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Good news - but now the confusion
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<blockquote data-quote="dreamer" data-source="post: 11637" data-attributes="member: 1697"><p>I admit, I did not read any replies to your post here.</p><p></p><p>Yes, it was frustrating for me, too, and for my friend (who does have MS) diagnosis took years....</p><p>Very similar to the kids GFGness- it took SO long to get answers and without answers, how can you be heelped----even bad news is some news and a place to start. </p><p>People forget that so many health issues are not obvious that you can SEE. You can see a person with asthma struggling tobreathe, but you usually do not SEE cancer, MS, RA, Lupus, heart disease, emphsema, kidney failure. hepatitis. Sometimes you can see something as disease progresses, weight loss, poor skin color, weird eye colors etc, but so many illnesses do not have outward obvious things that tell anyone hey I am sick, my pain is real. </p><p>It took years and a surgery (many years before diagnosis) and so many miscarriages before the dots were finally connected and the reason for my 2 years being a quadriplegic were found.</p><p>It is SO frustrating. and my husband was treatd for mental illness for over a decade before they finally realized hey, it is not mental illnes per se- it is brain tumors, low oxygen, </p><p>for my son I begged for MRI almost from birth- he did not get one till age 8----(or was it 9?) and THEN they FINALLY said oh- yeah, he is not faking, he is not just being a brat, no it is not parenting- he has CP and seizures------this AFTER medication trials and tons of behav mod and accusing me of things. </p><p></p><p>When we watch other people, we need to keep it in mind that well- we need to try to give others the benefit of doubt, too. It is easy for us to judge others and think they are just lazy, or do not want to do what normal healthy people should do in our opinion, BUT even when we are under a docs care and even when docs are seeking a diagnosis..it is not always found in a timely manner. and it is so frustrating. </p><p></p><p>what is nice for us now is that there are such tools as MRIs etc.....it helps. It was not really that long ago there was not such a tool to help diagnosis. </p><p>Even now, i heard the length of time to diagnosis for many illnesses is approx 7 years!</p><p></p><p>Hang in there....and remind people most things are not so obvious.....ask them flat out if they think you are faking- and why would they think such a thing? </p><p></p><p>Not knowing? that does stink...once you know you can begin to do something about it. Most people do not like not knowing. </p><p>I feel your frustration. I'm sorry. I hope they can find answers soon.</p></blockquote><p></p>
[QUOTE="dreamer, post: 11637, member: 1697"] I admit, I did not read any replies to your post here. Yes, it was frustrating for me, too, and for my friend (who does have MS) diagnosis took years.... Very similar to the kids GFGness- it took SO long to get answers and without answers, how can you be heelped----even bad news is some news and a place to start. People forget that so many health issues are not obvious that you can SEE. You can see a person with asthma struggling tobreathe, but you usually do not SEE cancer, MS, RA, Lupus, heart disease, emphsema, kidney failure. hepatitis. Sometimes you can see something as disease progresses, weight loss, poor skin color, weird eye colors etc, but so many illnesses do not have outward obvious things that tell anyone hey I am sick, my pain is real. It took years and a surgery (many years before diagnosis) and so many miscarriages before the dots were finally connected and the reason for my 2 years being a quadriplegic were found. It is SO frustrating. and my husband was treatd for mental illness for over a decade before they finally realized hey, it is not mental illnes per se- it is brain tumors, low oxygen, for my son I begged for MRI almost from birth- he did not get one till age 8----(or was it 9?) and THEN they FINALLY said oh- yeah, he is not faking, he is not just being a brat, no it is not parenting- he has CP and seizures------this AFTER medication trials and tons of behav mod and accusing me of things. When we watch other people, we need to keep it in mind that well- we need to try to give others the benefit of doubt, too. It is easy for us to judge others and think they are just lazy, or do not want to do what normal healthy people should do in our opinion, BUT even when we are under a docs care and even when docs are seeking a diagnosis..it is not always found in a timely manner. and it is so frustrating. what is nice for us now is that there are such tools as MRIs etc.....it helps. It was not really that long ago there was not such a tool to help diagnosis. Even now, i heard the length of time to diagnosis for many illnesses is approx 7 years! Hang in there....and remind people most things are not so obvious.....ask them flat out if they think you are faking- and why would they think such a thing? Not knowing? that does stink...once you know you can begin to do something about it. Most people do not like not knowing. I feel your frustration. I'm sorry. I hope they can find answers soon. [/QUOTE]
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Good news - but now the confusion
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