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DevPed responded to my letter.
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<blockquote data-quote="Shari" data-source="post: 134144" data-attributes="member: 1848"><p>Mom-</p><p>How about if we set up difficult child for another neuropsychologist assessment? They will do IQ</p><p> </p><p>testing and look closely at where he falls diagnostically now. My gut</p><p>feeling is severe ADHD. I think Pervasive Developmental Disorder (PDD) is often over used and certainly</p><p>there is an overlap with severe ADHD. He most certainly does not have</p><p>full blown autism. He seems way too social to me!</p><p> </p><p>Was NewPsych going to see him back?</p><p> </p><p>If you are OK with neuropsychologist I will set this up with their office here</p><p>at Autism center</p><p> </p><p>DevPed</p><p> </p><p> </p><p>And my response back to her...</p><p> </p><p>I'm all for whatever we can do to know more about what</p><p>we are dealing with and make sure he's getting what he</p><p>needs to give him the best shot at a happy life. I</p><p>agree with BehaviorTherapist in that I don't feel we really know</p><p>what we are dealing with. </p><p> </p><p>He may well be ADHD, however, for me personally, its</p><p>just not explaining other facets of his behavior -</p><p>such as why he goes thru periods of extreme aggression</p><p>for no apparent reason, or why I still can not go to</p><p>work or even the grocery store and leave him at home</p><p>instead of taking him to the sitter or school - he can</p><p>not handle that change of routine even tho the end</p><p>result is the same - I've left him somewhere. But the</p><p>anxiety from that change sends him through the roof. </p><p>Or why his sleep habits are so sporadic. And as NewPsych</p><p>pointed out, the attention aspect of ADHD doesn't</p><p>fit, either. Hyper and impulsive, yes, but in a</p><p>setting where he can wiggle, his attention is not a</p><p>problem much at all anymore (try to make him sit still</p><p>and it becomes a problem real fast). Pervasive Developmental Disorder (PDD) doesn't</p><p>explain it all, either, but it catches more of the odd</p><p>stuff he does, his early development (when he was NOT</p><p>social), and possibly his odd attachment. B/P catches</p><p>his aggression but not necessarily the other things. </p><p> </p><p>I don't know what it is, but I think he's had enough</p><p>people suggesting similar things that we're doing him</p><p>a disservice to not look into them - looking way back</p><p>to when he was 2 and the first doctor pointed us to you.</p><p> </p><p>His brother was diagnosed ADHD and I always just felt</p><p>that was not right, but I never questioned anyone. </p><p>Until he was hearing voices and suicidal at 14. </p><p>Imagine what we could have done for him if I'd have</p><p>followed my gut when he was 8 instead of 14!</p><p> </p><p>These boys' father is still a non-functional adult. </p><p>His parents money is the only thing that has kept him</p><p>out of prison (and they'll be happy to agree with that</p><p>statement). I just want my little boy to have a</p><p>better chance in life and give him every shot I can at</p><p>it. </p><p> </p><p>I tried to have the neuropsychologist evaluation done some time</p><p>ago, but it was cut short and I think they focused</p><p>exclusively on autism, which I think we all agree</p><p>isn't the case. I am all for having another one done,</p><p>so long as they are looking at the big picture this</p><p>time if you want to set it up.</p><p> </p><p>He will see NewPsyche again in 3 months. He will</p><p>continue to see BehaviorTherapist in the interim.</p><p> </p><p>On the Tenex, we're still trying to work with it. </p><p>When I give him enough to slow him down, he's terribly</p><p>whiney and goes to bed way too early. Even teachers</p><p>agree, we'd rather have hyper than whiney. But so far</p><p>I haven't been able to cut it back enough to slow him</p><p>down with it seeming to be too much. Right now we're</p><p>trying to work with 1/8 tablet.</p></blockquote><p></p>
[QUOTE="Shari, post: 134144, member: 1848"] Mom- How about if we set up difficult child for another neuropsychologist assessment? They will do IQ testing and look closely at where he falls diagnostically now. My gut feeling is severe ADHD. I think Pervasive Developmental Disorder (PDD) is often over used and certainly there is an overlap with severe ADHD. He most certainly does not have full blown autism. He seems way too social to me! Was NewPsych going to see him back? If you are OK with neuropsychologist I will set this up with their office here at Autism center DevPed And my response back to her... I'm all for whatever we can do to know more about what we are dealing with and make sure he's getting what he needs to give him the best shot at a happy life. I agree with BehaviorTherapist in that I don't feel we really know what we are dealing with. He may well be ADHD, however, for me personally, its just not explaining other facets of his behavior - such as why he goes thru periods of extreme aggression for no apparent reason, or why I still can not go to work or even the grocery store and leave him at home instead of taking him to the sitter or school - he can not handle that change of routine even tho the end result is the same - I've left him somewhere. But the anxiety from that change sends him through the roof. Or why his sleep habits are so sporadic. And as NewPsych pointed out, the attention aspect of ADHD doesn't fit, either. Hyper and impulsive, yes, but in a setting where he can wiggle, his attention is not a problem much at all anymore (try to make him sit still and it becomes a problem real fast). Pervasive Developmental Disorder (PDD) doesn't explain it all, either, but it catches more of the odd stuff he does, his early development (when he was NOT social), and possibly his odd attachment. B/P catches his aggression but not necessarily the other things. I don't know what it is, but I think he's had enough people suggesting similar things that we're doing him a disservice to not look into them - looking way back to when he was 2 and the first doctor pointed us to you. His brother was diagnosed ADHD and I always just felt that was not right, but I never questioned anyone. Until he was hearing voices and suicidal at 14. Imagine what we could have done for him if I'd have followed my gut when he was 8 instead of 14! These boys' father is still a non-functional adult. His parents money is the only thing that has kept him out of prison (and they'll be happy to agree with that statement). I just want my little boy to have a better chance in life and give him every shot I can at it. I tried to have the neuropsychologist evaluation done some time ago, but it was cut short and I think they focused exclusively on autism, which I think we all agree isn't the case. I am all for having another one done, so long as they are looking at the big picture this time if you want to set it up. He will see NewPsyche again in 3 months. He will continue to see BehaviorTherapist in the interim. On the Tenex, we're still trying to work with it. When I give him enough to slow him down, he's terribly whiney and goes to bed way too early. Even teachers agree, we'd rather have hyper than whiney. But so far I haven't been able to cut it back enough to slow him down with it seeming to be too much. Right now we're trying to work with 1/8 tablet. [FONT=Courier][/FONT] [/QUOTE]
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