I know this is a lot to read.. but please do!
Background: My daughter was the easiest of all my children. She didn't require much. We started noticing difference and she started exibiting some strange behaviors. She was getting up at night and taking things to her bed to tear apart. When she was four, she had a series of Urinary Tract Infection (UTI)'s and strep. She ended up waking up in the middle of the night with fever, vomiting and was incoherant and shaking. Everything she was doing was blamed on Urinary Tract Infection (UTI)'s. By the time she started Kindergarten, things were not good. The teacher complained that she wasn't payig attention. She was unsteady on her feet. She became aggresive. She was mean to her siblings. We would find piles of tiolet papers torn to pieces in her bed. Then she started tearing the string of blankets and clothes. She started seeing XXX Associates and was diagnosed with ODD. She had lost some of her speach, and regressing in most areas of development. She was soon seeing a neurologist that after many EEGs found a slightly abnormal spot. She started occupational and sensory therapy. We had several appointments every week with different doctors. They tested her IQ, which was superior and high superior range. They then diagnosed her with high functioning autism.
The tearing of papers and picking of strings soon turned to picking at her body. Her body was covered in sores she created. She stopped eating very much. She only would wear loose fitting clothing. She would wake up at 4 in the morning to exercise so she wouldn't get fat. She wouldn't talk to people that did not look perfect. She even told her father she didn't love him because he was fat. She still could not bathe or dress herself due to her getting so frustrated she couldn't complete the task. She had been on strattera; which calmed much of her outburst. Now they started her on Zoloft in hopes the picking would stop. For the first time in a long time, my daughter said she loved someone. Yeah, it was Justin Beiber.. but someone at least! She started to cry about things which I hadn't saw in a long time. it didn't keep her from picking though. She soon started pulling toenails off, and one of her nipples. XXX Associates wanted us to find someone better adapt to her needs. We found XXX Pointe. They worked on her picking and we followed all suggestions. She started finding places to pick that she could hide. She started picking her gums and her backside.
The past few weeks....
My daughter started acting really strange the past few weeks. She seemed hyper and inattentive. She also would want everyone to leave her alone and yell at people. She would cover herself in piles of clothes or what ever she could find. She still would smile and tell us things, but she switched to being angry very fast. She came home from school and had used scissors to cut all the skin from around her fingers. I talked to her trying to figure out what was going on, but she just answered that she didn't know. They took her scossors, but came home the next day saying she got them and tried to cut her face but it didn't work. It was very upsetting. We had called a group meeting a the school at the beginning of the year with everyone involved in her care so that they would know what they were up against. At the time, they didn't see anything to be worried about, and didn't pay much attention to our pleas. This past Friday, she got in the car and showed me a tooth as I started going through her backpack. I had just checked her teeth a few days before because she said she had a wiggly one, but there were not any loose teeth. As I looked in her backpack, I realized everything in there was about teeth. They colored tooth fairy pictures and toothpaste pictures. i knew this wasn't a concisence. When we got home I was talking to my husband about it when she came back into the kitchen with blood all over her. She had hit out another tooth. I called her counsellor immediatly, and left a message. Then called the hospital, and they wanted me to bring her in for assesment. When I got off the phone, I went to the bathroom to check on her, and she was hitting her mouth trying to get another one out. I told her to stop, but I got the same answer as all the rest of the times, " I can't!" She just couldn't control the urge. I got her dressed and took her to the hospital where she is now admitted. When she left, the only thing she was upset about is that the tooth fairy would not come. They have put her on Risperdal for psychosis and aggretion. I talk to her last night, and although she said her roomate is mean and everyone there is not nice, she never once asked about coming home. She realized she was on the phone and became insistant that she could call a girl in class and hung up on me. Even though I told her several times that she could not call out and she doesn't know anyone's phone number.
I am at a loss. This is my baby, and she is so far away from me in all ways. I am scared that this will be her future; going in and out of hospitals. I need advice or help here. I don't know what else to do. She is a sweet little girl that loves to be funny. Its like she just has this hex over her. I know that she is never going to be normal. I would love if maybe someone on here that has been through something similar could give me advice, or someone give their opinion on the situation. I NEED HELP with her!
Background: My daughter was the easiest of all my children. She didn't require much. We started noticing difference and she started exibiting some strange behaviors. She was getting up at night and taking things to her bed to tear apart. When she was four, she had a series of Urinary Tract Infection (UTI)'s and strep. She ended up waking up in the middle of the night with fever, vomiting and was incoherant and shaking. Everything she was doing was blamed on Urinary Tract Infection (UTI)'s. By the time she started Kindergarten, things were not good. The teacher complained that she wasn't payig attention. She was unsteady on her feet. She became aggresive. She was mean to her siblings. We would find piles of tiolet papers torn to pieces in her bed. Then she started tearing the string of blankets and clothes. She started seeing XXX Associates and was diagnosed with ODD. She had lost some of her speach, and regressing in most areas of development. She was soon seeing a neurologist that after many EEGs found a slightly abnormal spot. She started occupational and sensory therapy. We had several appointments every week with different doctors. They tested her IQ, which was superior and high superior range. They then diagnosed her with high functioning autism.
The tearing of papers and picking of strings soon turned to picking at her body. Her body was covered in sores she created. She stopped eating very much. She only would wear loose fitting clothing. She would wake up at 4 in the morning to exercise so she wouldn't get fat. She wouldn't talk to people that did not look perfect. She even told her father she didn't love him because he was fat. She still could not bathe or dress herself due to her getting so frustrated she couldn't complete the task. She had been on strattera; which calmed much of her outburst. Now they started her on Zoloft in hopes the picking would stop. For the first time in a long time, my daughter said she loved someone. Yeah, it was Justin Beiber.. but someone at least! She started to cry about things which I hadn't saw in a long time. it didn't keep her from picking though. She soon started pulling toenails off, and one of her nipples. XXX Associates wanted us to find someone better adapt to her needs. We found XXX Pointe. They worked on her picking and we followed all suggestions. She started finding places to pick that she could hide. She started picking her gums and her backside.
The past few weeks....
My daughter started acting really strange the past few weeks. She seemed hyper and inattentive. She also would want everyone to leave her alone and yell at people. She would cover herself in piles of clothes or what ever she could find. She still would smile and tell us things, but she switched to being angry very fast. She came home from school and had used scissors to cut all the skin from around her fingers. I talked to her trying to figure out what was going on, but she just answered that she didn't know. They took her scossors, but came home the next day saying she got them and tried to cut her face but it didn't work. It was very upsetting. We had called a group meeting a the school at the beginning of the year with everyone involved in her care so that they would know what they were up against. At the time, they didn't see anything to be worried about, and didn't pay much attention to our pleas. This past Friday, she got in the car and showed me a tooth as I started going through her backpack. I had just checked her teeth a few days before because she said she had a wiggly one, but there were not any loose teeth. As I looked in her backpack, I realized everything in there was about teeth. They colored tooth fairy pictures and toothpaste pictures. i knew this wasn't a concisence. When we got home I was talking to my husband about it when she came back into the kitchen with blood all over her. She had hit out another tooth. I called her counsellor immediatly, and left a message. Then called the hospital, and they wanted me to bring her in for assesment. When I got off the phone, I went to the bathroom to check on her, and she was hitting her mouth trying to get another one out. I told her to stop, but I got the same answer as all the rest of the times, " I can't!" She just couldn't control the urge. I got her dressed and took her to the hospital where she is now admitted. When she left, the only thing she was upset about is that the tooth fairy would not come. They have put her on Risperdal for psychosis and aggretion. I talk to her last night, and although she said her roomate is mean and everyone there is not nice, she never once asked about coming home. She realized she was on the phone and became insistant that she could call a girl in class and hung up on me. Even though I told her several times that she could not call out and she doesn't know anyone's phone number.
I am at a loss. This is my baby, and she is so far away from me in all ways. I am scared that this will be her future; going in and out of hospitals. I need advice or help here. I don't know what else to do. She is a sweet little girl that loves to be funny. Its like she just has this hex over her. I know that she is never going to be normal. I would love if maybe someone on here that has been through something similar could give me advice, or someone give their opinion on the situation. I NEED HELP with her!
Last edited by a moderator: