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Failure to Thrive
Don’t want to be B’s mom anymore
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<blockquote data-quote="B’smom" data-source="post: 739524" data-attributes="member: 23359"><p>There’s a child much younger than B at my work that is diagnosed. I have seen children as young as 2-3 diagnosed in our area but they all have “typical” autism. I think it’s more giving that specific label a child, it’s hard to take it away vs a mental health diagnosis. Which is dumb. So they don’t like to give it out. </p><p> </p><p>With my background, I worked 1:1 with B and “forced” him to come out of his shell so to say. I didn’t let him stay in the corner, I encouraged him to play, I made him use words before he got what he wanted. My belief is that with autism, is that some people can be pulled out and live typical lives. Look at Temple Grandin. She’s absolutely amazing. My best friends brother has autism, he’s corky but lives a normal life. Engaged and has a job, a house etc. Most people would never know. </p><p></p><p>Part of me hates myself for working with B before a diagnosis was given. The doctors didn’t see what I saw at one, two, three years old. They saw him at 4 after 3 years of 1:1 support both at home and at child care. </p><p></p><p>We receive funding from the government with his diagnoses, but the agencies don’t want/can’t to help. So for example, there’s a child respite home in our area. But they tell me because his IQ is normal and his behaviours are severe, they won’t take him. I’ve called government agencies and they all tell me that the home is within their rights. So I have all this money and no one to help. And because the money (3500 a year which really isn’t a lot) comes from the government, I can only use it for certain services. So I can use it for speech therapy, I can’t use it for testing. I can use it for respite services, I can use it to have someone clean my house (). I’d rather clean my own house and save $160 an hour for speech therapy. </p><p></p><p></p><p>Thank you both for replying and for the support. It feels nice not to feel alone anymore. To get that off my chest with people who have been or are in similar situations. I am in Ontario, so I will look up that doctor at western university. </p><p></p><p>B is currently surrounded by psychiatrists and psychologists, Occupational Therapist (OT)’s and ST’s, etc. I’m hoping they’ll see what we see. Since most doctors have spent a total of 6 hours max and then diagnosis him. Where they’ll be spending weeks with him.</p></blockquote><p></p>
[QUOTE="B’smom, post: 739524, member: 23359"] There’s a child much younger than B at my work that is diagnosed. I have seen children as young as 2-3 diagnosed in our area but they all have “typical” autism. I think it’s more giving that specific label a child, it’s hard to take it away vs a mental health diagnosis. Which is dumb. So they don’t like to give it out. With my background, I worked 1:1 with B and “forced” him to come out of his shell so to say. I didn’t let him stay in the corner, I encouraged him to play, I made him use words before he got what he wanted. My belief is that with autism, is that some people can be pulled out and live typical lives. Look at Temple Grandin. She’s absolutely amazing. My best friends brother has autism, he’s corky but lives a normal life. Engaged and has a job, a house etc. Most people would never know. Part of me hates myself for working with B before a diagnosis was given. The doctors didn’t see what I saw at one, two, three years old. They saw him at 4 after 3 years of 1:1 support both at home and at child care. We receive funding from the government with his diagnoses, but the agencies don’t want/can’t to help. So for example, there’s a child respite home in our area. But they tell me because his IQ is normal and his behaviours are severe, they won’t take him. I’ve called government agencies and they all tell me that the home is within their rights. So I have all this money and no one to help. And because the money (3500 a year which really isn’t a lot) comes from the government, I can only use it for certain services. So I can use it for speech therapy, I can’t use it for testing. I can use it for respite services, I can use it to have someone clean my house (). I’d rather clean my own house and save $160 an hour for speech therapy. Thank you both for replying and for the support. It feels nice not to feel alone anymore. To get that off my chest with people who have been or are in similar situations. I am in Ontario, so I will look up that doctor at western university. B is currently surrounded by psychiatrists and psychologists, Occupational Therapist (OT)’s and ST’s, etc. I’m hoping they’ll see what we see. Since most doctors have spent a total of 6 hours max and then diagnosis him. Where they’ll be spending weeks with him. [/QUOTE]
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