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Dealing with the fear
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<blockquote data-quote="tiredmommy" data-source="post: 468842" data-attributes="member: 1722"><p>Thanks everyone... I think I just need to find a sense of acceptance so I can live with this. The worst (or best, really) thing is that she looks perfectly normal... until something goes wrong. I don't want to limit her for those few times a year that things get dicey. That's not fair to Duckie and robs her of her potential. And also, the fact that testing has not revealed the source of her most severe reactions is incredibly stressful. I've started to think of her having a threshold for typical allergies and she shows signs of anaphylaxis once the threshold is past whereas other people have severe reactions to a specific thing or things: peanuts, bees, shellfish, etc. She apparently isn't allergic to the most common allergens that cause severe reactions. So, I have to watch her like a hawk for signs that her symptoms are worsening.</p><p></p><p>I know a mom who has a daughter that is severely allergic to peanuts and tree nuts. I mean, <em>severely</em>. She said that she wouldn't trade places with me because at least she knows what to avoid and Duckie is a ticking time bomb. And Duckie's school nurse asked me how we had managed to avoid using an epipen... I said I immediately dose her with benadryl when she has anything more than a minor reaction... we don't play wait and see if my gut tells me something is brewing. She agrees with me too... She saw Duckie come in last week with a tiny little hive on her lower throat. She worked with a few other kids that were there before Duckie and they exploded to cover her throat and spread onto her chin withing about 5 minutes time. Needless to say, I got a call that she had dosed Duckie with benadryl.</p><p></p><p>Sorry for the rambling this morning.</p></blockquote><p></p>
[QUOTE="tiredmommy, post: 468842, member: 1722"] Thanks everyone... I think I just need to find a sense of acceptance so I can live with this. The worst (or best, really) thing is that she looks perfectly normal... until something goes wrong. I don't want to limit her for those few times a year that things get dicey. That's not fair to Duckie and robs her of her potential. And also, the fact that testing has not revealed the source of her most severe reactions is incredibly stressful. I've started to think of her having a threshold for typical allergies and she shows signs of anaphylaxis once the threshold is past whereas other people have severe reactions to a specific thing or things: peanuts, bees, shellfish, etc. She apparently isn't allergic to the most common allergens that cause severe reactions. So, I have to watch her like a hawk for signs that her symptoms are worsening. I know a mom who has a daughter that is severely allergic to peanuts and tree nuts. I mean, [I]severely[/I]. She said that she wouldn't trade places with me because at least she knows what to avoid and Duckie is a ticking time bomb. And Duckie's school nurse asked me how we had managed to avoid using an epipen... I said I immediately dose her with benadryl when she has anything more than a minor reaction... we don't play wait and see if my gut tells me something is brewing. She agrees with me too... She saw Duckie come in last week with a tiny little hive on her lower throat. She worked with a few other kids that were there before Duckie and they exploded to cover her throat and spread onto her chin withing about 5 minutes time. Needless to say, I got a call that she had dosed Duckie with benadryl. Sorry for the rambling this morning. [/QUOTE]
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