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When we're gone what happens to our ...
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<blockquote data-quote="Tired out" data-source="post: 741224" data-attributes="member: 23103"><p>SWOT, Give up on my "disabled" son?? I don't know how you could possibly interpret that out of my post. I won't even give up on my younger difficult pita son. </p><p>Anyone who had dealt with aides or agency's know that is a joke (at least in our state). There is a huge shortage of aides. We haven't had an aide since October. There are 3 agencies here and they can't get aides. People aren't going to work for 10/hr when McDonalds is paying 14. Now aides I HAVE given up on. Thanks to an aide he had summer 2017 he had a shearing wound, basically the aide pulled him back in hi commode chair , rather than lifting him an inch to reposition him and she cause a shearing wound on his upper thigh (remember he only weighs 80 lbs, not much to reposition), thanks to another aide we got bed bugs (may have brought them from another client, like the other one that brought fleas!!) . </p><p>As for group homes..I've gone, I've seen, my skin has crawled and I left. </p><p>I "retired" the year after he was born, it became apparent very quickly that appropriate daycare wasn't available. I am with him at home. When he is at work (shop) ( 3-5 hours/week) there are people who look out for him and attend to his needs. They are a terrific team. There are a couple of other guys there that are somewhat similar to him cognitively BUT physically they had muscular dystrophy and their bodies are deteriorating. both are now physically in worse shape than my son. </p><p>Working from home.. Yes he has all the tools here, Macbook Pro 32" screen, wacom tablet, Adobe suite. he sells some on Amazon. </p><p>He is a fabulous human. </p><p></p><p> I read something on here about..If I won the lottery..</p><p>If we won the lottery we would start a residence for differently abled adults. Just for 4 adults. I have a complete plan in mind BUT it takes money.</p></blockquote><p></p>
[QUOTE="Tired out, post: 741224, member: 23103"] SWOT, Give up on my "disabled" son?? I don't know how you could possibly interpret that out of my post. I won't even give up on my younger difficult pita son. Anyone who had dealt with aides or agency's know that is a joke (at least in our state). There is a huge shortage of aides. We haven't had an aide since October. There are 3 agencies here and they can't get aides. People aren't going to work for 10/hr when McDonalds is paying 14. Now aides I HAVE given up on. Thanks to an aide he had summer 2017 he had a shearing wound, basically the aide pulled him back in hi commode chair , rather than lifting him an inch to reposition him and she cause a shearing wound on his upper thigh (remember he only weighs 80 lbs, not much to reposition), thanks to another aide we got bed bugs (may have brought them from another client, like the other one that brought fleas!!) . As for group homes..I've gone, I've seen, my skin has crawled and I left. I "retired" the year after he was born, it became apparent very quickly that appropriate daycare wasn't available. I am with him at home. When he is at work (shop) ( 3-5 hours/week) there are people who look out for him and attend to his needs. They are a terrific team. There are a couple of other guys there that are somewhat similar to him cognitively BUT physically they had muscular dystrophy and their bodies are deteriorating. both are now physically in worse shape than my son. Working from home.. Yes he has all the tools here, Macbook Pro 32" screen, wacom tablet, Adobe suite. he sells some on Amazon. He is a fabulous human. I read something on here about..If I won the lottery.. If we won the lottery we would start a residence for differently abled adults. Just for 4 adults. I have a complete plan in mind BUT it takes money. [/QUOTE]
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