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<blockquote data-quote="dreamer" data-source="post: 196192" data-attributes="member: 1697"><p>My oldest child is on soc sec for her disability, and she was approved her first application, we used school records and her IEPS and all her neuropsychologist evaluations etc. My daughters GAF score is usually rather low, about 30-35 at her best. Altho we did not get her on disability until she was 18 for a variety of reasons actually NOT related to her disability OR "her future" Partly it was becuz my husband gets disability due to military service connected disability and I also now get disability due to serious systemic rheumatic illness and Lupus....so our datrs dependants benefits prior to age 18 were more than she would have gotten if she had gotten her own disability. (and she would have lost her dependants benefits) </p><p>Both my husband and I got our soc sec with only one attempt, but we both did have to see a soc sec examiner. </p><p></p><p>My thoughts re disability blocking possible future military enlistment are that if your child is THAT symptomatic and it interferes with her life enough to get soc sec, then it is highly doubtful she would ever be functional enough to have any business joining any branch of military.</p><p>Many insurance companies will not insure persons with certain diagnosises....and where I am bipolar was a diagnosis that made my dtr not be able to get private health insurance policy and coverage, and ADD was a similar exclusion for my son. But it did not matter if they had soc sec or not - the diagnosis was made by docs and on record at docs and that was all it took to exclude them from private medical insurance coverage. </p><p></p><p>SSI will be based on your childs level of functioning . Can your child attend school? Can your child do any self care at all? </p><p>Those are questions you will need tohave concrete answers for and documentation to support your answers. In order to get ssi your childs level of functioning will need tobe severely impacted by her illness. BUT if she gets ssi, it will be for HER living needs, not yours, and it will not be a huge amount of money. Doubtful you could both live on it. And you would have to provide reciepts and things annually to show you did spend the money on HER needs. </p><p></p><p>Yes, it IS difficult, and can be impossible. I have spoken at NAMI meetings and at my state capital and at a Federal commission about this very problem. While I AM married, my husband is quite ill and required 24-7 care, and 2 of my 3 kids are also disabled. My husband family all passed away YEARS ago, and my family and I have been totally estranged for decades. Before I became so ill, and before my husband benefits kicked in, I was stretched to the max, trying to support all of us and also do the daily care required for my husband and kids. I was constantly conflicted and torn, and my job was always in jeopardy due to me haveing to leave so often and my husband and kids were at risk far too often becuz I did have to work. It was only by the grace of G-d that no huge major tragedy occured dureing that time. It was truly awful, and I never slept more than 3 hours a nite and even had surgery in day surgery with my kids in the waiting area becuz I had noone to watch them while I had surgery. The hospital sw approved that when SHE tried in vain to help me find someone, respite, ANYTHING and she also came up empty handed. </p><p>My own docs say they believe it was that time of my life and how busy and difficult it was and how stressful etc that helped contribute to my serious illness.And then I wound up a total quadriplegic for a couple years. </p><p></p><p>I say go ahead and TRY, becuz any help at all is good. </p><p>Have you talked to your county health dept? Your county mental health dept? Your local NAMI? Does your area have WRAP around services? SASS? Respite? For a time we did qualify for respite in our home (no overnites) for 8 hours a week.....(altho staffing for respite here at that time was nil, so qualifying was moot) </p><p>Talk to your local resources, beg for help----becuz this is a common problem for many families.</p><p></p><p>Maybe some people DO struggle thru it, BUT that level of struggle comes at a VERY high cost. I was a VERY hard working and very productive member of society, I am a nurse, I advocated a LOT, I volunteered a LOT all my life. When my illness hit, it was like I ran face first into a solid brick wall at 240 MPH. Yes, I DID struggle on my own with all my lifes challenges.....and I did it for many many years before it caught up with me. But when it DID catch up with me, my youngest child was still quite young. And even tho I then become so ill myself, my husband and kids needs did not end. </p><p></p><p>Maybe there is some possibility you could get a roommate, maybe one with a special needs child of her own, and the 2 of you could pool your resources and share the responsibilitys, work diff shifts from each other? Maybe your county health dept will have ideas. I wish you luck. I know it's hard.</p></blockquote><p></p>
[QUOTE="dreamer, post: 196192, member: 1697"] My oldest child is on soc sec for her disability, and she was approved her first application, we used school records and her IEPS and all her neuropsychologist evaluations etc. My daughters GAF score is usually rather low, about 30-35 at her best. Altho we did not get her on disability until she was 18 for a variety of reasons actually NOT related to her disability OR "her future" Partly it was becuz my husband gets disability due to military service connected disability and I also now get disability due to serious systemic rheumatic illness and Lupus....so our datrs dependants benefits prior to age 18 were more than she would have gotten if she had gotten her own disability. (and she would have lost her dependants benefits) Both my husband and I got our soc sec with only one attempt, but we both did have to see a soc sec examiner. My thoughts re disability blocking possible future military enlistment are that if your child is THAT symptomatic and it interferes with her life enough to get soc sec, then it is highly doubtful she would ever be functional enough to have any business joining any branch of military. Many insurance companies will not insure persons with certain diagnosises....and where I am bipolar was a diagnosis that made my dtr not be able to get private health insurance policy and coverage, and ADD was a similar exclusion for my son. But it did not matter if they had soc sec or not - the diagnosis was made by docs and on record at docs and that was all it took to exclude them from private medical insurance coverage. SSI will be based on your childs level of functioning . Can your child attend school? Can your child do any self care at all? Those are questions you will need tohave concrete answers for and documentation to support your answers. In order to get ssi your childs level of functioning will need tobe severely impacted by her illness. BUT if she gets ssi, it will be for HER living needs, not yours, and it will not be a huge amount of money. Doubtful you could both live on it. And you would have to provide reciepts and things annually to show you did spend the money on HER needs. Yes, it IS difficult, and can be impossible. I have spoken at NAMI meetings and at my state capital and at a Federal commission about this very problem. While I AM married, my husband is quite ill and required 24-7 care, and 2 of my 3 kids are also disabled. My husband family all passed away YEARS ago, and my family and I have been totally estranged for decades. Before I became so ill, and before my husband benefits kicked in, I was stretched to the max, trying to support all of us and also do the daily care required for my husband and kids. I was constantly conflicted and torn, and my job was always in jeopardy due to me haveing to leave so often and my husband and kids were at risk far too often becuz I did have to work. It was only by the grace of G-d that no huge major tragedy occured dureing that time. It was truly awful, and I never slept more than 3 hours a nite and even had surgery in day surgery with my kids in the waiting area becuz I had noone to watch them while I had surgery. The hospital sw approved that when SHE tried in vain to help me find someone, respite, ANYTHING and she also came up empty handed. My own docs say they believe it was that time of my life and how busy and difficult it was and how stressful etc that helped contribute to my serious illness.And then I wound up a total quadriplegic for a couple years. I say go ahead and TRY, becuz any help at all is good. Have you talked to your county health dept? Your county mental health dept? Your local NAMI? Does your area have WRAP around services? SASS? Respite? For a time we did qualify for respite in our home (no overnites) for 8 hours a week.....(altho staffing for respite here at that time was nil, so qualifying was moot) Talk to your local resources, beg for help----becuz this is a common problem for many families. Maybe some people DO struggle thru it, BUT that level of struggle comes at a VERY high cost. I was a VERY hard working and very productive member of society, I am a nurse, I advocated a LOT, I volunteered a LOT all my life. When my illness hit, it was like I ran face first into a solid brick wall at 240 MPH. Yes, I DID struggle on my own with all my lifes challenges.....and I did it for many many years before it caught up with me. But when it DID catch up with me, my youngest child was still quite young. And even tho I then become so ill myself, my husband and kids needs did not end. Maybe there is some possibility you could get a roommate, maybe one with a special needs child of her own, and the 2 of you could pool your resources and share the responsibilitys, work diff shifts from each other? Maybe your county health dept will have ideas. I wish you luck. I know it's hard. [/QUOTE]
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