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General Parenting
Drove to ER yesterday, just wasn't sure what to do....
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<blockquote data-quote="buddy" data-source="post: 519416" data-attributes="member: 12886"><p>I will try. He is doing ok...keeps vacillating between cooperation and wanting to earn being out again and saying I have to let him go now because he deserves it because he will show me he can do it if I would only give him a chance right NOW etc. But for the last couple of hours things have been really good. I switched up his transition from Occupational Therapist (OT) to my car by pulling up and he just came out and into the car. I guess he flipped the lights off in the lobby but they just turned them back on. They said no biggie, it was the first time. So, I think if they let it go and not make a big deal if it then things should be ok (I have been there when other kids do that or hit the electronic door over and over and many other things... place is crawling with difficult child's and others too). </p><p></p><p>I have heard nothing about the other school today.</p><p></p><p>The legal advocate has called but I missed her call and called her back but we are playing phone tag. </p><p></p><p>He has twice today asked me for things and said thanks and I love you as if nothing else is going on.... it really seems he just loses control when a layer of stress is added to this stuff that is sizzling underneath. I pray it is a good sign that he will do better once we have things settled.</p><p></p><p>I was looking up some of the medications he has had trouble with to see which ones are related to his enzyme deficits. Turns out Risperdal and pain medications (he had been given some for a smashed finger and nothing helped,now we now why) along with prozac. I found an article that lists many antipsychotics so I am not counting on those to work. Maybe there are some that metabolize differently. Luckily that is one thing our new doctor has specifically worked with back when she was doing a residency at Mayo Clinic.</p><p></p><p>Well, for today so far, no aggression, just blurting. And I am holding on to the positive times we have had today... we had NONE yesterday really. Just neutral but no nice talk at all. </p><p></p><p>It has been a challenge for me to be present in what I need to do today. This past several days has taken a lot out of me. Sorry I have not been as responsive on the board. I will try to do better. </p><p></p><p>Thanks for the support as usual. It keeps me in the game!</p></blockquote><p></p>
[QUOTE="buddy, post: 519416, member: 12886"] I will try. He is doing ok...keeps vacillating between cooperation and wanting to earn being out again and saying I have to let him go now because he deserves it because he will show me he can do it if I would only give him a chance right NOW etc. But for the last couple of hours things have been really good. I switched up his transition from Occupational Therapist (OT) to my car by pulling up and he just came out and into the car. I guess he flipped the lights off in the lobby but they just turned them back on. They said no biggie, it was the first time. So, I think if they let it go and not make a big deal if it then things should be ok (I have been there when other kids do that or hit the electronic door over and over and many other things... place is crawling with difficult child's and others too). I have heard nothing about the other school today. The legal advocate has called but I missed her call and called her back but we are playing phone tag. He has twice today asked me for things and said thanks and I love you as if nothing else is going on.... it really seems he just loses control when a layer of stress is added to this stuff that is sizzling underneath. I pray it is a good sign that he will do better once we have things settled. I was looking up some of the medications he has had trouble with to see which ones are related to his enzyme deficits. Turns out Risperdal and pain medications (he had been given some for a smashed finger and nothing helped,now we now why) along with prozac. I found an article that lists many antipsychotics so I am not counting on those to work. Maybe there are some that metabolize differently. Luckily that is one thing our new doctor has specifically worked with back when she was doing a residency at Mayo Clinic. Well, for today so far, no aggression, just blurting. And I am holding on to the positive times we have had today... we had NONE yesterday really. Just neutral but no nice talk at all. It has been a challenge for me to be present in what I need to do today. This past several days has taken a lot out of me. Sorry I have not been as responsive on the board. I will try to do better. Thanks for the support as usual. It keeps me in the game! [/QUOTE]
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Drove to ER yesterday, just wasn't sure what to do....
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