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Why being a "bad" patient is a "good" thing
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<blockquote data-quote="flutterbee" data-source="post: 203165"><p>Being a "good" patient is what led to me NOT being diagnosis'd for so long. I am no longer a "good" patient. I'm not a difficult patient, but I am informed. In the hospital, I take nothing without knowing what it is. With my doctor, I take nothing without knowing the side effect profile, the efficacy, and determining in my own mind, as I know my body better than anyone else, if the cost/benefit ratio is acceptable to ME. I am fully informed and discuss alternatives with her, whether it be another medication or a non-medication treatment. Being a "bad" patient is what leads me to trust my gut and 'know' what I have going on (99.9% sure I have one of the spondy's and about 90% sure I have Cushing's) when the blood work (for the rheumatic stuff) comes back normal. Every piece of literature out there says you can not diagnosis based solely on bloodwork, but that's what docs want to do. When you have symptoms that you can see and feel and touch, it's time to get past the bloodwork. And that's what keeps me looking for answers instead of giving up. Everyone does not fit into the little box the medical community likes to create. I'm fortunate to have the doctor that I do. But, I have her because I kept looking until I found one that wasn't going to dismiss me.</p><p></p><p>If you have a doctor that doesn't tolerate "bad" patients, then it's time to find another doctor.</p><p></p><p>And all of my experiences is what has created a passion to go into patient advocacy/education when I get better. <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite2" alt=";)" title="Wink ;)" loading="lazy" data-shortname=";)" /></p></blockquote><p></p>
[QUOTE="flutterbee, post: 203165"] Being a "good" patient is what led to me NOT being diagnosis'd for so long. I am no longer a "good" patient. I'm not a difficult patient, but I am informed. In the hospital, I take nothing without knowing what it is. With my doctor, I take nothing without knowing the side effect profile, the efficacy, and determining in my own mind, as I know my body better than anyone else, if the cost/benefit ratio is acceptable to ME. I am fully informed and discuss alternatives with her, whether it be another medication or a non-medication treatment. Being a "bad" patient is what leads me to trust my gut and 'know' what I have going on (99.9% sure I have one of the spondy's and about 90% sure I have Cushing's) when the blood work (for the rheumatic stuff) comes back normal. Every piece of literature out there says you can not diagnosis based solely on bloodwork, but that's what docs want to do. When you have symptoms that you can see and feel and touch, it's time to get past the bloodwork. And that's what keeps me looking for answers instead of giving up. Everyone does not fit into the little box the medical community likes to create. I'm fortunate to have the doctor that I do. But, I have her because I kept looking until I found one that wasn't going to dismiss me. If you have a doctor that doesn't tolerate "bad" patients, then it's time to find another doctor. And all of my experiences is what has created a passion to go into patient advocacy/education when I get better. :winking: [/QUOTE]
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