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Why do you think treatment thus far hasn't worked?
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<blockquote data-quote="timer lady" data-source="post: 131417" data-attributes="member: 393"><p><strong>Sue,</strong></p><p><strong></strong></p><p><strong>You - struck dumb by a question? Put to you by a team member? Or just a stranger wandering by & curious? Give us the facts, ma'am. </strong><strong><img src="/community/styles/default/xenforo/smilies/emoticons/stopglass.gif" class="smilie" loading="lazy" alt=":stopglass:" title="stopglass :stopglass:" data-shortname=":stopglass:" /></strong></p><p><strong></strong></p><p><strong>I spent some time pondering this last night. In our case, I really believe it was a combination.</strong></p><p><strong></strong></p><p><strong>First of all husband & I could not believe these 2 beautiful young children that we were blessed to have placed in our home; these 2 children that allowed us to be parents could/would be so very ill. </strong></p><p><strong></strong></p><p><strong>After 2 years of evaluations, medications, & such - it was so difficult to accept. I believe that in a subconscious way I was out to prove all the experts wrong & that a strong loving mother could "fix" what ailed my children.</strong></p><p><strong></strong></p><p><strong>Only when I came to acceptance of the level of severity the tweedles suffered did the true therapies & treatments start. Did that delay hinder or make matters worse? I'm sure to some extent it did. </strong></p><p><strong></strong></p><p><strong>However, we are dealing with some pretty significant trauma suffered before 3 years of age; brain wrinkles, my friends. </strong></p><p><strong></strong></p><p><strong>For kt, we are seeing some of the treatment working. She is grasping on to some of the life skills, learning empathy (to a degree) & beginning to be able to "stop & think". This is huge. She's 13 & still needs round the clock supervision - however there are days that she can spend in her room & she comes to check in with me. You can time it by the shows she watches; more the tv she has on for the noise - every half hour.</strong></p><p><strong></strong></p><p><strong>wm, on the other hand, seems determined not to learn the from the many interventions in place. psychiatrist believes there is some organic brain damage somewhere though it's yet to be proved by MRI. And having said that, he can do what's asked of him - an adult needs to be standing over his shoulder. He, again, needs 24/7 supervision. </strong></p><p><strong></strong></p><p><strong>Medications for the tweedles are as good as it gets. It's the traumas that have to be addressed. And it's the traumas that are pretty much guided by kt & wm. What they will address or not. Some of it's very ugly - I wouldn't want to "remember" or suffer through it again. kt & wm have shared with me either through talk or their actions what they have endured. Nope, I wouldn't want to willingly relive that type of thing again. And that is what will hold them back.</strong></p><p><strong></strong></p><p><strong>I believe kt is doing well because wm isn't living here. I believe wm is sinking his own ship because he believes he should live here; he's the "poor orphan" of the family & is playing that role to the hilt. The rest of us are invested in the "family of different addresses" - even the SWs, tdocs & psychiatrist. It's taken a lot to get all these people to believe in this concept. </strong></p><p><strong></strong></p><p><strong>It will take more to get wm to believe it. I could be out to group home every day & it wouldn't be enough. He has to be home. That has proven to be very unhealthy to the entire family. </strong></p><p><strong></strong></p><p><strong>Just a few thoughts. We still have some time - I'm hoping that treatment can work for the tweedles. I'm praying that they will use every intervention I have found & put in place for them to their highest level - not throw it away. </strong></p><p><strong></strong></p><p><strong>I've thrown away the guilt myself. This "family of different addresses" is something I came up with - sometimes in my mind it's a load of cr@p. We all belong under one roof - that's how family is supposed to be. It's how I was raised - we all stick together no matter what. However, I wasn't raised in that level of chaos & physical aggression.</strong></p><p><strong></strong></p><p><strong>And it isn't the reality with the tweedles. So we go on as we are doing.</strong></p><p><strong></strong></p></blockquote><p></p>
[QUOTE="timer lady, post: 131417, member: 393"] [B]Sue, You - struck dumb by a question? Put to you by a team member? Or just a stranger wandering by & curious? Give us the facts, ma'am. [/B][B]:stopglass: I spent some time pondering this last night. In our case, I really believe it was a combination. First of all husband & I could not believe these 2 beautiful young children that we were blessed to have placed in our home; these 2 children that allowed us to be parents could/would be so very ill. After 2 years of evaluations, medications, & such - it was so difficult to accept. I believe that in a subconscious way I was out to prove all the experts wrong & that a strong loving mother could "fix" what ailed my children. Only when I came to acceptance of the level of severity the tweedles suffered did the true therapies & treatments start. Did that delay hinder or make matters worse? I'm sure to some extent it did. However, we are dealing with some pretty significant trauma suffered before 3 years of age; brain wrinkles, my friends. For kt, we are seeing some of the treatment working. She is grasping on to some of the life skills, learning empathy (to a degree) & beginning to be able to "stop & think". This is huge. She's 13 & still needs round the clock supervision - however there are days that she can spend in her room & she comes to check in with me. You can time it by the shows she watches; more the tv she has on for the noise - every half hour. wm, on the other hand, seems determined not to learn the from the many interventions in place. psychiatrist believes there is some organic brain damage somewhere though it's yet to be proved by MRI. And having said that, he can do what's asked of him - an adult needs to be standing over his shoulder. He, again, needs 24/7 supervision. Medications for the tweedles are as good as it gets. It's the traumas that have to be addressed. And it's the traumas that are pretty much guided by kt & wm. What they will address or not. Some of it's very ugly - I wouldn't want to "remember" or suffer through it again. kt & wm have shared with me either through talk or their actions what they have endured. Nope, I wouldn't want to willingly relive that type of thing again. And that is what will hold them back. I believe kt is doing well because wm isn't living here. I believe wm is sinking his own ship because he believes he should live here; he's the "poor orphan" of the family & is playing that role to the hilt. The rest of us are invested in the "family of different addresses" - even the SWs, tdocs & psychiatrist. It's taken a lot to get all these people to believe in this concept. It will take more to get wm to believe it. I could be out to group home every day & it wouldn't be enough. He has to be home. That has proven to be very unhealthy to the entire family. Just a few thoughts. We still have some time - I'm hoping that treatment can work for the tweedles. I'm praying that they will use every intervention I have found & put in place for them to their highest level - not throw it away. I've thrown away the guilt myself. This "family of different addresses" is something I came up with - sometimes in my mind it's a load of cr@p. We all belong under one roof - that's how family is supposed to be. It's how I was raised - we all stick together no matter what. However, I wasn't raised in that level of chaos & physical aggression. And it isn't the reality with the tweedles. So we go on as we are doing. [/B] [/QUOTE]
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