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<blockquote data-quote="buddy" data-source="post: 473419" data-attributes="member: 12886"><p>You are doing the same dance many of us have done and it does pay off so dont despair! Yes, the ARC does not do mental health however if you get a diagnosis on the autism spectrum they will help with that. They used to be called A=association R=retarded C=citizens. NO longer, they are now just the ARC</p><p></p><p>In our area (and I think I have found similar in lots of states on the web) I have looked just under social services and from there developmental disabilities or mental health. Here the social workers/caseworkers then help manage finding funding and services. Once my son switched from a daughter waiver to a Traumatic Brain Injury (TBI) waiver we started being case managed through public health nursing. I would call Public Health Nursing too even if again, they may not directly be able to help, they may know where to go. </p><p></p><p>As far as the waiver goes...He has to be on MA and they always say there is a long wait. That is true everywhere right now. But each political season becomes a new day and for those of us who have kids with life long disabilities.... a ten year wait is at least a wait. These waivers can follow them into adulthood so just go ahead and tell them that is fine, I want to be on the waiting list. If they are not on ma there are ways to get into it even if they have insurance, it can be a secondary insurance etc. There is usually a parent co-pay then but it is cheaper than paying straight out for the services the waiver covers. (the year my son got a waiver, mn had extra funds that came from something...I cant remember, and for a while they said anyone on MA in the entire state who wanted a waiver, send in this form...nearly everyone got one. So it can happen if the economy gets better in five years or whatever, you just dont know)</p><p></p><p>There are other programs other than waivers, like family support grants, community grants, etc... that is why you need to find a case manager... so the ideas given are to call the county...can call child and family services as people suggested below, can call public health nursing, or mental health, developmental disability case workers.....</p><p></p><p>Bug the heck out of them, it is worth it.</p></blockquote><p></p>
[QUOTE="buddy, post: 473419, member: 12886"] You are doing the same dance many of us have done and it does pay off so dont despair! Yes, the ARC does not do mental health however if you get a diagnosis on the autism spectrum they will help with that. They used to be called A=association R=retarded C=citizens. NO longer, they are now just the ARC In our area (and I think I have found similar in lots of states on the web) I have looked just under social services and from there developmental disabilities or mental health. Here the social workers/caseworkers then help manage finding funding and services. Once my son switched from a daughter waiver to a Traumatic Brain Injury (TBI) waiver we started being case managed through public health nursing. I would call Public Health Nursing too even if again, they may not directly be able to help, they may know where to go. As far as the waiver goes...He has to be on MA and they always say there is a long wait. That is true everywhere right now. But each political season becomes a new day and for those of us who have kids with life long disabilities.... a ten year wait is at least a wait. These waivers can follow them into adulthood so just go ahead and tell them that is fine, I want to be on the waiting list. If they are not on ma there are ways to get into it even if they have insurance, it can be a secondary insurance etc. There is usually a parent co-pay then but it is cheaper than paying straight out for the services the waiver covers. (the year my son got a waiver, mn had extra funds that came from something...I cant remember, and for a while they said anyone on MA in the entire state who wanted a waiver, send in this form...nearly everyone got one. So it can happen if the economy gets better in five years or whatever, you just dont know) There are other programs other than waivers, like family support grants, community grants, etc... that is why you need to find a case manager... so the ideas given are to call the county...can call child and family services as people suggested below, can call public health nursing, or mental health, developmental disability case workers..... Bug the heck out of them, it is worth it. [/QUOTE]
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