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<blockquote data-quote="Otto von Bismark" data-source="post: 473606" data-attributes="member: 12905"><p>daughter, Traumatic Brain Injury (TBI), and MA -- I looked those up in the abbreviations glossary and didn't see them. What are they?</p><p></p><p>Also, I have no reason to avoid a formal diagnosis. I want to know what we are dealing with, so we can set him up for success.</p><p> </p><p>We are in Florida, and we have a medication-Waiver program here. Don't know if that is state or national. New restrictions say you can only use it if you have diagnosis of autism, not Asperger's or Pervasive Developmental Disorder (PDD), unfortunately. After doing the parent questionnaires last week with his testing, I am pretty sure he will not end up with Autism diagnosis, if I can informally guess based on the number of "no's" on the autism questionnaire, and the number of "yesses" on the Asperger's one.</p><p></p><p>We also have BNET -- which is behavioral health component of state kid's insurance. I have heard there are no income restrictions on that. We aren't rich, but we make too much for subsidized state insurance for kids. I have left a few messages with their machine so far.</p><p></p><p>I will be doing a lot of the things you all have suggested. Thanks! Great ideas as usual.</p><p></p><p>Just a note: he went last night to another phase of testing, where the doctor left him alone in a room with two booklets. (!!!???)</p><p>One was a "never, rarely, sometimes, always" and the other was T/F. He shut down mid-way and stopped doing them. The doctor checked on him a few times. At one point he was on #145 in a 275 question booklet, and when the doctor came back 40 minutes later, he was on #146, and was reading one of the books on the doctor's bookshelf.</p><p></p><p>Also, after asking me about the test, he thinks he may have answered a number of questions wrong, which is why I think he got stuck and stopped. He said the first test had a "never, rarely, sometimes, often" scale, and the second test was just true or false. He, being precise with his language and very concrete when dealing with instructions, didn't know what to put with a statement that read something like, "I like to hurt other people's feelings."</p><p></p><p></p><p>He didn't know he could answer true if he only sometimes felt that way. He said there were <em>a lot</em> of answers that he answered false because he only <em>sometimes</em> felt that way, and there was no choice for sometimes. </p><p></p><p>I think the doctor was overestimating my son's capabilities, like everyone does when they see him. He is 13, really tall, acts super nice and agreeable and with it at first. But he shuts down after 15 minutes of work, esp. if he thinks it is insurmountable work (like a 300 question booklet). I can count on one hand the times in his life that I have left him alone to complete a task and he actually completed it.</p><p></p><p>I feel bad for my kid. He hates testing, and I don't know if he shuts down because he won't or because he can't. </p><p>We have to go back tomorrow. I wrote an email to doctor asking to consider switching up his testing approach, as well as having him start over on the entire test. We need to be accurate. Of course, every time I go in, there is a $45 copay! Ouch. I have no more co-pays left in me, after these past few weeks. I need to sell some plasma at this point. <img src="/community/styles/default/xenforo/smilies/wink.png" class="smilie" loading="lazy" alt=":wink:" title="wink :wink:" data-shortname=":wink:" /></p></blockquote><p></p>
[QUOTE="Otto von Bismark, post: 473606, member: 12905"] daughter, Traumatic Brain Injury (TBI), and MA -- I looked those up in the abbreviations glossary and didn't see them. What are they? Also, I have no reason to avoid a formal diagnosis. I want to know what we are dealing with, so we can set him up for success. We are in Florida, and we have a medication-Waiver program here. Don't know if that is state or national. New restrictions say you can only use it if you have diagnosis of autism, not Asperger's or Pervasive Developmental Disorder (PDD), unfortunately. After doing the parent questionnaires last week with his testing, I am pretty sure he will not end up with Autism diagnosis, if I can informally guess based on the number of "no's" on the autism questionnaire, and the number of "yesses" on the Asperger's one. We also have BNET -- which is behavioral health component of state kid's insurance. I have heard there are no income restrictions on that. We aren't rich, but we make too much for subsidized state insurance for kids. I have left a few messages with their machine so far. I will be doing a lot of the things you all have suggested. Thanks! Great ideas as usual. Just a note: he went last night to another phase of testing, where the doctor left him alone in a room with two booklets. (!!!???) One was a "never, rarely, sometimes, always" and the other was T/F. He shut down mid-way and stopped doing them. The doctor checked on him a few times. At one point he was on #145 in a 275 question booklet, and when the doctor came back 40 minutes later, he was on #146, and was reading one of the books on the doctor's bookshelf. Also, after asking me about the test, he thinks he may have answered a number of questions wrong, which is why I think he got stuck and stopped. He said the first test had a "never, rarely, sometimes, often" scale, and the second test was just true or false. He, being precise with his language and very concrete when dealing with instructions, didn't know what to put with a statement that read something like, "I like to hurt other people's feelings." He didn't know he could answer true if he only sometimes felt that way. He said there were [I]a lot[/I] of answers that he answered false because he only [I]sometimes[/I] felt that way, and there was no choice for sometimes. I think the doctor was overestimating my son's capabilities, like everyone does when they see him. He is 13, really tall, acts super nice and agreeable and with it at first. But he shuts down after 15 minutes of work, esp. if he thinks it is insurmountable work (like a 300 question booklet). I can count on one hand the times in his life that I have left him alone to complete a task and he actually completed it. I feel bad for my kid. He hates testing, and I don't know if he shuts down because he won't or because he can't. We have to go back tomorrow. I wrote an email to doctor asking to consider switching up his testing approach, as well as having him start over on the entire test. We need to be accurate. Of course, every time I go in, there is a $45 copay! Ouch. I have no more co-pays left in me, after these past few weeks. I need to sell some plasma at this point. :wink: [/QUOTE]
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