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<blockquote data-quote="buddy" data-source="post: 474827" data-attributes="member: 12886"><p>liahona, I like that answer....I have used it a couple of times by accident but you brought it to the forefront so i am going to actually purposely try to word it like that. Thanks</p><p></p><p>Steely, it is great to know. so after it was up to a good blood level how long after that did you see it change behavior/mood or did it help as soon as it was at the right level for him? they took the first draw this morning so we will see.</p><p></p><p>Hounddog it is really validating to hear other families who get it .... I just dont think holidays are a time to punish them for not really having the skills to deal with that level of stress and change in routine so I do the same, just push thru and I use what works, prepping ahead for him etc. </p><p></p><p>As far as no medications? We have had several medication errors or times when insurance goofed and we had no medications for a day or two to kind of test the theory for each one...and I realize it is not the same as it really being out of their system...but even before the Concerta, (and we did try others before settling on concerta) there was not ONE minute of his cooperating in school. jsut running around in the back of the room. At home he was aggressive the first day he was home. In fact in the hotel the first night I had him we were swimming and he bit my shoulder. His fmom had told me she used to tell him to get a slipper and she would whack his hands when he pinched and scratched her. (nice huh?) The very first day on ritalin I got a call from ecse and I thought oh god...he threw another block at a kid and kid is in hospital...nope. difficult child sat in circle and listened to the story! Truly a different child and we could go for walks outside, he could try to ride a bike, he started to learn to talk, etc. Really beyond the improvement you see in adhd kids (I'm sure you know the difference, smile). the only neg. was it was not as easy for him to have fun..just didn't seem as happy. He was never really a silly fun kind of kid but it was a change. medication error days always confirm that he needs the medications because something serious always happens. this is true since he was five years old. days I forgot to give him medications... now we are SO routine bound that doesn't happen at home but school forgot second dose once and evening with an Integrated Listening Systems (ILS) worker...I get a call that the teen center is kicking him out and they want to call police...then school nurse calls and says she jsut got a flash that she forgot his medications (we had dr. appointment and screwed up the schedule). So, I definately think he could be a notch down if off the concerta...but I dont think the aggression would go away. He was on clonidine for aggression long before the Concerta started. He was on phenobarbitol then several others...tegretol, depakote, keppra for seizures. after he didn't have seizures for several years we stopped seizure medications. but then the "fake" feelings started. they thought it was anxiety...so tried different medications...put him on prozac. I do think that one can stop. It was not from anxiety and I dont think prozac helped with the anxiety at all. But he changed how he related to me...he became cuddly and smiled more and it was just different. So we kept it. Lyrica was given to help the seizures that he "fake" ended up being.</p><p></p><p>Problem now he is at such high doses of Concerta and Clonidine (though how much is metabolized is a big question so probably not as dangerous as it seems on paper, that's why those docs who know have just been careful to monitor him...heart, blood presure etc. ) and he is growing....so what can do what those things do but not be dangerous. Last year when medications started nto seeming as effective, we bumped both doses (not at the same time, one then the other) and all was good int eh world. This is all an effort because we are at a limit on those medications. </p><p></p><p>so the test they did yesterday was to see how much of an effect teh Concerta has and if is causes tics at all. the first night he was there he had a meltdown and was in teh time out room nothing since, no extra prn medications....one week later they hold the concerta PLUS screwed up the dose so he was only on 1/3 the dose...he was in the time out room 6 or 7 times...twice locked. He has big scratches on his forehead that he did to himself. head banging and kicking etc...stuff he doesn't do normally. so wow...I am thinking not a good idea to stop ever again??? He would not survive it. We did lower the dose before all of this (concerta in the pm) and the plan was to reduce slowly to see if it is activating him now that he gets older. His regular psychiatrist says that as kids get older what was calming becomes stimulating. My nephew in fact just had to go down to 36 mg concerta after being in the 70's. he is doing great now. it is interesting. </p><p></p><p>I remember when difficult child was young that neuro. said he may be seizure free for a while but it is unlikely when puberty hits that he will remain so. I am afraid that is a big part of this picture. </p><p></p><p>so much to sort thru. I think they need to do a walking eeg for a couple of days on the unit. I am going to ask. he has a 1:1 on the unit anyway...(crazy huh?) so they could push the button and record info on behaviors.</p><p></p><p>I dont even know what I just wrote so sorry if it makes no sense. It stunk to have him hit me like that. I was glad he was immediately scared and sorry. he tried to call me but they couldn't hear my voice and he never called back.</p><p></p><p>I was sitting here and the whole thing finally sunk in...I can't believe I blocked out what happened when we got up to get our stuff. He ran out on the balcony (split level home with a deck above the garage) and kept saying I am going to hurt myself and kill myself just jumping off this deck. I just said to get his stuff so we could go. some of the words were clearly new psychiatric words that he used and true he maybe had the feelings before and now just had words but it seemed more like he was saying he was really really upset and using his new words to let me know. I sure as heck hope the lithium isn't making him more depressed. that will s**k.</p></blockquote><p></p>
[QUOTE="buddy, post: 474827, member: 12886"] liahona, I like that answer....I have used it a couple of times by accident but you brought it to the forefront so i am going to actually purposely try to word it like that. Thanks Steely, it is great to know. so after it was up to a good blood level how long after that did you see it change behavior/mood or did it help as soon as it was at the right level for him? they took the first draw this morning so we will see. Hounddog it is really validating to hear other families who get it .... I just dont think holidays are a time to punish them for not really having the skills to deal with that level of stress and change in routine so I do the same, just push thru and I use what works, prepping ahead for him etc. As far as no medications? We have had several medication errors or times when insurance goofed and we had no medications for a day or two to kind of test the theory for each one...and I realize it is not the same as it really being out of their system...but even before the Concerta, (and we did try others before settling on concerta) there was not ONE minute of his cooperating in school. jsut running around in the back of the room. At home he was aggressive the first day he was home. In fact in the hotel the first night I had him we were swimming and he bit my shoulder. His fmom had told me she used to tell him to get a slipper and she would whack his hands when he pinched and scratched her. (nice huh?) The very first day on ritalin I got a call from ecse and I thought oh god...he threw another block at a kid and kid is in hospital...nope. difficult child sat in circle and listened to the story! Truly a different child and we could go for walks outside, he could try to ride a bike, he started to learn to talk, etc. Really beyond the improvement you see in adhd kids (I'm sure you know the difference, smile). the only neg. was it was not as easy for him to have fun..just didn't seem as happy. He was never really a silly fun kind of kid but it was a change. medication error days always confirm that he needs the medications because something serious always happens. this is true since he was five years old. days I forgot to give him medications... now we are SO routine bound that doesn't happen at home but school forgot second dose once and evening with an Integrated Listening Systems (ILS) worker...I get a call that the teen center is kicking him out and they want to call police...then school nurse calls and says she jsut got a flash that she forgot his medications (we had dr. appointment and screwed up the schedule). So, I definately think he could be a notch down if off the concerta...but I dont think the aggression would go away. He was on clonidine for aggression long before the Concerta started. He was on phenobarbitol then several others...tegretol, depakote, keppra for seizures. after he didn't have seizures for several years we stopped seizure medications. but then the "fake" feelings started. they thought it was anxiety...so tried different medications...put him on prozac. I do think that one can stop. It was not from anxiety and I dont think prozac helped with the anxiety at all. But he changed how he related to me...he became cuddly and smiled more and it was just different. So we kept it. Lyrica was given to help the seizures that he "fake" ended up being. Problem now he is at such high doses of Concerta and Clonidine (though how much is metabolized is a big question so probably not as dangerous as it seems on paper, that's why those docs who know have just been careful to monitor him...heart, blood presure etc. ) and he is growing....so what can do what those things do but not be dangerous. Last year when medications started nto seeming as effective, we bumped both doses (not at the same time, one then the other) and all was good int eh world. This is all an effort because we are at a limit on those medications. so the test they did yesterday was to see how much of an effect teh Concerta has and if is causes tics at all. the first night he was there he had a meltdown and was in teh time out room nothing since, no extra prn medications....one week later they hold the concerta PLUS screwed up the dose so he was only on 1/3 the dose...he was in the time out room 6 or 7 times...twice locked. He has big scratches on his forehead that he did to himself. head banging and kicking etc...stuff he doesn't do normally. so wow...I am thinking not a good idea to stop ever again??? He would not survive it. We did lower the dose before all of this (concerta in the pm) and the plan was to reduce slowly to see if it is activating him now that he gets older. His regular psychiatrist says that as kids get older what was calming becomes stimulating. My nephew in fact just had to go down to 36 mg concerta after being in the 70's. he is doing great now. it is interesting. I remember when difficult child was young that neuro. said he may be seizure free for a while but it is unlikely when puberty hits that he will remain so. I am afraid that is a big part of this picture. so much to sort thru. I think they need to do a walking eeg for a couple of days on the unit. I am going to ask. he has a 1:1 on the unit anyway...(crazy huh?) so they could push the button and record info on behaviors. I dont even know what I just wrote so sorry if it makes no sense. It stunk to have him hit me like that. I was glad he was immediately scared and sorry. he tried to call me but they couldn't hear my voice and he never called back. I was sitting here and the whole thing finally sunk in...I can't believe I blocked out what happened when we got up to get our stuff. He ran out on the balcony (split level home with a deck above the garage) and kept saying I am going to hurt myself and kill myself just jumping off this deck. I just said to get his stuff so we could go. some of the words were clearly new psychiatric words that he used and true he maybe had the feelings before and now just had words but it seemed more like he was saying he was really really upset and using his new words to let me know. I sure as heck hope the lithium isn't making him more depressed. that will s**k. [/QUOTE]
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