Forums
New posts
Search forums
What's new
New posts
New profile posts
Latest activity
Internet Search
Members
Current visitors
New profile posts
Search profile posts
Log in
Register
What's new
Search
Search
Search titles only
By:
New posts
Search forums
Menu
Log in
Register
Install the app
Install
Forums
General Discussions
The Watercooler
How Idiotic
JavaScript is disabled. For a better experience, please enable JavaScript in your browser before proceeding.
You are using an out of date browser. It may not display this or other websites correctly.
You should upgrade or use an
alternative browser
.
Reply to thread
Message
<blockquote data-quote="susiestar" data-source="post: 560396" data-attributes="member: 1233"><p>Lisa, if you are not working on your disability or SSI application, start it now. As in TODAY. If you call the social security office they can help. Then you go to the docs and get copies of the records and get the docs to write letters. I am SURE your kidney doctor will help, as will your other docs. </p><p></p><p>IC is correct. When you are discussing your medical condition for insurance, treatment, etc..., you are disabled. PERIOD. At home and with the family, you are you and you cope however you can. </p><p></p><p>HOW you present yourself to the docs and SS people is important. Before my first neck surgery I had almost NEVER told a doctor that I wasn't "fine" when the doctor walked in and said "Hi, How are you?". I always had makeup on, wore my nice clothes, and even though I would discuss some pretty awful symptoms, that first impression KILLED my chances for appropriate medical care. That very first 'Fine" and the smile that I gave even when I was in agony made the docs think that I was just whining and attention seeking. Even with clear to ME mri's of my neck showing some major problems with the discs and vertebrae, the doctor didn't think I needed medications or surgery or PT. One aleve was all I needed.</p><p></p><p>This was a TOP spine doctor in Cincy and I was incredibly confused. My mom was with me and she was shocked. I was cooperative, tried not to cry when the doctor did various things to see how my neck/head moved, and I did not advocate well for myself. In my defense, that first fine was automatic and this guy had no intention of allowing me to say more than 2 or 3 words before he would start talking to the babydoc he was treated. I had also had very little sleep and was overwhelmed.</p><p></p><p>My mom had a long talk with me about <strong>HOW</strong> to be the patient that the docs treat early. First of all, when the doctor asks "how was your day?" your answer is "I have had better" or "Not so good" or "Horrible" or "PLEASE cut my head off so it will stop hurting!" Of course the last is exaggeration, but if you have a doctor who is not responsive, that answer CA get some help because it shocks them. Just be sure it s the head that is causing the problem!</p><p></p><p>When they ask what hurts, tell them as specifically as possible and describe the pain. If a movement or pressure on your body hurts, don't just say ouch, act out ouch. Tense up, pull away, show the pain on your face, make sounds of pain even if it is just a sharp breath. </p><p></p><p>Doing these things will help motivate the doctor to get the info to SS sooner. Also remember these things when you are sent to the doctor that SS chooses. don't go overboard with the SS doctor, but do show as much as you can. </p><p></p><p>As for only giving you family planning, the income levels for medicaid for an adult are amazingly low. AMAZINGLY. In my state for a family of 4, the only time the adult (s) get benefits other than family planning are when the gross income is no higher than around $600 or so per month. I know if you earn more than $675 a month you cannot get services for the adults. I haven't pulled up the OK chart lately, but I helped a friend a few months ago and I was shocked by the income guideline.</p><p></p><p>Google "Medicaid income guidelines for Ohio 2012" and you will find links to the income requirements. </p><p></p><p>Ohio DOES have a program where the disabled who have income less than 250% of the federal poverty level can buy health insurance at very low prices. If you earn between 150% -200% of the federal poverty level pay premiums, those who earn less than 150% do not pay premiums. I would ask for help with that, and wuold search online for more info. You may find help at the dept of vocational rehabilitation or whatever it might be called. They may know these policies better than others.</p><p></p><p>I know that your disabilities are not easily visible, but the more you can do to make them visible when you are dealing with these people the more likely they are to provide help. Squeaky wheel and all that.</p></blockquote><p></p>
[QUOTE="susiestar, post: 560396, member: 1233"] Lisa, if you are not working on your disability or SSI application, start it now. As in TODAY. If you call the social security office they can help. Then you go to the docs and get copies of the records and get the docs to write letters. I am SURE your kidney doctor will help, as will your other docs. IC is correct. When you are discussing your medical condition for insurance, treatment, etc..., you are disabled. PERIOD. At home and with the family, you are you and you cope however you can. HOW you present yourself to the docs and SS people is important. Before my first neck surgery I had almost NEVER told a doctor that I wasn't "fine" when the doctor walked in and said "Hi, How are you?". I always had makeup on, wore my nice clothes, and even though I would discuss some pretty awful symptoms, that first impression KILLED my chances for appropriate medical care. That very first 'Fine" and the smile that I gave even when I was in agony made the docs think that I was just whining and attention seeking. Even with clear to ME mri's of my neck showing some major problems with the discs and vertebrae, the doctor didn't think I needed medications or surgery or PT. One aleve was all I needed. This was a TOP spine doctor in Cincy and I was incredibly confused. My mom was with me and she was shocked. I was cooperative, tried not to cry when the doctor did various things to see how my neck/head moved, and I did not advocate well for myself. In my defense, that first fine was automatic and this guy had no intention of allowing me to say more than 2 or 3 words before he would start talking to the babydoc he was treated. I had also had very little sleep and was overwhelmed. My mom had a long talk with me about [B]HOW[/B] to be the patient that the docs treat early. First of all, when the doctor asks "how was your day?" your answer is "I have had better" or "Not so good" or "Horrible" or "PLEASE cut my head off so it will stop hurting!" Of course the last is exaggeration, but if you have a doctor who is not responsive, that answer CA get some help because it shocks them. Just be sure it s the head that is causing the problem! When they ask what hurts, tell them as specifically as possible and describe the pain. If a movement or pressure on your body hurts, don't just say ouch, act out ouch. Tense up, pull away, show the pain on your face, make sounds of pain even if it is just a sharp breath. Doing these things will help motivate the doctor to get the info to SS sooner. Also remember these things when you are sent to the doctor that SS chooses. don't go overboard with the SS doctor, but do show as much as you can. As for only giving you family planning, the income levels for medicaid for an adult are amazingly low. AMAZINGLY. In my state for a family of 4, the only time the adult (s) get benefits other than family planning are when the gross income is no higher than around $600 or so per month. I know if you earn more than $675 a month you cannot get services for the adults. I haven't pulled up the OK chart lately, but I helped a friend a few months ago and I was shocked by the income guideline. Google "Medicaid income guidelines for Ohio 2012" and you will find links to the income requirements. Ohio DOES have a program where the disabled who have income less than 250% of the federal poverty level can buy health insurance at very low prices. If you earn between 150% -200% of the federal poverty level pay premiums, those who earn less than 150% do not pay premiums. I would ask for help with that, and wuold search online for more info. You may find help at the dept of vocational rehabilitation or whatever it might be called. They may know these policies better than others. I know that your disabilities are not easily visible, but the more you can do to make them visible when you are dealing with these people the more likely they are to provide help. Squeaky wheel and all that. [/QUOTE]
Insert quotes…
Verification
Post reply
Forums
General Discussions
The Watercooler
How Idiotic
Top