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Beyond insane easy child update GRRR ACK!
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<blockquote data-quote="dreamer" data-source="post: 173809" data-attributes="member: 1697"><p>OK um...trying to find a way to say whats going thru my head, amidst all the swirling? </p><p></p><p>Um.....lets see, first yeah, I am familiar with picture lines, and had told PCs boyfriend a few days ago that would be the next step, I was sure. um..yes, easy child also HAS standard form pills of zofran PLUS dissolving form, too. and now has phenergan pills AND henergan suppositories....PLUS prevacid AND pepcid. all on board, all going into use every 3-4 hours, every 3-4 hours SOMETHING is used, per a schedule. TODAY it seems to be finally working! YAY! Prior to now, she still got 1 new medication of these dded in for each ER visit. ANd yes, she has been devotedly sipping all along the way, ginger ale (which sha hates) tried both regular and flat and lukewarm....coke, same thing, both carbonated and flat...also both have been made into popsickles for her to try THAT way....jello- as jello and as liquid....chicken broth, saltines, ginger snaps..pretzels, plain baked potatos, plain boiled mashed plain. Baby food fruit, bananas, peaches and pears....(seperately) plain rice, plain rice krispies dry, plain baby rice cereal, watermelon, .......not one single thing has styed down more than 30 seconds for 3 weeks. and often even in wee hours of nite, she wakes to vomit, and vomits even if there was nothing going in to vomit....vomits bile.</p><p></p><p>Parenteral feeding is NOT 100% sound nutrition, long term it does have defieciencies that can be problematic....but I knew useing a picture or central line was coming up to be used. I am a nurse, too, altho I have not worked in several years, and never worked in hospital, only nurseing home. and never for young persons, mostly only geriatrics, Alzheimers and Hospice mostly. </p><p> </p><p></p><p>Yes, after this Dr K person ranted in my face and said flat out no, there was nothing at all about ER at all in PCs cahrts, she opened the chart and THERE IT WAS......in the chart. Now first off Dr Z DID send us to ER for first rehydration....so, THAT should have been in the notes dr z wrote re our last office visit. SO dr k has been very very wrong, either blatantly negligent Occupational Therapist (OT) just a huge liar or whatever about so many things now. Now that the immediate cisis is over, no, easy child said today she is NOT going there if she ever has to see dr K again at all for anything. She is not sure yet about dr y.we have not met dr y..only easy child spoke to dr y on phone. and there is still one more in the practice we are supposed to have to see, but.....I do not know. now easy child says if it is not going to be ONLY dr z, she is NOT going and she said even if no other docs will take her, she could not have worse prenatal care even if she has none. Ironic on one hand becuz easy child dragged all her preg friends to their docs appts, demanded her friends all get in ASAP instead of waiting around hemming and hawing afraid of their mothers reactions to their pregnancies. and so far our first 2 top choices declined to accept us. </p><p>Yes, I have much personal experience with docs who are not ....um...decent responsible persons etc. My son has one eye gone becuz of it. My friends child is dead becuz of a very very similar scenario.....he was 6. Yes my sons CP and heterotopia was undx'ed until he was almost 9 yrs old becuz I was patted on the head and told I was looking for problems where there weren;t any. </p><p></p><p>PCs boyfriends mom is not onboard....PCs boyfriends dads new girlfriend (easy child boyfriend parents are recently divorced) used to work with me. She has not yet been on board, BUT I am calling her and bringing her onboard. She is far more confrontational than I am, far more "in your face" I am polite and gentle and try to be assertive, but....the situation is calling for bigger guns than I personally have been blessed with. </p><p></p><p>Yes, I understand her heart and kidneys are in danger, dehydration is a high leading cause of death. I even aid to dr k when I was in office that hey, hello, she had to have ekg cuz yes, we were not being hysetrical, she had cardiac symptoms in er. and now dr k we have kidney symptoms. Check her ketones check her blood pressure, I alredy have. and in a week she has lost 20% of her body weight. </p><p>Dr z has never been anything but wonderful, never critical, never judgemental, always on top of things. I had 14 miscarriages, and had to have injections daily with my son and she was my dr, she was fresh out of school then. easy child and difficult child adore dr z. I heard today at store that dr y.who we have not yet met? is especially mean to younger mothers....I am NOT in any hurry to MEET dr y. neither is easy child. and dr z, everyone says she is an awesome wonderful dr. </p><p>BUT I just am sick of this entire facility. the docs offices/clinic and the other facility, the hospital. they are 2 different corporations, but, I hate both. Yes, I am continueing to try to find a different dr. </p><p>BUT we are nervous becuz any others will be quite far traveling.and in case of emergency it could be a problem. </p><p>I think I posted more about ti all on a thread I posted earlier today about the storms here? LOL- yes, I am so overloaded, I am even more disorganized in writing than my usual disorganization. </p><p></p><p>I just now caught myself up to date on simple routine daily chores. <sigh> </p><p>easy child is doing really good tonite, ate some dry cereal, kept it down, drank 32 oz gatorade! Kept it down, too! I have some turkey plain for her for tomorrow.....she said chicken is a stronger smell than turkey.</p></blockquote><p></p>
[QUOTE="dreamer, post: 173809, member: 1697"] OK um...trying to find a way to say whats going thru my head, amidst all the swirling? Um.....lets see, first yeah, I am familiar with picture lines, and had told PCs boyfriend a few days ago that would be the next step, I was sure. um..yes, easy child also HAS standard form pills of zofran PLUS dissolving form, too. and now has phenergan pills AND henergan suppositories....PLUS prevacid AND pepcid. all on board, all going into use every 3-4 hours, every 3-4 hours SOMETHING is used, per a schedule. TODAY it seems to be finally working! YAY! Prior to now, she still got 1 new medication of these dded in for each ER visit. ANd yes, she has been devotedly sipping all along the way, ginger ale (which sha hates) tried both regular and flat and lukewarm....coke, same thing, both carbonated and flat...also both have been made into popsickles for her to try THAT way....jello- as jello and as liquid....chicken broth, saltines, ginger snaps..pretzels, plain baked potatos, plain boiled mashed plain. Baby food fruit, bananas, peaches and pears....(seperately) plain rice, plain rice krispies dry, plain baby rice cereal, watermelon, .......not one single thing has styed down more than 30 seconds for 3 weeks. and often even in wee hours of nite, she wakes to vomit, and vomits even if there was nothing going in to vomit....vomits bile. Parenteral feeding is NOT 100% sound nutrition, long term it does have defieciencies that can be problematic....but I knew useing a picture or central line was coming up to be used. I am a nurse, too, altho I have not worked in several years, and never worked in hospital, only nurseing home. and never for young persons, mostly only geriatrics, Alzheimers and Hospice mostly. Yes, after this Dr K person ranted in my face and said flat out no, there was nothing at all about ER at all in PCs cahrts, she opened the chart and THERE IT WAS......in the chart. Now first off Dr Z DID send us to ER for first rehydration....so, THAT should have been in the notes dr z wrote re our last office visit. SO dr k has been very very wrong, either blatantly negligent Occupational Therapist (OT) just a huge liar or whatever about so many things now. Now that the immediate cisis is over, no, easy child said today she is NOT going there if she ever has to see dr K again at all for anything. She is not sure yet about dr y.we have not met dr y..only easy child spoke to dr y on phone. and there is still one more in the practice we are supposed to have to see, but.....I do not know. now easy child says if it is not going to be ONLY dr z, she is NOT going and she said even if no other docs will take her, she could not have worse prenatal care even if she has none. Ironic on one hand becuz easy child dragged all her preg friends to their docs appts, demanded her friends all get in ASAP instead of waiting around hemming and hawing afraid of their mothers reactions to their pregnancies. and so far our first 2 top choices declined to accept us. Yes, I have much personal experience with docs who are not ....um...decent responsible persons etc. My son has one eye gone becuz of it. My friends child is dead becuz of a very very similar scenario.....he was 6. Yes my sons CP and heterotopia was undx'ed until he was almost 9 yrs old becuz I was patted on the head and told I was looking for problems where there weren;t any. PCs boyfriends mom is not onboard....PCs boyfriends dads new girlfriend (easy child boyfriend parents are recently divorced) used to work with me. She has not yet been on board, BUT I am calling her and bringing her onboard. She is far more confrontational than I am, far more "in your face" I am polite and gentle and try to be assertive, but....the situation is calling for bigger guns than I personally have been blessed with. Yes, I understand her heart and kidneys are in danger, dehydration is a high leading cause of death. I even aid to dr k when I was in office that hey, hello, she had to have ekg cuz yes, we were not being hysetrical, she had cardiac symptoms in er. and now dr k we have kidney symptoms. Check her ketones check her blood pressure, I alredy have. and in a week she has lost 20% of her body weight. Dr z has never been anything but wonderful, never critical, never judgemental, always on top of things. I had 14 miscarriages, and had to have injections daily with my son and she was my dr, she was fresh out of school then. easy child and difficult child adore dr z. I heard today at store that dr y.who we have not yet met? is especially mean to younger mothers....I am NOT in any hurry to MEET dr y. neither is easy child. and dr z, everyone says she is an awesome wonderful dr. BUT I just am sick of this entire facility. the docs offices/clinic and the other facility, the hospital. they are 2 different corporations, but, I hate both. Yes, I am continueing to try to find a different dr. BUT we are nervous becuz any others will be quite far traveling.and in case of emergency it could be a problem. I think I posted more about ti all on a thread I posted earlier today about the storms here? LOL- yes, I am so overloaded, I am even more disorganized in writing than my usual disorganization. I just now caught myself up to date on simple routine daily chores. <sigh> easy child is doing really good tonite, ate some dry cereal, kept it down, drank 32 oz gatorade! Kept it down, too! I have some turkey plain for her for tomorrow.....she said chicken is a stronger smell than turkey. [/QUOTE]
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Beyond insane easy child update GRRR ACK!
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