My daughter is diagnosis'ed with chronic Lyme Disease and has felt too bad from a constant headache to go to school for over a year. She spends a lot of time at home laying in her bed. There are times when she seems to feel better and will be up and around more but according to her, she isn't any better than she was a year ago. She has tried various migraine prevention treatments without any success, so far. She doesn't feel well enough to play with friends but if her sister has a friend over, she will sometimes join in.
She is also diagnosis'ed with Obsessive Compulsive Disorder (OCD). We are working on treating this now with CBT/ERP. She has tried the SSRI's and was unable to tolerate the side effects. We are going back to the psychiatrist tomorrow to see what else we can do.
I took her to a neuropscychologist for an assessment of her cognitive function. He deals with a lot of Lyme patients. He believes she should go back to school as soon as possible since she was capable of doing his testing for 12 hour testing over 2 days. Her Lyme doctor believes her anxiety is keeping her from school.
She says she will not be able to go to school even 3 hours each day without it being too much. She feels she will be overdoing it and needs to be able to lay down more than that. Her Obsessive Compulsive Disorder (OCD) therapist and her dad are viewing this as an Obsessive Compulsive Disorder (OCD) issue and that she is just too comfy in her bed. However, I keep thinking about the "spoon" story and have read that people with chronic illnesses (Lyme, lupus, MS, etc.) feel worse than they look and do feel worse after overdoing it. On the other hand, even if she has a headache, she might have to learn to cope with not feeling well and still having a life outside of her bed.
It will be a huge ordeal to get her to go to school. I have been homeschooling her but we are struggling. She does have some learning problems that I don't feel equipped to deal with and I feel she would be less resistant to someone other than her mother.
For those of you who suffer from a chronic illness, what are your thoughts on pushing her to go to school or to accept her word that it is too much?
She is also diagnosis'ed with Obsessive Compulsive Disorder (OCD). We are working on treating this now with CBT/ERP. She has tried the SSRI's and was unable to tolerate the side effects. We are going back to the psychiatrist tomorrow to see what else we can do.
I took her to a neuropscychologist for an assessment of her cognitive function. He deals with a lot of Lyme patients. He believes she should go back to school as soon as possible since she was capable of doing his testing for 12 hour testing over 2 days. Her Lyme doctor believes her anxiety is keeping her from school.
She says she will not be able to go to school even 3 hours each day without it being too much. She feels she will be overdoing it and needs to be able to lay down more than that. Her Obsessive Compulsive Disorder (OCD) therapist and her dad are viewing this as an Obsessive Compulsive Disorder (OCD) issue and that she is just too comfy in her bed. However, I keep thinking about the "spoon" story and have read that people with chronic illnesses (Lyme, lupus, MS, etc.) feel worse than they look and do feel worse after overdoing it. On the other hand, even if she has a headache, she might have to learn to cope with not feeling well and still having a life outside of her bed.
It will be a huge ordeal to get her to go to school. I have been homeschooling her but we are struggling. She does have some learning problems that I don't feel equipped to deal with and I feel she would be less resistant to someone other than her mother.
For those of you who suffer from a chronic illness, what are your thoughts on pushing her to go to school or to accept her word that it is too much?