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When your parent is a 'difficult child' ?
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<blockquote data-quote="Marguerite" data-source="post: 80300" data-attributes="member: 1991"><p>Thanks, BBK. You're a good egg. I was just musing - so many doctors and 'experts' misunderstand this issue, it's no wonder there is such confusion and distress over it. Like the drug clinic I rang; and my lovely but outspoken specialist.</p><p></p><p>Maybe the difference is - if you can stick it out and re-educate the person with the concern (as I did with my specialist, with the help of the pain expert) then it has been done with continuity of care. But when a person simply avoids the issue and runs elsewhere, that's when misinformation and miscommunication can cause problems to escalate. And sometimes those are the problems that can lead to reduced vigilance in the members of the medical profession who lost need to keep an eye on the patient. Where the patient has long-term history with a doctor, then that doctor gets to see the pattern of their medication usage. But where a system allows a patient to 'shop around" (which I don't think is possible in this case, but it's worth checking as a hypothetical - ask your own GP about how the prescribing system works in this case) then it's easier for a patient to mismanage their own condition.</p><p></p><p>With FM, gentle exercise within the patient's limitations are what is needed. Those limitations can vary - sometimes all they can manage is a walk to the letterbox. Where the patient can rest too much, they can deteriorate (independent of ay medication issues) simply because they CAN rest, so they DO. I've seen this happen more with men who have wives to run round after them; when you're a mother of young kids you don't have that luxury, so I think it's been my kids who have kept me as fit (coff coff) as I am.</p><p></p><p>Your mother should have more than just a pain specialist - she needs another specialist - neurologist or immunologist - to oversee the FM. And a reputable one would be trying to coax her to exercise, even if it's nothing more than simple stretches (which we should all be able to do, even a little). Stretches are good - they do make it easier for you to move, and overcomes the inertia that is common in FM, that sense of, "If I don't move, it won't hurt so much."</p><p></p><p>Here's hoping you can sort out the problem here and help her.</p><p></p><p>Marg</p></blockquote><p></p>
[QUOTE="Marguerite, post: 80300, member: 1991"] Thanks, BBK. You're a good egg. I was just musing - so many doctors and 'experts' misunderstand this issue, it's no wonder there is such confusion and distress over it. Like the drug clinic I rang; and my lovely but outspoken specialist. Maybe the difference is - if you can stick it out and re-educate the person with the concern (as I did with my specialist, with the help of the pain expert) then it has been done with continuity of care. But when a person simply avoids the issue and runs elsewhere, that's when misinformation and miscommunication can cause problems to escalate. And sometimes those are the problems that can lead to reduced vigilance in the members of the medical profession who lost need to keep an eye on the patient. Where the patient has long-term history with a doctor, then that doctor gets to see the pattern of their medication usage. But where a system allows a patient to 'shop around" (which I don't think is possible in this case, but it's worth checking as a hypothetical - ask your own GP about how the prescribing system works in this case) then it's easier for a patient to mismanage their own condition. With FM, gentle exercise within the patient's limitations are what is needed. Those limitations can vary - sometimes all they can manage is a walk to the letterbox. Where the patient can rest too much, they can deteriorate (independent of ay medication issues) simply because they CAN rest, so they DO. I've seen this happen more with men who have wives to run round after them; when you're a mother of young kids you don't have that luxury, so I think it's been my kids who have kept me as fit (coff coff) as I am. Your mother should have more than just a pain specialist - she needs another specialist - neurologist or immunologist - to oversee the FM. And a reputable one would be trying to coax her to exercise, even if it's nothing more than simple stretches (which we should all be able to do, even a little). Stretches are good - they do make it easier for you to move, and overcomes the inertia that is common in FM, that sense of, "If I don't move, it won't hurt so much." Here's hoping you can sort out the problem here and help her. Marg [/QUOTE]
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When your parent is a 'difficult child' ?
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