vtheartmama
New Member
Hello all, so here is my story, abbreviated version of course!
Part I
I have a 3.5 year old girl who has always been healthy and we thought maybe had a few sensory issues that would get better with time. When she was 3 she was diagnosed with progressive infantile scoliosis, the only potentially fatal form of pediatric orthopeadic conditions. She now has anxiety from her treatment, and her sensory issues have not gotten any better. She also has an IEP at school because of communication problems, like not answering questions correctly, repeating a question or answer multiple times, and changing topic's frequently. These are some of the things she flips out about:
Tight clothes
"slippery" clothes (her words)
"squishy" mud (again, her words)
dirty clothes
cracks in food (like cheese or bananas)
has to have 3 of everything (3 slices, 3 crackers etc.)
things HAVE to match (socks, mittens etc.)
will not eat hot/warm food
has to have certain amount of food in bowl (no spaces)
blankets have to go on in same order every night
flips out when her TV show stops
Very sensitive to sound/volume
These are just the things I can think of off the top of my head. She is a very sweet, polite and loving girl. She loves shapes, colors and abstract things and is very smart. She had to see a neurologist in order to get her Brain MRI for her scoliosis, and I asked the neuro about her repetitive questions, and she even did it in front of the neuro and all the neuro said was "she justs wants to make sure". I don't buy it and her GP says there's nothing really to be done about sensory issues. They don't harm her really it's just frustrating as a parent because everything has to be "perfect" or she flips out. Should I seek out other opinions?
Part II
I have a 2.5 year old son. He was born with 3 congenital heart defects and had open heart surgery at 3 days old, he is currently doing well with just a few minor residuals from surgery. He sees a Physchologist at a Neurodevelopmental clinic every year for follow up because of being on the heart/lung bypass machine. He has always been somewhat of a challenge and at his last appointment. she diagnosed him with a "Non specific emotional disorder".. He is a difficult child to disipline, he laughs when put in time out, intentionally does bad things to get attention (he gets PLENTY of good attention), I have never seen a boy throw such a tantrum if you just as much say "no" to him. We have to constantly tell him not to do the same things over and over, like draw on the walls, throw toys (across the room), or not run away in public. He does most things hoping to get some kind of reaction..and we have tried time outs, telling him no, taking away his toys, and ignoring him. His Occupational Therapist (OT) said he had "tactile defensivness" and gave him a brush thing, which he likes, and his sister loves. Is he just going through the terrible two's? I have nothing to compare it with because my daughter always listened well.
My kids see two different doctors because my daughter sees a GP and when my son was born they said he had to see a pediatrician, and neither of them are very receptive.
Thanks for any advice!
Part I
I have a 3.5 year old girl who has always been healthy and we thought maybe had a few sensory issues that would get better with time. When she was 3 she was diagnosed with progressive infantile scoliosis, the only potentially fatal form of pediatric orthopeadic conditions. She now has anxiety from her treatment, and her sensory issues have not gotten any better. She also has an IEP at school because of communication problems, like not answering questions correctly, repeating a question or answer multiple times, and changing topic's frequently. These are some of the things she flips out about:
Tight clothes
"slippery" clothes (her words)
"squishy" mud (again, her words)
dirty clothes
cracks in food (like cheese or bananas)
has to have 3 of everything (3 slices, 3 crackers etc.)
things HAVE to match (socks, mittens etc.)
will not eat hot/warm food
has to have certain amount of food in bowl (no spaces)
blankets have to go on in same order every night
flips out when her TV show stops
Very sensitive to sound/volume
These are just the things I can think of off the top of my head. She is a very sweet, polite and loving girl. She loves shapes, colors and abstract things and is very smart. She had to see a neurologist in order to get her Brain MRI for her scoliosis, and I asked the neuro about her repetitive questions, and she even did it in front of the neuro and all the neuro said was "she justs wants to make sure". I don't buy it and her GP says there's nothing really to be done about sensory issues. They don't harm her really it's just frustrating as a parent because everything has to be "perfect" or she flips out. Should I seek out other opinions?
Part II
I have a 2.5 year old son. He was born with 3 congenital heart defects and had open heart surgery at 3 days old, he is currently doing well with just a few minor residuals from surgery. He sees a Physchologist at a Neurodevelopmental clinic every year for follow up because of being on the heart/lung bypass machine. He has always been somewhat of a challenge and at his last appointment. she diagnosed him with a "Non specific emotional disorder".. He is a difficult child to disipline, he laughs when put in time out, intentionally does bad things to get attention (he gets PLENTY of good attention), I have never seen a boy throw such a tantrum if you just as much say "no" to him. We have to constantly tell him not to do the same things over and over, like draw on the walls, throw toys (across the room), or not run away in public. He does most things hoping to get some kind of reaction..and we have tried time outs, telling him no, taking away his toys, and ignoring him. His Occupational Therapist (OT) said he had "tactile defensivness" and gave him a brush thing, which he likes, and his sister loves. Is he just going through the terrible two's? I have nothing to compare it with because my daughter always listened well.
My kids see two different doctors because my daughter sees a GP and when my son was born they said he had to see a pediatrician, and neither of them are very receptive.
Thanks for any advice!