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The Watercooler
When doctors don't listen to patients (inspired by MM's thread)
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<blockquote data-quote="AnnieO" data-source="post: 550166" data-attributes="member: 6705"><p>I have lots of little things... The kids, not me. My GP is an absolute gem, I don't know how I lucked out with him, but he listens.</p><p></p><p>The kids. Whew. Let's see. One had Onyxx on Seroquel, Zoloft and Wellbutrin at the same time, with Benadryl for sleep. Well, the Seroquel website (at that time) said NOT to EVER Rx it and Zoloft together... And what was with the Zoloft AND Wellbutrin... And Benadryl activates her - bouncing off the walls type activation, plus hallucinations. Her old pediatrician put her on 2500mg naproxen a day - not PRN - for headaches. Didn't agree that her sleep cycle might have to do with it. Said on the days they got really bad to add up to 1000mg ibuprofen or 1500mg acetominophen. Then the recent one who kept upping her dose of Seroquel for SLEEP purposes. (3mg Invega works better in my opinion than the 400mg Seroquel... But what would <em><strong>I</strong></em> know?)</p><p></p><p>Jett... Same old pediatrician put him on 9mg Concerta for ADHD. The questionnaires we filled out, and the teacher's, matched - bio's were the odd one out, looked like the poster child. That turned him into a brat, so then it was 18mg, then 27mg, then 54mg - he just got worse and worse, and when he crashed he urinated all over everything because he could not wake up. New pediatrician helped us wean him off, and he is MUCH better without. Mild ADHD sure, but Concerta wasn't it for him. And then there was the neuropsychologist who diagnosis'd him with "severe Fetal Alcohol Syndrome (FAS)". Again, mild, perhaps. But, <em>all</em> of the facial indicators that Jett displays and they noted... Could also be due to his being 1/3 Asian. He does have memory issues, but "severe Fetal Alcohol Syndrome (FAS)" - not from everything I've read. Most everyone who has met him, who has Autism Spectrum Disorders (ASD) kids thinks he is on the spectrum... We <em>did</em> get a Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis at least. But we are also told he is NOT dyslexic, and, well, yes, he is. One, runs in the family, and two, they are basing it on words he has sight-memorized - not new words.</p><p></p><p>husband's docs at the VA are about useless. He has issues with his left shoulder and neck, plus testicular neuroma - one of the docs told him there was no such thing as testicular neuroma. Well, if there are nerves, neuroma's a possibility... Ugh. So they put him on lots of medications which tear up his gut, but they can't find anything wrong with his stomach. Umm.</p></blockquote><p></p>
[QUOTE="AnnieO, post: 550166, member: 6705"] I have lots of little things... The kids, not me. My GP is an absolute gem, I don't know how I lucked out with him, but he listens. The kids. Whew. Let's see. One had Onyxx on Seroquel, Zoloft and Wellbutrin at the same time, with Benadryl for sleep. Well, the Seroquel website (at that time) said NOT to EVER Rx it and Zoloft together... And what was with the Zoloft AND Wellbutrin... And Benadryl activates her - bouncing off the walls type activation, plus hallucinations. Her old pediatrician put her on 2500mg naproxen a day - not PRN - for headaches. Didn't agree that her sleep cycle might have to do with it. Said on the days they got really bad to add up to 1000mg ibuprofen or 1500mg acetominophen. Then the recent one who kept upping her dose of Seroquel for SLEEP purposes. (3mg Invega works better in my opinion than the 400mg Seroquel... But what would [I][B]I[/B][/I] know?) Jett... Same old pediatrician put him on 9mg Concerta for ADHD. The questionnaires we filled out, and the teacher's, matched - bio's were the odd one out, looked like the poster child. That turned him into a brat, so then it was 18mg, then 27mg, then 54mg - he just got worse and worse, and when he crashed he urinated all over everything because he could not wake up. New pediatrician helped us wean him off, and he is MUCH better without. Mild ADHD sure, but Concerta wasn't it for him. And then there was the neuropsychologist who diagnosis'd him with "severe Fetal Alcohol Syndrome (FAS)". Again, mild, perhaps. But, [I]all[/I] of the facial indicators that Jett displays and they noted... Could also be due to his being 1/3 Asian. He does have memory issues, but "severe Fetal Alcohol Syndrome (FAS)" - not from everything I've read. Most everyone who has met him, who has Autism Spectrum Disorders (ASD) kids thinks he is on the spectrum... We [I]did[/I] get a Pervasive Developmental Disorder (PDD)-not otherwise specified diagnosis at least. But we are also told he is NOT dyslexic, and, well, yes, he is. One, runs in the family, and two, they are basing it on words he has sight-memorized - not new words. husband's docs at the VA are about useless. He has issues with his left shoulder and neck, plus testicular neuroma - one of the docs told him there was no such thing as testicular neuroma. Well, if there are nerves, neuroma's a possibility... Ugh. So they put him on lots of medications which tear up his gut, but they can't find anything wrong with his stomach. Umm. [/QUOTE]
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