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General Parenting
william syndrome/genetic testing
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<blockquote data-quote="TheBoyHasArrived" data-source="post: 560483" data-attributes="member: 14829"><p>We were referred to genetics because The Boy's psychiatrist was concerned about WS versus Autism Spectrum Disorders (ASD). If I hadn't been so panicked, I would have realized that The Boy has almost no typical symptoms of WS that weren't also common in many other disorders...he just didn't fit in any other box and has some atypical facial features. In the US, the genetic testing was fast, but very expensive and not covered by insurance....and completely pointless. In retrospect, we should not have pursued the testing for my kiddo. Especially since the common health concerns with WS are applicable to kids who have obvious medical needs. But, I understand NEEDING to rule out WS just so you can move on...I'm not sure I would have been able to relax if we hadn't done the testing.</p></blockquote><p></p>
[QUOTE="TheBoyHasArrived, post: 560483, member: 14829"] We were referred to genetics because The Boy's psychiatrist was concerned about WS versus Autism Spectrum Disorders (ASD). If I hadn't been so panicked, I would have realized that The Boy has almost no typical symptoms of WS that weren't also common in many other disorders...he just didn't fit in any other box and has some atypical facial features. In the US, the genetic testing was fast, but very expensive and not covered by insurance....and completely pointless. In retrospect, we should not have pursued the testing for my kiddo. Especially since the common health concerns with WS are applicable to kids who have obvious medical needs. But, I understand NEEDING to rule out WS just so you can move on...I'm not sure I would have been able to relax if we hadn't done the testing. [/QUOTE]
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