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Another seizure
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<blockquote data-quote="slsh" data-source="post: 604979" data-attributes="member: 8"><p>I would absolutely recommend finding another neuro. I've dealt with some less-than-stellar neuros, and I kept on looking until I found an absolute genius. Our first appointment he spent over 2 hours with me, talking about seizure control and options and testing, etc. Every appointment was like that - he spent as much time as necessary with us. When Boo would have a breakthrough, he was right on top of it. Some docs take a wait and see if it happens again approach - not this guy. One seizure was 1 too many. </p><p></p><p>I wouldn't give up hope on Buster outgrowing them. It could happen. It's just impossible to predict. We were told at age 3 months Boo was at risk - he didn't have his first one 'til puberty hit. Knock wood, he hasn't had one in a couple of years now on triple medication therapy. We were hoping once puberty finished wreaking havoc, he'd stop but... too much to hope for in our case, LOL. </p><p></p><p>Of all the docs we've been involved with, the neuro (and their staff) is by far the most important, in my humble opinion. I think it's really important that you trust him/her completely and are fully confident in their abilities/bedside manner.</p><p></p><p>ETA: The not talking bit - did that start after the last seizure? You really want to document any changes like that, and how long they last for. Boo gets this funky thing called Todd's palsy after a seizure. Half of his face is paralyzed (not always the same half). Flipped me *out* the first time it happened - I was sure he'd had a stroke. It's temporary and resolves in about 24-48 hours. He doesn't walk/talk, so impossible to tell if there are other short-term deficits, but in Buster's case, I think it would be helpful to (new?) neuro to know what you're seeing post seizure.</p></blockquote><p></p>
[QUOTE="slsh, post: 604979, member: 8"] I would absolutely recommend finding another neuro. I've dealt with some less-than-stellar neuros, and I kept on looking until I found an absolute genius. Our first appointment he spent over 2 hours with me, talking about seizure control and options and testing, etc. Every appointment was like that - he spent as much time as necessary with us. When Boo would have a breakthrough, he was right on top of it. Some docs take a wait and see if it happens again approach - not this guy. One seizure was 1 too many. I wouldn't give up hope on Buster outgrowing them. It could happen. It's just impossible to predict. We were told at age 3 months Boo was at risk - he didn't have his first one 'til puberty hit. Knock wood, he hasn't had one in a couple of years now on triple medication therapy. We were hoping once puberty finished wreaking havoc, he'd stop but... too much to hope for in our case, LOL. Of all the docs we've been involved with, the neuro (and their staff) is by far the most important, in my humble opinion. I think it's really important that you trust him/her completely and are fully confident in their abilities/bedside manner. ETA: The not talking bit - did that start after the last seizure? You really want to document any changes like that, and how long they last for. Boo gets this funky thing called Todd's palsy after a seizure. Half of his face is paralyzed (not always the same half). Flipped me *out* the first time it happened - I was sure he'd had a stroke. It's temporary and resolves in about 24-48 hours. He doesn't walk/talk, so impossible to tell if there are other short-term deficits, but in Buster's case, I think it would be helpful to (new?) neuro to know what you're seeing post seizure. [/QUOTE]
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