timer lady
Queen of Hearts
As many of you know, I've been on a long term treatment of prednisone. It's been a rough almost 10 months.
The Mayo docs are titrating me down very slowly as the last time we tried to lower the prednisone dose my body didn't tolerate it - just got sicker.
I'm finding this time to be challenging as well. While I have some good days, the bad days are worse than ever. The pain & agitation are extreme, blood pressure shoots up along with pretty severe edema.
I guess my question is have any of you been on a long term treatment of steroids & how did you tolerate coming off of them? What was a successful method for you?
I've been told that my body needs to be fooled into believing it doesn't need this medication anymore so we can introduce a non-steroidal anti auto-immune medication.
Looking for any suggestions - looking really for a positive outcome. Let's just say this isn't fun.
The Mayo docs are titrating me down very slowly as the last time we tried to lower the prednisone dose my body didn't tolerate it - just got sicker.
I'm finding this time to be challenging as well. While I have some good days, the bad days are worse than ever. The pain & agitation are extreme, blood pressure shoots up along with pretty severe edema.
I guess my question is have any of you been on a long term treatment of steroids & how did you tolerate coming off of them? What was a successful method for you?
I've been told that my body needs to be fooled into believing it doesn't need this medication anymore so we can introduce a non-steroidal anti auto-immune medication.
Looking for any suggestions - looking really for a positive outcome. Let's just say this isn't fun.