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hard day for difficult child and me.
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<blockquote data-quote="susiestar" data-source="post: 382214" data-attributes="member: 1233"><p>Jen, I can see how this might work with some kids, esp with those who develop anorexia as a way of gaining some control over their lives, but I doubt it will work long term. </p><p> </p><p>Do I understand that she is seeing a therapist for five minutes in four days? What is up with that? She has a HUGE need of therapy to handle this, as does every patient with an eating disorder. What is the usual therapy schedule for patients on this program? Is this some new experimental program? Can they show you statistics of patients who were helped long term with this approach? in my opinion breaking a child is not a goal. Breaking a <em>cycle</em> is a good thing, but breaking a child's spirit is a bad thing. </p><p> </p><p>These people sure don't seem to have much understanding of kids. NONE, not a single one, of the programs Wiz has been in, would use tactics like this. I was leery of leaving him in a locked psychiatric ward the first time, but they were great with him. When he was upset because I wasn't there, they let him call me. Of course being able to call me meant he didn't have much to say, but that is Wiz. They did make him do some things over and over until he did them up to standards, like shower, but otherwise he would just get wet, or just wash whatever part they checked. While they supervised him during "hygiene school" they had 2 men, one who could be seen by a nurse in the hall, and one who could see Wiz and was seen by the other man so that nothing bad happened, and Wiz had swim trunks on during the entire process. The man who was actually talking Wiz through it all was not an orderly (who had little or no training) but was a therapist with all of his degree but his final project done for his doctorate. </p><p> </p><p>There is a whole lot that is not going right with this program. Not letting her have pepto bismal with-o doctor orders is a function of being in a hospital. NO nurse in any hospital can give any medication, rx or OTC, with-o doctor's orders. Many times a doctor will leave orders for some basic things in a chart, but not always. Why couldn't the nurse call the doctor? There MUST be a doctor on call, so next time you (not difficult child) need to contact the nurse and INSIST that they call or page the doctor on call. Don't let them tell you there isn't a doctor - there is ALWAYS a doctor that they can page or call. It may take some time to hear back fromt he docs, but it can be done. Be polite but insistent, the way you were with the night nurse you read out. Cause you were awesome with her.</p><p> </p><p>What are they doing about her anxiety? Do they understand that this is a phobia and not standard anorexia nervosa? Or bulimia? It is caused by extreme fear of choking. I think that if things do not change a TON when you speak to the doctor on Monday that you should take her home and put her in a reg hospital where they will treat her anxiety disorders as they are the root of this. This all sounds like it is not going to be effective in the long run. </p><p> </p><p>I DO think your daughter is capable of the manipulation that svenghandi suggested, of figuring out that she only has to do X to get B, then trying to get B while doing less than X. I just don't think the "sit there until you eat it" is going to work long term. It isn't going to help her see that she is not going to choke, that her throat is designed to let food down to her stomach. </p><p> </p><p>Sending you a PM also.</p><p> </p><p>Hugs!</p></blockquote><p></p>
[QUOTE="susiestar, post: 382214, member: 1233"] Jen, I can see how this might work with some kids, esp with those who develop anorexia as a way of gaining some control over their lives, but I doubt it will work long term. Do I understand that she is seeing a therapist for five minutes in four days? What is up with that? She has a HUGE need of therapy to handle this, as does every patient with an eating disorder. What is the usual therapy schedule for patients on this program? Is this some new experimental program? Can they show you statistics of patients who were helped long term with this approach? in my opinion breaking a child is not a goal. Breaking a [I]cycle[/I] is a good thing, but breaking a child's spirit is a bad thing. These people sure don't seem to have much understanding of kids. NONE, not a single one, of the programs Wiz has been in, would use tactics like this. I was leery of leaving him in a locked psychiatric ward the first time, but they were great with him. When he was upset because I wasn't there, they let him call me. Of course being able to call me meant he didn't have much to say, but that is Wiz. They did make him do some things over and over until he did them up to standards, like shower, but otherwise he would just get wet, or just wash whatever part they checked. While they supervised him during "hygiene school" they had 2 men, one who could be seen by a nurse in the hall, and one who could see Wiz and was seen by the other man so that nothing bad happened, and Wiz had swim trunks on during the entire process. The man who was actually talking Wiz through it all was not an orderly (who had little or no training) but was a therapist with all of his degree but his final project done for his doctorate. There is a whole lot that is not going right with this program. Not letting her have pepto bismal with-o doctor orders is a function of being in a hospital. NO nurse in any hospital can give any medication, rx or OTC, with-o doctor's orders. Many times a doctor will leave orders for some basic things in a chart, but not always. Why couldn't the nurse call the doctor? There MUST be a doctor on call, so next time you (not difficult child) need to contact the nurse and INSIST that they call or page the doctor on call. Don't let them tell you there isn't a doctor - there is ALWAYS a doctor that they can page or call. It may take some time to hear back fromt he docs, but it can be done. Be polite but insistent, the way you were with the night nurse you read out. Cause you were awesome with her. What are they doing about her anxiety? Do they understand that this is a phobia and not standard anorexia nervosa? Or bulimia? It is caused by extreme fear of choking. I think that if things do not change a TON when you speak to the doctor on Monday that you should take her home and put her in a reg hospital where they will treat her anxiety disorders as they are the root of this. This all sounds like it is not going to be effective in the long run. I DO think your daughter is capable of the manipulation that svenghandi suggested, of figuring out that she only has to do X to get B, then trying to get B while doing less than X. I just don't think the "sit there until you eat it" is going to work long term. It isn't going to help her see that she is not going to choke, that her throat is designed to let food down to her stomach. Sending you a PM also. Hugs! [/QUOTE]
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