Flutterby!

Discussion in 'The Watercooler' started by nvts, Mar 31, 2011.

  1. nvts

    nvts Active Member

    How'd it go at the new docs? Wasn't it this week? It's been nuts around here, so I haven't gotten to look and see when the appointment. was.

    Beth
     
  2. flutterby

    flutterby Fly away!

    Thank you for thinking of me, Beth.

    I saw the neuro on Monday and went back today for a single fiber emg and a repetitive stimulant emg. Repetitive stimulant emg was normal. It will take a couple days to analyze the single fiber emg, but he expects it to be normal. So, no more diagnosis, no answers.
     
  3. HaoZi

    HaoZi Guest

    Geeze. Does he at least have theories?
     
  4. flutterby

    flutterby Fly away!

    He asked if I had been tested for Ankylosing Spondylitis, which I have been - over 3 years ago. It's one of the first things I was tested for.

    He said it's definitely something (duh) which is what all the doctors say and then pass me on to another specialist. After almost 4 years, I don't think there are many more tests they can do. And I think I'm done looking. I can't go through the emotional roller coaster anymore.
     
  5. KTMom91

    KTMom91 Well-Known Member

    I'm so sorry, Heather. I was praying for answers and relief for you.
     
  6. flutterby

    flutterby Fly away!

    Thank you, Mary.

    I am just focusing now on finding peace and acceptance. I can no longer keep trying to find answers that just aren't there.
     
  7. crazymama30

    crazymama30 Active Member

    Heather I am sorry. It is discouraging to feel so bad and not even get the validation of a diagnosis. Hugs.
     
  8. nvts

    nvts Active Member

    Heather! I'm so sorry...I think you're right on going the peace and acceptance route for now. I'm sorry I haven't had a chance to check in on your answer - difficult child 1 and 3 have been putting me through the wringer and 2 hasn't been that great either.

    I hope you don't mind, but I'm going to keep digging around and watching for any new neurological insights that may eventually come down the pipe! I won't rattle your cage about anything unless it looks promising.

    Always keep the flashlights handy! If anything, they'll give you a laugh!

    Love ya!
    Beth
     
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