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<blockquote data-quote="pepperidge" data-source="post: 401675" data-attributes="member: 2322"><p>Jena,</p><p></p><p>It is horrible worrying about your child, whether you have done the right thing, whether she will get well, etc. You have done the best you could at each step of the way, don't beat yourself up.</p><p></p><p>Things will get better this week I think. You have your therapy appointment--I hope that the therapist will help you with some coping mechanisms to get through this difficult period. Are there any support groups at the clinic or the hospital? Marg mentioned knitting at one point--that has always helped me, though it may not be your thing. But sometimes knitting shops have an hour where people come and knit and talk. </p><p></p><p>I think your daughter will make progress, at least she is getting balanced nutrition through the feeding tube, right? </p><p>The weather will improve later on this week. </p><p></p><p>And I think the routine of the hospital during the week when there is more going on will help. Isolation is terrible thing when you are anxious. And your are cut off from all your usual supports. </p><p></p><p>Things seem bad right now because you are worried about what the doctors' plan is. It you can get that sorted out with them things will be better. Does the hospital have a patient advocate that you could talk to that might be a support to you when you talk to the docs? if it were me, I would be afraid that I wouldn't be expressing myself well because I was so upset. </p><p></p><p>Anyway, I think you are at a low point right now but I really do believe that things will get better. </p><p></p><p>Weekends are going to be tough so work with your therapist on a plan to get through them in good shape. </p><p></p><p>Hugs to you, this is enormously tough what you are doing.</p><p></p><p>P.</p></blockquote><p></p>
[QUOTE="pepperidge, post: 401675, member: 2322"] Jena, It is horrible worrying about your child, whether you have done the right thing, whether she will get well, etc. You have done the best you could at each step of the way, don't beat yourself up. Things will get better this week I think. You have your therapy appointment--I hope that the therapist will help you with some coping mechanisms to get through this difficult period. Are there any support groups at the clinic or the hospital? Marg mentioned knitting at one point--that has always helped me, though it may not be your thing. But sometimes knitting shops have an hour where people come and knit and talk. I think your daughter will make progress, at least she is getting balanced nutrition through the feeding tube, right? The weather will improve later on this week. And I think the routine of the hospital during the week when there is more going on will help. Isolation is terrible thing when you are anxious. And your are cut off from all your usual supports. Things seem bad right now because you are worried about what the doctors' plan is. It you can get that sorted out with them things will be better. Does the hospital have a patient advocate that you could talk to that might be a support to you when you talk to the docs? if it were me, I would be afraid that I wouldn't be expressing myself well because I was so upset. Anyway, I think you are at a low point right now but I really do believe that things will get better. Weekends are going to be tough so work with your therapist on a plan to get through them in good shape. Hugs to you, this is enormously tough what you are doing. P. [/QUOTE]
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