p></p><p>I have had ulcers and many many other problems from the medications I was on all during puberty. My mother had to have part of her stomach removed due to the amt of aspirin and other harsh medications he put her on. he NEVER treated her stomach problems or acted like they were a problem though she complained at EVERY appointment about her stomach hurting and other classic signs of ulcers. The doctor had posters in his exam rooms saying to talk to your doctor if you have various stomach problems - but he never did ANYTHING when you told him.</p><p></p><p>That was the FIRST time I had docs refuse to listen, and the first time that records disappeared or were altered to CYA the doctor. </p><p></p><p>I have had at least ten psychiatrists tell us Wiz was bipolar but NONE would even discuss the treatment plan that has the patient on mood stabs and maybe an antipsychotic until they are stable and then treats the other symptoms if they are still there once moods are stable. All I had to do to get the bipolar diagnosis removed was to INSIST that they follow that protocol. They didn't want to take him off the antidepressants and stimulant medications even though they would make him cycle if he was bipolar. </p><p></p><p>With Jess we have docs insisting that since the EEG shows no seizures then it is impossible for her to have them. One neuro has written papers and journal articles about how eegs do NOT catch most seizures and patient history and parent's reports are the best ways to diagnosis many seizures. I took HIS article to an appointment and asked if this was the case then why didn't he believe that seh was having seizures given the things that sound a whole lot like them? He never did answer and refused to make any appts for us after that. </p><p></p><p>J is caught in a no-win situation. the neurologist and neuropsychologist say that she has conversion disorder (brain doing this due to psychological problems) but four tdocs and 2 psychiatrists say that it is NOT that, that the problems are medical and not due to conversion. So NONE of the docs/tdocs/psychiatrists will treat the problems because they ALL say it isn't due to their area of expertise. I find it crazy and ridiculous. </p><p></p><p>Even more annoying, in my opinion, are the docs who diagnosis every patient they see with the same thing regardless of symptoms. I had one doctor as a teen who diagnosis'd over 3 dozen kids in my jr high with mono. Some had the flu, some had other problems, I had chicken pox and was totally covered in them three hours after he diagnosis'd me. I think a great many psychiatrists and tdocs have some disorder they prefer to treat or they specialize in and they diagnosis the majority of their patients iwth that diagnosis regardless of the entire set of symptoms. I don't know how to fix it, but I DO know it happens.</p></blockquote><p></p>
[QUOTE="susiestar, post: 550156, member: 1233"] MWM, I have a LOT of stories about docs/tdocs/psychiatrists who simply refuse to listen or admit that what they have done is the cause of the problem. When I was in my teens I began to have a lot of muscle and joint pain and muscle spasms so bad I couldn't move. It was clear that something was really wrong. My mom developed heatlh issues at the same time. We found a specialist who treated us both and for a while we really trusted him. After a bunch of tests this dr told us that I had ankylosing spondylitis and he proved this by showing test results that said I had the gene linked to that disease and xrays showing that I had square vertebrae - not the normal shape. MY name was on those xrays. This doctor had me on medications that we later learned would have been serious over-prescribing for a 350 lb male and I was an 80 lb female during puberty. Mom was told to take aspirin until her ears rang - his exact words!!! When I went to college the health ctr doctor was HORRIFIED by the medications I was on and the levels of them (super high levels of steroids, NSAIDS, and a lot of other things). I was sent to a pediatrician endocrinologist because I was so small and no matter what could not gain weight. when the docs at college tried to get the xrays and lab tests from the doctor back home they couldn't get them. Lots of reasons were given, many in person to my mother (still his patient), but those xrays were NEVER sent to my new docs. Xrays taken again showed normal vertebrae, NOT squared ones. I know, for a complete certainty, that MY name was on those xrays but they could NOT have been mine. I have had ulcers and many many other problems from the medications I was on all during puberty. My mother had to have part of her stomach removed due to the amt of aspirin and other harsh medications he put her on. he NEVER treated her stomach problems or acted like they were a problem though she complained at EVERY appointment about her stomach hurting and other classic signs of ulcers. The doctor had posters in his exam rooms saying to talk to your doctor if you have various stomach problems - but he never did ANYTHING when you told him. That was the FIRST time I had docs refuse to listen, and the first time that records disappeared or were altered to CYA the doctor. I have had at least ten psychiatrists tell us Wiz was bipolar but NONE would even discuss the treatment plan that has the patient on mood stabs and maybe an antipsychotic until they are stable and then treats the other symptoms if they are still there once moods are stable. All I had to do to get the bipolar diagnosis removed was to INSIST that they follow that protocol. They didn't want to take him off the antidepressants and stimulant medications even though they would make him cycle if he was bipolar. With Jess we have docs insisting that since the EEG shows no seizures then it is impossible for her to have them. One neuro has written papers and journal articles about how eegs do NOT catch most seizures and patient history and parent's reports are the best ways to diagnosis many seizures. I took HIS article to an appointment and asked if this was the case then why didn't he believe that seh was having seizures given the things that sound a whole lot like them? He never did answer and refused to make any appts for us after that. J is caught in a no-win situation. the neurologist and neuropsychologist say that she has conversion disorder (brain doing this due to psychological problems) but four tdocs and 2 psychiatrists say that it is NOT that, that the problems are medical and not due to conversion. So NONE of the docs/tdocs/psychiatrists will treat the problems because they ALL say it isn't due to their area of expertise. I find it crazy and ridiculous. Even more annoying, in my opinion, are the docs who diagnosis every patient they see with the same thing regardless of symptoms. I had one doctor as a teen who diagnosis'd over 3 dozen kids in my jr high with mono. Some had the flu, some had other problems, I had chicken pox and was totally covered in them three hours after he diagnosis'd me. I think a great many psychiatrists and tdocs have some disorder they prefer to treat or they specialize in and they diagnosis the majority of their patients iwth that diagnosis regardless of the entire set of symptoms. I don't know how to fix it, but I DO know it happens. [/QUOTE]
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