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husband is Really Scared
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<blockquote data-quote="susiestar" data-source="post: 471558" data-attributes="member: 1233"><p>Thanks. He will get past the freak out, but probably won't ever be much help in a dr appointment. I have to either send a list wtih him or go to his dr appts just like iwth a child if I want him to get anything addressed at the doctor. He could be bleeding out from a wound but would tell the doctor he is "fine" and everything is "okay". I got over the annoyance with that one yrs ago and he does things to make up for me having to take charge of his health as well as the kids. No partnership is 50/50, and we have a pretty good routine for most things (20 yrs either does that or you hate each other, lol).</p><p></p><p>He problem won't actually face everything she is going through. MOstly because he can't fix it so he can't deal. He still hasn't read book one on aspergers, much less any other problem the kdis have. But he does the school stuff, the sports teams, and other activities like Odyssey of the Mind, etc.....</p><p></p><p>He WILL now stop griping because she doesn't do everything he wants her to, and he never sees her do schoolwork. She sleeps most of the day and is up all night because the pain is a lot worse at night. I now am mostly on "the vampire shift" because when she is hurting she wants her Mommy - can't blame her for that. She doesn't go overboard with it, just is needier at night. So that is when seh does her schoolwork. I don't care as long as she is learning, Know what I mean?? </p><p></p><p>I have wondered about MS, couldn't get a doctor to even think about it before this. </p><p></p><p>Cindy, the neuro does know about this. He doesn't want to do a whole lot until he gets the extended EEG, which is in 11 days. I am sure he will diagnosis whatever is needed, he is very responsive but won't deal with more than 1 or maybe 2 changes at a time. Means it takes longer to get results but you know what is working and what isn't. So we will give him some time. Meantime, she does stretching and range-of motion exercises several times a day. I am sure something else is needed, something more specific, but I am willing to wait until after we get the eeg done to take that step as the eeg is so close (and is at least 4 days in the hospital, probably 5 and will probably give them a good view of all the symptoms and what is/isn't seizure related, Know what I mean??</p><p></p><p>Thanks all. It is hard when husband freaks out. He immediately goes to doom and gloom and life hoovers and it is all because we don't have any $$ etc.... I keep reminding him that she is getting better care on the state kids' medicaid than we got with private insurance, so it isn't all bad, and the sun still shines and the flowers still bloom etc.....</p><p></p><p>I just don't know how he can refuse to see the problems for so long and then freak out so much when he does see one. Must be the testosterone. Momma always said it killed brain cells.</p></blockquote><p></p>
[QUOTE="susiestar, post: 471558, member: 1233"] Thanks. He will get past the freak out, but probably won't ever be much help in a dr appointment. I have to either send a list wtih him or go to his dr appts just like iwth a child if I want him to get anything addressed at the doctor. He could be bleeding out from a wound but would tell the doctor he is "fine" and everything is "okay". I got over the annoyance with that one yrs ago and he does things to make up for me having to take charge of his health as well as the kids. No partnership is 50/50, and we have a pretty good routine for most things (20 yrs either does that or you hate each other, lol). He problem won't actually face everything she is going through. MOstly because he can't fix it so he can't deal. He still hasn't read book one on aspergers, much less any other problem the kdis have. But he does the school stuff, the sports teams, and other activities like Odyssey of the Mind, etc..... He WILL now stop griping because she doesn't do everything he wants her to, and he never sees her do schoolwork. She sleeps most of the day and is up all night because the pain is a lot worse at night. I now am mostly on "the vampire shift" because when she is hurting she wants her Mommy - can't blame her for that. She doesn't go overboard with it, just is needier at night. So that is when seh does her schoolwork. I don't care as long as she is learning, Know what I mean?? I have wondered about MS, couldn't get a doctor to even think about it before this. Cindy, the neuro does know about this. He doesn't want to do a whole lot until he gets the extended EEG, which is in 11 days. I am sure he will diagnosis whatever is needed, he is very responsive but won't deal with more than 1 or maybe 2 changes at a time. Means it takes longer to get results but you know what is working and what isn't. So we will give him some time. Meantime, she does stretching and range-of motion exercises several times a day. I am sure something else is needed, something more specific, but I am willing to wait until after we get the eeg done to take that step as the eeg is so close (and is at least 4 days in the hospital, probably 5 and will probably give them a good view of all the symptoms and what is/isn't seizure related, Know what I mean?? Thanks all. It is hard when husband freaks out. He immediately goes to doom and gloom and life hoovers and it is all because we don't have any $$ etc.... I keep reminding him that she is getting better care on the state kids' medicaid than we got with private insurance, so it isn't all bad, and the sun still shines and the flowers still bloom etc..... I just don't know how he can refuse to see the problems for so long and then freak out so much when he does see one. Must be the testosterone. Momma always said it killed brain cells. [/QUOTE]
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