It seems insane to me to not try to stop the tremors or deal with the pain. You would have thought I asked the doctor to share his left nut with us when I insisted that he prescribe something to help with the pain. He got very scowly and said with some heat that he WOULD. NOT. prescribe any opioid pain medications. When I was fine with that he got confused. He was happy to prescribe soma and when I didn't argue he settled down.
I very much feel that PTSD and depression and stress play a part. Sadly most of the docs want to say it is the only part or the major part and to stop looking after that. That sort of thinking drives me batty.
I think it is worse because she is a female. Once the docs see there is PTSD etc... they just want to chalk it up to female hysteria and be done. Pushing them to see past it is a task that I am so angry about dealing with. The anger comes because none of them would treat Wiz like this. Or my dad or brother.
Wiz had a reaction to abilify and his arm and head and neck all contorted and held that bizarre position for about an hour. When I called the doctor it was a HUGE deal. The docs made a fuss, the neuro (the one who refused to see Jess) worked him in the next day and was upset we couldn't get to his office that day, all sorts of fuss.
Now, when it is my daughter, they all just want to say it is PTSD.
The PTSD contributes. It adds to everything some days. She is doing better and it is not ruling her life the way it did the first couple of years, but it is not a reason for the docs to just say "hmmm...." and do nothing else.
Just in my opinion. I am off the soapbox. I know you all understand and have been there done that on this.
Thanks so much. JEss says thanks also. She told me it gives her something to hang onto at night, knowing that all of you are keeping her in your thoughts and prayers.
Hugs to all.
I very much feel that PTSD and depression and stress play a part. Sadly most of the docs want to say it is the only part or the major part and to stop looking after that. That sort of thinking drives me batty.
I think it is worse because she is a female. Once the docs see there is PTSD etc... they just want to chalk it up to female hysteria and be done. Pushing them to see past it is a task that I am so angry about dealing with. The anger comes because none of them would treat Wiz like this. Or my dad or brother.
Wiz had a reaction to abilify and his arm and head and neck all contorted and held that bizarre position for about an hour. When I called the doctor it was a HUGE deal. The docs made a fuss, the neuro (the one who refused to see Jess) worked him in the next day and was upset we couldn't get to his office that day, all sorts of fuss.
Now, when it is my daughter, they all just want to say it is PTSD.
The PTSD contributes. It adds to everything some days. She is doing better and it is not ruling her life the way it did the first couple of years, but it is not a reason for the docs to just say "hmmm...." and do nothing else.
Just in my opinion. I am off the soapbox. I know you all understand and have been there done that on this.
Thanks so much. JEss says thanks also. She told me it gives her something to hang onto at night, knowing that all of you are keeping her in your thoughts and prayers.
Hugs to all.