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<blockquote data-quote="flutterby" data-source="post: 287026" data-attributes="member: 7083"><p>I take the medications that make me feel better. I don't take the medications that make me feel worse. I feel 'worse' enough as it is.</p><p></p><p>Besides, no one seems to know what to do anyway. The only medication that has been in question lately is the amitriptyline which is for headaches. There is the fatigue issue with it, but even bigger is the dizziness/lightheadedness upon standing (every time I stand) and activating my restless leg/body thing to the point that I can't stand for anything to touch me; not even my hair. And I've already fallen from the dizziness upon standing when I got out of bed and came darn close to cracking my head on the hope chest. As it was, I ended up with various shades of color all over.</p><p></p><p>And that was just for headaches. There are so many other things going on... confusion, profound muscle weakness, fatigue, feeling of malaise almost all of the time, tendonitis bursitis in multiple locations...I could go on and on and on.</p><p></p><p>I've given all medications a chance to work. I'm not sure why I'm being told to give them a chance because I haven't been offered any medications that I'm not taking except the amitriptyline and the neurontin - which made me suicidal.</p><p></p><p>I took the steroids that I *hate*. I'm doing steroid injections again which I swore I wouldn't do. Cleveland Clinic doctor told me to stop the plaquenil because she didn't think it was helping, but I'm going to try it again. I have no other options. At least no one is giving me any.</p></blockquote><p></p>
[QUOTE="flutterby, post: 287026, member: 7083"] I take the medications that make me feel better. I don't take the medications that make me feel worse. I feel 'worse' enough as it is. Besides, no one seems to know what to do anyway. The only medication that has been in question lately is the amitriptyline which is for headaches. There is the fatigue issue with it, but even bigger is the dizziness/lightheadedness upon standing (every time I stand) and activating my restless leg/body thing to the point that I can't stand for anything to touch me; not even my hair. And I've already fallen from the dizziness upon standing when I got out of bed and came darn close to cracking my head on the hope chest. As it was, I ended up with various shades of color all over. And that was just for headaches. There are so many other things going on... confusion, profound muscle weakness, fatigue, feeling of malaise almost all of the time, tendonitis bursitis in multiple locations...I could go on and on and on. I've given all medications a chance to work. I'm not sure why I'm being told to give them a chance because I haven't been offered any medications that I'm not taking except the amitriptyline and the neurontin - which made me suicidal. I took the steroids that I *hate*. I'm doing steroid injections again which I swore I wouldn't do. Cleveland Clinic doctor told me to stop the plaquenil because she didn't think it was helping, but I'm going to try it again. I have no other options. At least no one is giving me any. [/QUOTE]
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