almostcrazy
New Member
Pedoc doesn't even want to consider a neuro workup at this time. See the psychiatrist first he says, and we will go from there. Shouldn't we be eliminating the medical possibilities first? Says she seems perfectly normal to him. I gave him the list I posted of all of the sudden behavioral changes, and he said well, we can all find something if we are looking. Isn't that the idea? I am looking because my child turned into a different person overnight. I would think you would want to check the brain: MRI, EEG, to see if there is something wrong medically. He said if there were any problems like a tumor, seizures, stroke, or infection their would be other symtoms.
I am so frustrated. :grrr: I told him to come stay at my house for a day, and he would see that she is not perfectly fine. He tried in his funny little way to make her say the words she wouldn't say like: Mom, Dad, etc. Her response was, I know you are trying to get me to say those words, but I can't, and I don't know why. How much clearer can it be??? When I filled him in on PANDAS he of course said it was not even a proven theory, and would be very rare, and that she tested negative for strep. When I tried to explain what to look for on the blood tests, by what I have read, he still didn't seem interested.
Is it just me, or is he an idiot? :hammer:
We have an appointment on the 29th with the psychiatrist. Can he refer her for a neuropsychologist evaluation? Will he?
I spent the day calling Children's Hospitals to see if they did multi-disciplanary evaulations, and most of them didn't even know what I was talking about. One hospital did say it was called a multi-factoral evaluation, and was usually done by the local school system for learning disabilities. When I asked if this evaluation included a neuropsychologist, psychiatrist, psychologist, etc. The answer was no. Otherwise, they had no clue. I feel like I am in the twilight zone, and can't get out.
My difficult child is still having the same problems, and it does seem better on certain days, worse on others. I haven't found a factor that makes the differences, but they happen.
Just wanting to vent. Thanks for listening.
I am so frustrated. :grrr: I told him to come stay at my house for a day, and he would see that she is not perfectly fine. He tried in his funny little way to make her say the words she wouldn't say like: Mom, Dad, etc. Her response was, I know you are trying to get me to say those words, but I can't, and I don't know why. How much clearer can it be??? When I filled him in on PANDAS he of course said it was not even a proven theory, and would be very rare, and that she tested negative for strep. When I tried to explain what to look for on the blood tests, by what I have read, he still didn't seem interested.
Is it just me, or is he an idiot? :hammer:
We have an appointment on the 29th with the psychiatrist. Can he refer her for a neuropsychologist evaluation? Will he?
I spent the day calling Children's Hospitals to see if they did multi-disciplanary evaulations, and most of them didn't even know what I was talking about. One hospital did say it was called a multi-factoral evaluation, and was usually done by the local school system for learning disabilities. When I asked if this evaluation included a neuropsychologist, psychiatrist, psychologist, etc. The answer was no. Otherwise, they had no clue. I feel like I am in the twilight zone, and can't get out.
My difficult child is still having the same problems, and it does seem better on certain days, worse on others. I haven't found a factor that makes the differences, but they happen.
Just wanting to vent. Thanks for listening.