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hard day for difficult child and me.
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<blockquote data-quote="Jena" data-source="post: 382303" data-attributes="member: 4514"><p>no small that's where your wrong, 25mg. for the first week will give her enough calming to pull her thru. than we go up to 50mg. if you start her at 25 and not 15 the hit is fast. and from being around there for so many days i've come to learn this......</p><p> </p><p>their approach is food is life, without food there is no life. their main goal is refeeding, not therapy. their thought process is as with any phobia is exposure. hence difficult child sitting at table with-food infront of her like that. she is forced to confront her own fears that are in reality "non logical". the child does not have anything logded in her throat, she is not "sick" in her throat. I am noticing as the days pass right now that her belief that something is in there is dissapating somewhat. </p><p> </p><p>i ask her do you understand now that there's nothing stuck in your throat when you are able to eat? she puts her head down and says a huh i get it's my anxiety. than after ea. time she is able to ingest food and she did complete one meal in 4 days, today being full 5th day i rewarded her, i praised her i jumped up and down basically lol she was beaming at me when i did. a few of the kinder nurses there have pulled me aside quietly and said to me i'm a mom if my kid was giong thru this yea i'd be freaking too, yet please trust in what i'm going to tell you it's radical but if you can just make it thru the first week with-her it will turn around and they do re evaluate and they will change their approach somewhat.</p><p> </p><p>so, i'm trying very hard right now as i said to last till today, see what they have to say to me regarding their approach it's success in 5 days, etc. also find out when this therapy will kick in. </p><p> </p><p>i'm going to be very honest with-all of you at this point so far the only other option we have is oregon so far. i am still searching for my back up right now and klmno was right we have been clued in by our advocate on the insurance side if we pull her the fight will be harder at next hospital and to give it at least a week. than we can say ok it didnt' work next hospital.</p><p> </p><p>yea it bites, yea it's hardest thing 'ive ever had to do is sit there and watch her cry and be infront of food for 5 hours. yet truth is without food she will die. she needs to confront this fear and battle it.</p></blockquote><p></p>
[QUOTE="Jena, post: 382303, member: 4514"] no small that's where your wrong, 25mg. for the first week will give her enough calming to pull her thru. than we go up to 50mg. if you start her at 25 and not 15 the hit is fast. and from being around there for so many days i've come to learn this...... their approach is food is life, without food there is no life. their main goal is refeeding, not therapy. their thought process is as with any phobia is exposure. hence difficult child sitting at table with-food infront of her like that. she is forced to confront her own fears that are in reality "non logical". the child does not have anything logded in her throat, she is not "sick" in her throat. I am noticing as the days pass right now that her belief that something is in there is dissapating somewhat. i ask her do you understand now that there's nothing stuck in your throat when you are able to eat? she puts her head down and says a huh i get it's my anxiety. than after ea. time she is able to ingest food and she did complete one meal in 4 days, today being full 5th day i rewarded her, i praised her i jumped up and down basically lol she was beaming at me when i did. a few of the kinder nurses there have pulled me aside quietly and said to me i'm a mom if my kid was giong thru this yea i'd be freaking too, yet please trust in what i'm going to tell you it's radical but if you can just make it thru the first week with-her it will turn around and they do re evaluate and they will change their approach somewhat. so, i'm trying very hard right now as i said to last till today, see what they have to say to me regarding their approach it's success in 5 days, etc. also find out when this therapy will kick in. i'm going to be very honest with-all of you at this point so far the only other option we have is oregon so far. i am still searching for my back up right now and klmno was right we have been clued in by our advocate on the insurance side if we pull her the fight will be harder at next hospital and to give it at least a week. than we can say ok it didnt' work next hospital. yea it bites, yea it's hardest thing 'ive ever had to do is sit there and watch her cry and be infront of food for 5 hours. yet truth is without food she will die. she needs to confront this fear and battle it. [/QUOTE]
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