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I Am So Mad!!!
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<blockquote data-quote="totoro" data-source="post: 140858" data-attributes="member: 3155"><p>Is there an MS support group at the Hospital? You never know, someone there you might connect with??? ANY Autism support groups in your area, special needs groups, ANYTHING? </p><p>Just something. Sometimes if you go once you may find a connection with ONE person, and that person may lead to a possibility? A connection, a helping hand? </p><p></p><p>My therapist, and Occupational Therapist (OT) tried SO hard to connect us with any one who we might have a connection with another child who was similar or in a situation at all like ours. </p><p>We just live in too small of an area... </p><p>I honestly know how you feel, I think a lot of us do. I have no family support. My In-laws try. But they are far away, and they think buying things is the answer. </p><p>They have a hard time watching the "weird" things K does... But it does get better. </p><p></p><p>We had the blows come at us all at once it felt like also. So now with both of my children having issues and Me having Bipolar Disorder. I thought that was enough... my husband has a deteriorating spine as well. Some days he can barely get up... but he has to. So we trudge forward... he lives like it isn't there. He will ignore it until he has to get the spinal fusion... </p><p>But we had all of this come at us, plus take out a second mortgage so we can keep the business alive, because it helps support a bunch of other people in the family... </p><p>Now we get to move. </p><p>It does always feel like it is all too much. But you have to know that you will get through this... I am not trying to say "I have it harder", I am amazed at what you are dealing with. But I want you to know that some of us go through hell, and it does get a little better, gets worse, gets better... </p><p>We just have to hold on to the good things... the love you have for your family. Remember that Sammy didn't ask for this. Nor did your husband. You are being asked to be a true Warrior Mom right now, I don't know why? </p><p>Sometimes we just have to go it alone for awhile. And then a light will shine through... something gives. </p><p>Cry when you feel it, let yourself grieve the dream that feel you are losing. Talk to your therapist. </p><p>You will have new hopes. You will have new laughter... there will be good days again.</p></blockquote><p></p>
[QUOTE="totoro, post: 140858, member: 3155"] Is there an MS support group at the Hospital? You never know, someone there you might connect with??? ANY Autism support groups in your area, special needs groups, ANYTHING? Just something. Sometimes if you go once you may find a connection with ONE person, and that person may lead to a possibility? A connection, a helping hand? My therapist, and Occupational Therapist (OT) tried SO hard to connect us with any one who we might have a connection with another child who was similar or in a situation at all like ours. We just live in too small of an area... I honestly know how you feel, I think a lot of us do. I have no family support. My In-laws try. But they are far away, and they think buying things is the answer. They have a hard time watching the "weird" things K does... But it does get better. We had the blows come at us all at once it felt like also. So now with both of my children having issues and Me having Bipolar Disorder. I thought that was enough... my husband has a deteriorating spine as well. Some days he can barely get up... but he has to. So we trudge forward... he lives like it isn't there. He will ignore it until he has to get the spinal fusion... But we had all of this come at us, plus take out a second mortgage so we can keep the business alive, because it helps support a bunch of other people in the family... Now we get to move. It does always feel like it is all too much. But you have to know that you will get through this... I am not trying to say "I have it harder", I am amazed at what you are dealing with. But I want you to know that some of us go through hell, and it does get a little better, gets worse, gets better... We just have to hold on to the good things... the love you have for your family. Remember that Sammy didn't ask for this. Nor did your husband. You are being asked to be a true Warrior Mom right now, I don't know why? Sometimes we just have to go it alone for awhile. And then a light will shine through... something gives. Cry when you feel it, let yourself grieve the dream that feel you are losing. Talk to your therapist. You will have new hopes. You will have new laughter... there will be good days again. [/QUOTE]
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