Hi my name is jan and i have 5 great kids 4 of whom have various special needs they are..
Adam aged 10 who has adhd and learnig disabilities,
chloe aged 8
Lewis aged 5 1/2 who has abnormalities of the brain, growth hormone defiency, global devolpmental delay, paraylisis of the vocal chord, autistic traits, behavioural problems, obessive behaviour,global devolpmental delay,speech,language and social skills problems,lax joints and ligaments and learning difficulties
Daniel aged 51/2 and has gloal devolpmental delay, mild hearing loss, learning difficulties, suspected adhd and suspected odd and confirmed selective mutism.
Kayleigh-May aged 17mths who has global devolpmental delay, cleft on her voice box wich causes her to aspirate fluids so is ng tube fluids and zero fluids by mouth, low muscle tone, just recently found out she has a twisted windpipe so investigations being done to find out why it's twisted, hydrocephulus(mild), plagiocephaly
I have joined this forum to hopefully get support and meet other parents who may have experience of odd as im at my wits end with Daniel.. this weekend he managed to break a grown mans wrist!! He just wont stop when told no once he has gone into hyper mood, he defys us all the time we have to keep our front door bolted to stop him running out,time out doesnt work with him,taking personal possesions of him doesnt work.. when we take the children out Daniel needs a 1 to 1 carer as he can flip at blink of a eye and run into roads thinking it is funny and to get attention..he gives eye contact and trys to jump onto railway tracks when we travel by train, he hits,kicks and spits at myself and his siblings.. when he is in trouble for something he will look at us and grab the baby and run with her laughing at the same time we now have to keep the baby away from him when he is in these moods.. on the other hand he is the most loving little boy in the world when he wants to be gives lots of cuddles and kisses but then goes over the top where he wont stop cuddling and kissing you and strokes u over and over again touching you where he shouldnt touch ie breasts he does this to strangers or family friends to.
He is only mute in school and situations he is unsure off or when around ppl he only use to seeing in certain places and they appear in total diff place.. his behaviour other than the mutism is brilliant but toddlerish in school he has transport to school and back where it is reported he can get hyperactive and need calming down but not naughty hyperactive.
He sleepwalks thro out the night and wakes most mornings at 3 -4am and then is up for the day until 9pm even tho he does get sent to his bed at 7pm he messes about basically till he drops. This is my little boy and this weekend because of whats happened with my brother my family including my mum have turned against him they wont listen to the fact he has limited understanding, he has a condition that he cant help or control as yet in their eyes he needs a good smacked bum--i dont smack my kids and use positive parenting skills i have learnt on webster stratten and hannen courses. I feel let down hurt and upset by my family and just want to help my baby boy x
Adam aged 10 who has adhd and learnig disabilities,
chloe aged 8
Lewis aged 5 1/2 who has abnormalities of the brain, growth hormone defiency, global devolpmental delay, paraylisis of the vocal chord, autistic traits, behavioural problems, obessive behaviour,global devolpmental delay,speech,language and social skills problems,lax joints and ligaments and learning difficulties
Daniel aged 51/2 and has gloal devolpmental delay, mild hearing loss, learning difficulties, suspected adhd and suspected odd and confirmed selective mutism.
Kayleigh-May aged 17mths who has global devolpmental delay, cleft on her voice box wich causes her to aspirate fluids so is ng tube fluids and zero fluids by mouth, low muscle tone, just recently found out she has a twisted windpipe so investigations being done to find out why it's twisted, hydrocephulus(mild), plagiocephaly
I have joined this forum to hopefully get support and meet other parents who may have experience of odd as im at my wits end with Daniel.. this weekend he managed to break a grown mans wrist!! He just wont stop when told no once he has gone into hyper mood, he defys us all the time we have to keep our front door bolted to stop him running out,time out doesnt work with him,taking personal possesions of him doesnt work.. when we take the children out Daniel needs a 1 to 1 carer as he can flip at blink of a eye and run into roads thinking it is funny and to get attention..he gives eye contact and trys to jump onto railway tracks when we travel by train, he hits,kicks and spits at myself and his siblings.. when he is in trouble for something he will look at us and grab the baby and run with her laughing at the same time we now have to keep the baby away from him when he is in these moods.. on the other hand he is the most loving little boy in the world when he wants to be gives lots of cuddles and kisses but then goes over the top where he wont stop cuddling and kissing you and strokes u over and over again touching you where he shouldnt touch ie breasts he does this to strangers or family friends to.
He is only mute in school and situations he is unsure off or when around ppl he only use to seeing in certain places and they appear in total diff place.. his behaviour other than the mutism is brilliant but toddlerish in school he has transport to school and back where it is reported he can get hyperactive and need calming down but not naughty hyperactive.
He sleepwalks thro out the night and wakes most mornings at 3 -4am and then is up for the day until 9pm even tho he does get sent to his bed at 7pm he messes about basically till he drops. This is my little boy and this weekend because of whats happened with my brother my family including my mum have turned against him they wont listen to the fact he has limited understanding, he has a condition that he cant help or control as yet in their eyes he needs a good smacked bum--i dont smack my kids and use positive parenting skills i have learnt on webster stratten and hannen courses. I feel let down hurt and upset by my family and just want to help my baby boy x