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Day 4 of Work-Up and Registry Info
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<blockquote data-quote="PonyGirl" data-source="post: 358648" data-attributes="member: 187"><p>husband visited kids at RMH yesterday, reports Baby J in great spirits, running up & down the hallways with Mom close on his tail <img src="data:image/gif;base64,R0lGODlhAQABAIAAAAAAAP///yH5BAEAAAAALAAAAAABAAEAAAIBRAA7" class="smilie smilie--sprite smilie--sprite8" alt=":D" title="Big Grin :D" loading="lazy" data-shortname=":D" /> He loved all the attention on Monday, by Wednesday he was about done with doctors.</p><p> </p><p>Given a platelet transfusion yesterday, kids were impressed with how easy it went! Generally, that has been an awful battle and a team is needed to hold arms & legs down while putting in the IV. Yesterday, Baby J sat on difficult children lap, and the IV was in before either of them realized it was coming! daughter in law said, "I'm coming back HERE if he ever needs another IV!" </p><p> </p><p>They are set up quite well at RMH, I suspect it's nicer diggs than their apartment <img src="/community/styles/default/xenforo/smilies/tongue.png" class="smilie" loading="lazy" alt=":tongue:" title="tongue :tongue:" data-shortname=":tongue:" /> Certainly newer and in better shape. husband will visit again today & take them to pick up some groceries.</p><p> </p><p>Today Baby J was put under general anesthesia and a sample was taken from his hip bone for biopsy. His central line was also put in, and will remain for four months.</p><p> </p><p>If anyone is interested in how to help, go to Be The Match dot com. There you can sign up to be put on the National Bone Marrow Registry. Our donor was found there, none of us family were a match, but several good matches were found within a few days for us. So, I promptly signed up!</p><p> </p><p>Peace</p></blockquote><p></p>
[QUOTE="PonyGirl, post: 358648, member: 187"] husband visited kids at RMH yesterday, reports Baby J in great spirits, running up & down the hallways with Mom close on his tail :happy: He loved all the attention on Monday, by Wednesday he was about done with doctors. Given a platelet transfusion yesterday, kids were impressed with how easy it went! Generally, that has been an awful battle and a team is needed to hold arms & legs down while putting in the IV. Yesterday, Baby J sat on difficult children lap, and the IV was in before either of them realized it was coming! daughter in law said, "I'm coming back HERE if he ever needs another IV!" They are set up quite well at RMH, I suspect it's nicer diggs than their apartment :raspberry-tounge: Certainly newer and in better shape. husband will visit again today & take them to pick up some groceries. Today Baby J was put under general anesthesia and a sample was taken from his hip bone for biopsy. His central line was also put in, and will remain for four months. If anyone is interested in how to help, go to Be The Match dot com. There you can sign up to be put on the National Bone Marrow Registry. Our donor was found there, none of us family were a match, but several good matches were found within a few days for us. So, I promptly signed up! Peace [/QUOTE]
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