I will try to stay at the RMD house. We were supposed to stay there last night, it was supposedly "approved" but then suddenly they didn't have room so we headed home. I wanted to stay there in the hopes that Jess could spend some time with other kids, regardless of their ages. I am sure I will be at RMD a good part of the time and with Jess in the hospital the rest of the time.
I don't know exactly what will work out. I am frustrated because we got home after the office had closed at the hospital. I had a call that left a garbled message twice and when I try to call it back I get user busy or a strange high pitched tone, but not like a fax machine. I don't think it is the area code for the hospital, but with my phone luck it was the doctor and they watned her there today.
Of course the doctor told us it would be at least a week before they could get her in, but docs know their own schedules about as well as they know how to run a Tibetan Yak Farm. At least the docs I know anyway! I will call tomorrow and find out if it was them or not. I don't think we will be waiting until after the holidays. Not if there is ANY way to do it before then.
For US it would be excellent if we do it before husband gets a job. His interview went well and we don't know when they will make a decision. The 3rd person on the committee remembered him from the dorm (they were friends eons ago in the dorms) and he knows that at least one of the 3 really wants him to get the job. The boss seems to like him and it sounds VERY promising. But that might mean we don't qualify for the state insurance. The state ins pays 100% of EVERYTHING with very very few hassles. Private insurance would mean we pay at least 20%, which would be financially devastating. So I would like to do this very very soon so that we don't have to worry about that.
I don't doubt that anxiety plays a role. Not at all. It just isn't the ONLY factor, which is what the other docs insisted. The MRI they did last year showed no tumor, so we have no fears of that. But what the report from the doctor who read teh MRI wrote is quite different from what the neuro told us teh report said. There WERE a couple of spots that were "atypical" and could indicate certain things, NOT just a blip on the pituitary that is supposed to be there in all kids. We were given the "blip" story and told that the radiologist wasn't experienced in reading pediatric MRIs. That is NOT what the written report says (I found a copy of the report in the letter the doctor gave me to deliver to the doctor in Dallas) or what the radiologist's office said when I asked them about his experience wtih pediatrician MRI's.
So my trust in the neuros we have seen here dipped even lower after this. I didn't think it could! But we are quite sure it isn't a tumor, at least.
It might be the same hospital. it was awesome. Very child-friendly, even in the office building. The waiting room had some big machine about 10 feet tall that had balls going up and down and doing all sorts of stuff, kind of like that old game mousetrap. All kinds of toys and manipulatives in baskets and bags in the waiting area. EVERY waiting area had a FULL cart of books donated by Half Price Books (they collect year round and stock hospitals with books for kids that customers have donated) and they had 3 monitors hooked up to video games. the controllers were stationary, like the demos are at the stores, so there were no cords to step on or things to get stolen. The kids playing the games were ALL great about letting other kids take turns, which amazed me! The level above the doctor office had a big area with vending machines and it had touch screen systems with info about the hospital, hotels, things in the area, ways to contact various offices/people for various things in the hospital system.
It was even more impressive than the children's hospital in Cincy, which is pretty darn impressive.
Even more amazing than all of that -- the employees were smiling! ALL of them, even the janitors and security people!!! Every single person who worked there was SMILING. We went over to the hospital side to see the gift shop and to see what it was like. I have never been in a hospital or doctor's office bldg where every person on staff was smiling. Not just nice, or pleasant but SMILING and meaning it!!!