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A New Member - Advice Please
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<blockquote data-quote="susiestar" data-source="post: 362230" data-attributes="member: 1233"><p>It sure sounds like your hands are full! Welcome! Put your load down for a few minutes. Have a cup of coffee (or whatever) and get to know us! You have given us a lot of important info on your difficult child (gift from God, aka child who brought you here). This is an amazing group where you won't be judged, ignored or pestered and you can be darned sure that we won't tell you that there is nothing wrong!!</p><p></p><p>Many, if not most of our kids start out with an ADHD diagnosis. If further testing is done, sensory problems and NonVerbal Learning Disorder (NVLD) are also often there. My daughter's neuropsychologist told us recently that there is some debate as to whether or not ADHD is part of the autistic spectrum of disorders. Don't get too wrapped up in the "OH NO! AUTISM!!" school of thought. Autism is a spectrum where some are greatly affected and are the typical severely autistic people who don't interact with the world. then there is the other end of the spectrum, where people are quirky and have intense interests and abilities.</p><p></p><p>Margeurite can explain that better. </p><p></p><p>Has the Occupational Therapist (OT) taught you how to do the brushing therapy and the gentle joint compressions that go with it? I was shocked at how well it worked for my youngest. Often as he was getting upset going from A to B when he wasn't done with A there would be a giant meltdown. Then the Occupational Therapist (OT) taught me how to do the joint compressions and brushing. It was amazing. Now if he is getting upset because he has to change something or do something else, I will do some gentle compressions on his shoulders and arms. It really mellows him out. If you are not doing it, you should have the Occupational Therapist (OT) show you what to do. If the brushing is done in the wrong order or on the wrong place it can cause real problems. The brushing is so simple and easy. I was shocked by how simple it was.</p><p></p><p>Another thing that will really help is for you to prepare a Parent Report. It is a report where you compile ALL the info about your difficult child. Some years ago the wise women here created an outline for it. It is an excellent tool to share with doctors, etc... and it also helps you keep everything organized. The outline is in the FAQ/Board Help forum. It is well worth the time to prepare, even if all you ever use it for is to fill out all those questions and forms at the doctor's office. The thread is titled "Parent Input/MultiDisciplinary Evaluation" or "Parent Input/MDE". I can't remember which one, sorry.</p><p></p><p>It would be very helpful for us if you would go to the My Profile space at the top right corner of this page. Click through the profile and create a signature. It will help us keep your family's details straight in our brains. It is also a good idea to make sure you are set to receive private messages. We don't name names here, but we can pass them along via PM. Because we often discuss sensitive info about our kids, we do not use our real names, or put phone numbers, home addresses, etc... in our signatures or anywhere else on the board. (Just FYI because many people here forget that.)</p><p></p><p>Anyway, welcome to our little corner of the web!! It is a nice place to sit and relax for a bit, catch up with some friends, vent, ramble, and even work to figure out how best to help the whole family.</p><p></p><p>{{{{{hugs}}}}}</p></blockquote><p></p>
[QUOTE="susiestar, post: 362230, member: 1233"] It sure sounds like your hands are full! Welcome! Put your load down for a few minutes. Have a cup of coffee (or whatever) and get to know us! You have given us a lot of important info on your difficult child (gift from God, aka child who brought you here). This is an amazing group where you won't be judged, ignored or pestered and you can be darned sure that we won't tell you that there is nothing wrong!! Many, if not most of our kids start out with an ADHD diagnosis. If further testing is done, sensory problems and NonVerbal Learning Disorder (NVLD) are also often there. My daughter's neuropsychologist told us recently that there is some debate as to whether or not ADHD is part of the autistic spectrum of disorders. Don't get too wrapped up in the "OH NO! AUTISM!!" school of thought. Autism is a spectrum where some are greatly affected and are the typical severely autistic people who don't interact with the world. then there is the other end of the spectrum, where people are quirky and have intense interests and abilities. Margeurite can explain that better. Has the Occupational Therapist (OT) taught you how to do the brushing therapy and the gentle joint compressions that go with it? I was shocked at how well it worked for my youngest. Often as he was getting upset going from A to B when he wasn't done with A there would be a giant meltdown. Then the Occupational Therapist (OT) taught me how to do the joint compressions and brushing. It was amazing. Now if he is getting upset because he has to change something or do something else, I will do some gentle compressions on his shoulders and arms. It really mellows him out. If you are not doing it, you should have the Occupational Therapist (OT) show you what to do. If the brushing is done in the wrong order or on the wrong place it can cause real problems. The brushing is so simple and easy. I was shocked by how simple it was. Another thing that will really help is for you to prepare a Parent Report. It is a report where you compile ALL the info about your difficult child. Some years ago the wise women here created an outline for it. It is an excellent tool to share with doctors, etc... and it also helps you keep everything organized. The outline is in the FAQ/Board Help forum. It is well worth the time to prepare, even if all you ever use it for is to fill out all those questions and forms at the doctor's office. The thread is titled "Parent Input/MultiDisciplinary Evaluation" or "Parent Input/MDE". I can't remember which one, sorry. It would be very helpful for us if you would go to the My Profile space at the top right corner of this page. Click through the profile and create a signature. It will help us keep your family's details straight in our brains. It is also a good idea to make sure you are set to receive private messages. We don't name names here, but we can pass them along via PM. Because we often discuss sensitive info about our kids, we do not use our real names, or put phone numbers, home addresses, etc... in our signatures or anywhere else on the board. (Just FYI because many people here forget that.) Anyway, welcome to our little corner of the web!! It is a nice place to sit and relax for a bit, catch up with some friends, vent, ramble, and even work to figure out how best to help the whole family. {{{{{hugs}}}}} [/QUOTE]
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