So, after DS13 exploded the other day, I got him into neuro yesterday morning. Turns out his EEG from last week was awful. Why didn't they tell me then? Why did I have to wait for neuro to sit down with me???? Anyway, he's having multiple seizures every few seconds. I didn't notice them, just him screaming at me and telling me 'DON't TOUCH ME!!!' .....ugh. (I had my hands on his chest cuz he kept trying to make a break for it and my other 2 kids were in the family room.) I should have seen it, but didn't. I only seem to notice the small jerks or the tonic clonics. Meanwhile, he's been eating everything in site and gained 20 lbs in 4 weeks!!!! OMG! Neuro is concerned. It would seem the seizures are triggering an Obsessive Compulsive Disorder (OCD) response, even with FOOD! I mean he SWALLOWED A POUND OF ROAST BEEF! Then the turkey, then the ham, perogies, hamburger, potatoes, pizza, cheese block etc....in a matter of MINUTES! Totally nuts!!! So, we're upping the carbatrol. Who knows whether or not it will work. School is a problem. They say they 'understand', but since THEY don't see the seizures, they have a hard time understanding why he's forgetting stuff. DS13 doesn't even remember 3 years of his life. He doesn't remember those birthdays either. How is going to remember 7th grade???? I often wonder if that's why he acts like he's 9 yrs old. I think what if he has lost so much time, he just hasn't had the chance to catch up with the other kids? It's really hard knowing that there have been some great times in there too and he won't remember them. Anyway, just thought I'd let you all know, I guess it WAS the Epilepsy triggering that insanity the other day. I just wish it would go away and let him lead a normal life.